@EuroRespSoc Clinical Research Collaboration - Multidisciplinary network coordinating research & improving clinical care of Primary Ciliary Dyskinesia (PCD)
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Save the date! Join us for the 2026 PCD Patient Conference online on 13–14 November 2026.
Hear the latest research updates, patient perspectives, genetics, and practical sessions on living well with PCD. More info on our website: beat-pcd.squarespace.com/eve…
#PCD2026 @EuropeanLung
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BEAT-PCD (ERS CRC) retweeted
What should be the next target ? 1000 followers ?
A huge thank you to everyone who follows BEAT-PCD, supports our work, and helps us share information about primary ciliary dyskinesia (PCD).
Let’s keep reaching out to the community and spreading the word. facebook.com/profile.php?id=…
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A huge thank you to everyone who follows BEAT-PCD, supports our work, and helps us share information about primary ciliary dyskinesia (PCD).
Let’s keep reaching out to the community and spreading the word. facebook.com/profile.php?id=…
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Help us grow the BEAT-PCD community by inviting your friends, family, and anyone interested in PCD to follow our Facebook page.
The more our community grows, the more we can share information, resources, and updates with people.
facebook.com/profile.php?id=…
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BEAT-PCD has reached the final step in its digital transformation!
Explore our new, simplified website at beat-pcd.org for faster access to resources, research, and community updates.
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Researchers from @uni_muenster and @harvardmed have identified a previously unknown transition zone linker whose defects cause structural and functional abnormalities in motile cilia—revealing a new genetic mechanism underlying PCD: science.org/doi/10.1126/scie…
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We are live for the Global PCD conference 2026 highlights organized by @PCDFoundation and recording will be available shortly after the webinar. @Shoemelia @RunningOnO2
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A busy #ERSCongress2026 for BEAT-PCD! From our 60–65-strong Management Committee meeting to PCD posters, oral presentations, guidelines on diagnosis & nasal NO screening, and a dedicated PCD symposium - plus a great chance to connect with colleagues from around the world.
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We would like to remind everyone that the BEAT-PCD meeting during the ERS congress will take place today at 14:00 to 16:45 CET, in Room 3.12, (Theatre Room), Hall CC3 at the conference centre.
beat-pcd.squarespace.com/eve…
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For those attending the ERS conference, we're having an informal meet up on Monday at 12.30 at the bronchiectasis pavilion - our chairs and members of our management committee will be there, come and join us!
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Together with ClinGen, we’ve just updated the list of PCD-associated genes on our site: beat-pcd.squarespace.com. It’s growing so check back often for new additions!
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[Reminder] The BEAT-PCD meeting during the ERS conference will take place on Saturday, 5th September 2026, 14:00 to 16:45 CET, in Room 3.12, (Theatre Room), Hall CC3 at the conference centre.
The meeting is open to a broader audience (registration to the conference mandatory).
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Did you miss the first Global PCD Conference in Montreal, or want a refresher on the key highlights?
Join conference chairs as they revisit key advances in PCD biology, disease mechanisms, clinical care and more.
📅 15 September | 14:00 CEST
🔗 Register: beat-pcd.squarespace.com/eve…
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The PCD patient conference 2026 will be held online on Friday 13 November and Saturday 14 November 2026. The registration is now available on our website: beat-pcd.squarespace.com/eve…
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BEAT-PCD Newsletter
The issue 13 of the BEAT-PCD Newsletter is available on our website. This newsletter features our helpful guide to the ERS in Barcelona, information about our newly launched HSVM training hub, and details of upcoming events.
beat-pcd.squarespace.com/new…
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BEAT-PCD (ERS CRC) retweeted
An incredible honour to receive the Outstanding Clinical Science Poster Award at the Global PCD Conference 2026! Huge thanks to
@PCDFoundation, @beatpcd & @ErnLung and to the legendary Dr Magee Leigh for presenting me with the award.
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Round 2, @mgoutaki is back on the stage presenting results from the EPIC study (ispm.unibe.ch/research/resea…) @PCD_ispm
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BEAT-PCD (ERS CRC) retweeted
Presented my poster on an AI-assisted pipeline for the ultrastructural diagnosis of PCD yesterday evening. If you missed me in the little room behind the elevators, the poster is now up in the lobby. Hit me up and we can have a chat about my work. #GlobalPCD2026
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BEAT-PCD (ERS CRC) retweeted
Always excited to see so many achievements and projects going on within @beatpcd!
Zoom in and check the HSVM training and take the quiz!
Our own @mgoutaki presented this morning highlights of the @beatpcd projects at the Global PCD conference in Montreal, Canada.
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