🎯 Help us reach our 1,000 survey responses target and improve adrenal crisis care!
Eligibility:
👤 Aged 18 or over
🩺 Receive medical care in the UK
📋 Have been diagnosed with adrenal insufficiency
💊 Are taking glucocorticoid replacement treatment
⤵️
addisonsdisease.org.uk/news/…
ALT Purple graphic encouraging participation in an online survey, which is about improving adrenal crisis care.
The headline reads, "HELP US REACH 1,000 RESPONSES", with a teal banner underneath saying, "Improve adrenal crisis care" followed by a rotating emergency light emoji.
A large white thermometer graphic is filled to 60%, with "60%" displayed inside the bulb.
To the right, labels show "600 RESPONSES" at the current level and "1,000 TARGET" near the top, indicating progress towards the goal.
A teal callout box to the right reads, "Take part in our online survey & use your voice to make a difference."
At the bottom is the web address: www.addisonsdisease.org.uk/news.
Logos for City St George's, University of London and the Addison's Disease Self-Help Group appear in the lower-right corner.
Morning @Soc_Endo#ClinicalUpdate2026 👋 Visit us to learn about adrenal insufficiency, see our emergency injection kits in action & resources to support you & your patients.
📍 Find us in the club lounge, adjacent to the restaurant and bar.
Endo Hub 👉 addisonsdisease.org.uk/adshg…
ALT Two smiling women wearing conference lanyards stand behind the Addison's Disease Self-Help Group (ADSHG) stand.
The table has a purple cloth with the ADSHG logo and is covered in leaflets, booklets, emergency injection kits, Christmas cards and a bowl of sweets. Signs on the table promote the ADSHG Connection newsletter, with a QR code to sign up. The Society for Endocrinology logo appears in the top left.
ALT Two stacked photos of smiling conference attendees, wearing lanyards, posing behind a blue ADSHG photo frame.
In the top photo, three women pose together.
In the bottom photo, two women pose together.
The frame reads "Addison's Disease Self-Help Group (ADSHG)", "addisonsdisease.org.uk" and "Be Aware, Be Prepared, Be Understood". The Society for Endocrinology logo appears in the bottom right.
1
5
204
Addison's Disease Self-Help Group (ADSHG) retweeted
10 years ago today I was in resus & diagnosed with incurable, life-threatening Addison's Disease + 4 further resus trips
I thought I'd be unable to fulfil my ambitions
To anyone in that place, keep going. Magic happens when you back yourself. I hope I have more magic to come 💫
On a dream holiday to Disneyland Paris, Sophie became critically unwell & was admitted to intensive care in France. She was in an adrenal crisis & was diagnosed with Addison's disease.
On our blog, she shares her story to help other children & families⤵️
loom.ly/B1hDbVA
Sophie & her family spoke to @bbcnaidheachdan to raise awareness of Addison's disease, the warning signs & how Sophie manages this life-threatening condition as a young person.
"I felt really proud when I saw myself on the news!" Watch Sophie's interview👇piped.video/watch?v=l-NSEZ0B…
📸 Highlights from our recent Injection Training & Sick Day Rules event!
Supported by an Endocrine Nurse Specialist, those with adrenal insufficiency had hands-on injection practice and a refresher on Sick Day Rules.
💉 Help us provide more training ⬇️
addisonsdisease.org.uk/help-…
ALT An injection training session hosted by the Addison's Disease Self-Help Group (ADSHG).
The main image shows a group of people seated around tables practising the injection technique.
An Endocrine Specialist Nurse is standing at the front giving a demonstration.
The image includes bold overlaid text reading “INJECTION TRAINING WITH THE ADSHG” in black and purple.
There is also an emergency injection kit graphic over the bottom-right corner of the white faded text box.
At the bottom right, there is a callout saying “See what a training session looks like!” with a purple arrow pointing towards the right, encouraging users to go to the next image.
The ADSHG logo appears at the top above the main text.
ALT Participants seated around a table during an Addison's Disease Self-Help Group (ADSHG) injection training session, handling injection equipment and following practical exercises.
Several people are examining syringes, vials and other training materials, with drinks, fruit and personal belongings also visible on the table.
The classroom is brightly lit, with other participants working in the background.
The image includes the ADSHG logo and an overlaid banner reading “INJECTION TRAINING WITH THE ADSHG”, alongside a syringe icon.
ALT A collage of photographs from an Addison's Disease Self-Help Group (ADSHG) injection training session, showing people learning and practising the emergency injection technique.
The top-left image shows a close-up of a participant drawing medication from a small vial into a syringe.
The top-right shows an Endocrine Nurse Specialist helping a participant who's holding a syringe.
The bottom-left shows the Endocrine Nurse Specialist presenting information beside a projected step-by-step injection guide, while the bottom-right shows two participants practising together with injection equipment.
The collage is branded with the ADSHG logo and the text “INJECTION TRAINING WITH THE ADSHG”, accompanied by a syringe icon.
ALT Graphic inviting healthcare professionals to help host an injection training session with the Addison's Disease Self-Help Group (ADSHG).
The purple upper section reads “Be aware. Be prepared. Be understood.” and asks, “ARE YOU PART OF AN ENDOCRINE TEAM THAT COULD HELP US HOST AN INJECTION TRAINING SESSION?”
It also says “Visit our website to find out more” and displays the website address “www.addisonsdisease.org.uk”.
The lower section shows the ADSHG Director standing at the front of a classroom speaking to participants seated at tables, with a presentation projected on the wall.
The ADSHG logo appears at the bottom of the photograph.
🌍 Travelling with Addison's or adrenal insufficiency? Our translated Adrenal Crisis Guidelines are now available in 18 languages!
Pack a copy in your destination's language before you leave and travel feeling prepared and confident.
📥 Download here ⬇️
addisonsdisease.org.uk/trave…
🚨 Help us campaign for safer adrenal crisis care this #WorldPatientSafetyDay
Adrenal crisis is an emergency yet life-saving treatment is full of obstacles.
We’re calling for:
💉Simpler injections
🚑Stronger emergency response
🏥Safe, consistent care addisonsdisease.org.uk/advoc…
💉 Since liquid hydrocortisone was discontinued, you've asked us about Act-O-Vial® – an easier-to-prepare emergency injection that's licensed in the EU but not in the UK.
Our new guide explains what Act-O-Vial® is and how it may be prescribed in the UK ⬇️
addisonsdisease.org.uk/act-o…
🎟️ Last chance! Manchester Member Get-Together tickets close Friday evening.
Join us on Sat 26 Sept to connect with others living with Addison's & adrenal insufficiency, hear from experts on #URHYTHM wearable tech, join our expert Q&A & breakout groups. addisonsdisease.org.uk/Event…
🚑 It’s #EmergencyServicesDay!
To mark the day, we’re running a free Paramedic Training session and there’s still time to sign up!
👩⚕️ Know a paramedic? Share this with them.
➡️ TODAY, 3 - 4.15pm - register: addisonsdisease.org.uk/Event…
Thank you to all emergency service staff 💜
ALT Yellow and green London Ambulance Service emergency vehicle in motion on a city street.
There is a message that reads, 'Thank you Emergency Services' in the foreground.
'Thank you' is in bold red text with a cream-coloured box around it, while 'Emergency Services' is in creamed-coloured text with a red box around it.
To the left of the text is the Addison's Disease Self-Help Group logo in white.
ALT Graphic for online paramedic training sessions hosted by the Addison’s Disease Self-Help Group (ADSHG).
The purple banner across the top reads 'Online Paramedic Training'. Underneath this are the words, 'Hosted by the Addison's Disease Self-Help Group (ADSHG) charity'.
At the top right is the logo for the ADSHG.
The Zoom sessions are scheduled for Wednesday 9 September 2026, 3 – 4.15pm (Emergency Services/999 Day), and Thursday 19 November 2026, 2 – 3.15pm.
Each session will focus on adrenal crisis and the emergency management of steroid dependency for patients with adrenal insufficiency, including Addison’s.
The text below reads, 'Learn more about the standalone JRCALC guidelines on adrenal insufficiency and hear real-life experiences, helping put the theory you learn into practice'.
At the bottom, there is a 'Register Today' button and an illustration of an ambulance with the words 'Adrenal Crisis'.
There is also the website link: www.addisonsdisease.org.uk/paramedic-training.
Living with adrenal insufficiency or Addison's and had a healthcare experience where you felt at risk, or were at risk?
Tell us via our Patient Safety Event Form. Your experience can help us spot patterns and push for change 📝
addisonsdisease.org.uk/news/…
Last chance to sign up for our next Paramedic Training session ⏰
Learn more about Addison's disease, adrenal insufficiency & the emergency management of adrenal crisis.
📅 Wed 9 Sept 2026, 3-4.15pm
⬇️ Free! Register now
addisonsdisease.org.uk/Event…#ParaCPD@ParamedicsUK@AACE_org
3
8
346
Addison's Disease Self-Help Group (ADSHG) retweeted
Jenn was diagnosed with Sheehan’s Syndrome when her son was days old. Living with secondary adrenal insufficiency, she repeatedly went into adrenal crisis. Then she found @MedDetectDogs and Joy, her cortisol alert dog.
#InternationalDogDay
Read more ⤵️
addisonsdisease.org.uk/blog/…
Calling all 18–30s living with Addison's disease & adrenal insufficiency 📣
Work, friends, independence - a chronic condition on top of it all isn't easy. Join our online wellbeing webinar with @RaremindsUK.
📅 Thu 10 Sept, 7–8.30pm
🎟️Book your spot👉 loom.ly/G_CfLPY
ALT A graphic designed to look like a note in a smartphone Notes app.
At the top is a status bar showing the time 10:00, with mobile signal, Wi-Fi and battery icons, followed by a yellow “Notes” heading and back arrow. On the right is a share button.
The main note asks in large bold text, “Aged 18-30 and living with adrenal insufficiency? There can be a lot to think about…” It then presents five questions, each paired with an emoji: “How do I explain my condition to others?” with a speech bubble; “How do I navigate relationships?” with a red heart; “How do I balance my health with everything else going on in my life?” with a calendar; “Why does managing my condition feel so exhausting?” with a sleepy face; and “Is anyone else worrying about the future?” with a crystal ball.
At the bottom, the note invites users to “Find out more about our Young People’s Wellbeing Webinar,” followed by a pointing finger emoji.
The Addison’s Disease Self-Help Group logo appears in the top-right corner.
Tablet time and a cuppa? Perfect timing, the Summer Addison's Magazine is here!
We launched 3 new resources: Patient Safety Event form, Secondary School booklet & translated Adrenal Crisis Guidelines. Plus personal stories & expert articles. Read more👉addisonsdisease.org.uk/magaz…
ALT A copy of the Addison’s Disease Self-Help Group (ADSHG) Summer 2026 Magazine on a wooden table beside an ADSHG branded mug of tea, a pen and hydrocortisone tablets. The magazine cover features a laptop and highlights articles on looking ahead, Finnley’s story, technology and travel safety.
ALT The Summer 2026 Addison’s Disease Self-Help Group (ADSHG) Magazine opened to a two-page feature about Addison’s Disease Day 2026, showing awareness activities, photographs of supporters and healthcare teams, social media highlights and information about the campaign.
Immunotherapy is a treatment approach most commonly used for people with cancer, but it can also affect other parts of the body, including the adrenal glands.
Our new article looks at why immunotherapy can cause adrenal insufficiency and explains more ⤵️
addisonsdisease.org.uk/immun…
Join us in Kent for our Injection Training and Sick Day Rules Refresher and learn how to use your emergency injection kit - a life-saving skill for preventing or treating an adrenal crisis 💉
📆 Thursday 17 Sept 2026, 2-4pm
📍 Beckenham, Kent
🎟️ RSVP ⤵️
addisonsdisease.org.uk/Event…