ALS TDI@ALSTDI

The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS

 Watertown, MA
als.net/donate/?soc=blog706
Joined September 2010
1,862 Photos and videos
Meet the people behind the research. Our scientists explaining their projects at last year's Summit poster session. They're back October 9 with new work. One week left to register in person. Summit: als.net/alssummit/ WCA: als.net/wca/
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Our 2025 Annual Report is here — and for the first time, it's fully digital. See how your support advanced potential treatments, built better research tools, and laid the groundwork for our expansion. als.net/about-als-tdi/annual…
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We are encouraged by the positive Phase 3 results for ulefnersen in FUS-ALS, and grateful to every trial participant who made them possible. Congratulations to the teams at Ionis and Otsuka — more evidence for treatments targeted to specific subsets of people with ALS.
Ionis@ionispharma
Sep 22
Today w/ partner Otsuka we announced positive topline results from the Ph3 FUSION study evaluating an investigational RNA-targeted medicine for people w/ amyotrophic lateral sclerosis (#ALS) caused by mutations in the fused in sarcoma (FUS) gene: ir.ionis.com/news-releases/n… $IONS
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At the ALS TDI Summit, hear from ALS TDI scientists and guest experts about promising new approaches across the field—and learn how ALS TDI's expansion will increase our capacity to pursue more of these opportunities. Read our blog to learn more: lnkd.in/eDpg8hYB
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⏰ Last call — the Sheraton Boston room block for the White Coat Affair closes tomorrow, September 18. If you're joining us in Boston on October 10, now's the time to book. Registration stays open through October 1. fundraise.als.net/wca
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Boston is back for Team ALS TDI. 🦄 The course runs straight through Newton, where ALS TDI was founded. Run all 26.2 with one mission: to end ALS. $20,000 fundraising minimum. Apply by 9/28: charityteams.com/apply/als-t…
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Thank you to the 150+ people who joined us at the 2026 ALS Walk for Research and raised over $105,000 for research in our lab. 💜 We're already looking forward to next year.
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Meet the 2026 ALS TDI Leadership Award winners! Nine stories of advocacy, invention, and love, from an 8-year-old teaching his classmates about ALS to a golf challenge that's raised $2M+ for research. als.net/news/2026-als-tdi-le…
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Team ALS TDI is heading back to Big Sur! Applications are open for the 2027 Marathon and 11-Miler. Run one of the country's most beautiful courses while raising funds for ALS research. Apply by 9/25: fundraise.als.net/marathon/b…
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Win dinner for two anywhere in the world 🌍 Flights, a 2-night hotel stay & a $5,000 dining experience — tickets just $25. Drawn Oct 10 at the White Coat Affair After Party. Need not be present to win. All proceeds fund ALS research: fundraise.als.net/worldraffl…
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Three states. Three ways to help support ALS research this month. Our community is showing up this September! Find an event near you: als.net/als-events/upcoming/
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~85% of ALS cases are sporadic, but most lab models represent genetic forms. PRISM ALS is changing that: ALS TDI, LifeArc & Axol are building patient-derived motor neuron models of sporadic ALS, open to researchers everywhere. Full Town Hall: als.net/als-town-hall/archiv…
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150+ walkers took to the streets of Newton, right past where ALS TDI was founded, and raised over $103,000 for ALS research. To everyone who walked, donated, or attended a satellite Walk: thank you. 💜
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⏰ ~6 hours left to nominate someone for a 2026 ALS TDI Leadership Award. Know someone who shows up for the ALS community every single time? Tell us about them before nominations close tonight: als.net/summit/awards/nomina…
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Meet the runners taking on the TCS Sydney Marathon this Sunday! Shanna, Jonathon, Robin, and Phillipe are running for Team ALS TDI and have raised $14K+ for ALS research. Not too late to donate and cheer them on! Good luck, team!
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Thank you to Stuart Chapin for riding 5,000 miles solo from NY to SF, raising $10K+ for ALS research. And to the Walnut community, who raised $40K+ for ALS research even after their 5K got rained out. Every mile and dollar counts. Thank you!
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Meet Dr. Danielle Boyce, ALS TDI's Principal Investigator, Real World Evidence! She's kicking off our new series, Behind the Data, exploring how ARC Study data helps uncover ALS discoveries. Learn more: als.net/arc/
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⏰ Reminder: Nominations for the ALS TDI Leadership Awards close August 31! Know someone making a real impact in the fight against ALS? Nominate them today: als.net/summit/awards/nomina…
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⏰ Only a few days left to register! We'll see you Sunday for the ALS Walk for Research. Sign up now and join us in supporting groundbreaking ALS research: alswalkforresearch.als.net/
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Congrats to Swetha Gurumurthy, Associate Scientist II at ALS TDI, on placing Top 20 in the #StemCellfie Contest 2026! Her image, captured on Agilent's Cytation 10, shows iPSC-neurons stained for Beta-III Tubulin with a DAPI counterstain. So proud, Swetha!
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