Prolonged Disorders of Consciousness (Vegetative/MCS) patients. Research cdoc.org.uk/. Resource for Families: healthtalk.org

Cardiff University, Wales, UK
Coma Research retweeted
I was on @BBCr4today this morning at. 7:41 talking about lasting powers of attorney and deprivation of liberty safeguards for adults in a care setting bbc.co.uk/sounds/play/live/b…
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Townsend v Epsom judgment. Summary of expert workshop addressing implications for legal proceedings, healthcare organisations & clinical practice, families, patients & professional guidelines. gtc.ox.ac.uk/wp-content/uplo…
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Coma Research retweeted
The week in mental health & capacity law: how AGNI is playing out in court - objections front and centre; a discharge saga meets an MHA assessment; and two Ombudsman decisions on s.117 charging and nearest relative requests. All explained in plain English: lpslaw.co.uk/news/
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Coma Research retweeted
My blog @OpenJusticeCoP explores what ‘Liberty’ meant to my sister Polly; how #DoLS worked & what #AGNI might mean for her future (objection & ‘valid consent’). First time I’ve written much re. what’s happened 17 yrs since her crash. Comments v. welcome openjusticecourtofprotection…
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Coma Research retweeted
Very enjoyable convo about advance care planning with Nicholas Mostyn, Helena Kennedy & Charlie Falconer Turns out we all 4 have LPAs in place, but only 2 of us have Advance Decisions to Refuse Treatment And what different views on what we'd want! open.spotify.com/episode/0g7…
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Deprivation liberty safeguards for PDoC patients, & those who emerge with profound impairments How has DoLS worked? What’ll happen post the Supreme Court judgment in #AGNI? A personal reflection to inform practice - #DoLS
My blog @OpenJusticeCoP explores what ‘Liberty’ meant to my sister Polly; how #DoLS worked & what #AGNI might mean for her future (objection & ‘valid consent’). First time I’ve written much re. what’s happened 17 yrs since her crash. Comments v. welcome openjusticecourtofprotection…
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Coma Research retweeted
DHSC initial guidance on deprivation of liberty after AGNI: gov.uk/government/publicatio…
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Deprivation of Liberty Safeguards - Supreme Court judgment: if ‘catatonic’ eg due to severe brain injury - “they do not have any bodily, physical liberty to exercise…it cannot sensibly be said that anyone is subjecting them to treatment which constitutes a "deprivation"…(1/2)
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‘in relation to their physical or bodily liberty…The concept of “deprivation of liberty" is inapt and inapplicable” Looks like DoLS no longer apply to patients in Prolonged Disorders of Consciousness then.
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Deprivation of Liberty needs to involve “element of coercion or externally imposed restrictions…& a person who is so profoundly disabled they are unable to conceptualise or physically achieve freedom is not in fact being deprived of anything.” - Discuss! dacbeachcroft.com/en/What-we…
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Coma Research retweeted
So what now is a DOL?! I’ll tackle it in next Thursday’s DoLS refresher. Tickets available here: eventbrite.co.uk/e/biadols-r…
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A depressing case exposing delay in best interests decisions about ongoing life-sustaining treatment; but good to see the judge highlight concerns & that the judgment will be sent to the Secretary of State for Health + Chief Executive of NHS England. bailii.org/ew/cases/EWCOP/20…
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This looks like a very useful webinar on Wednesday - “Attorneys, deputies and decision-making” Tickets, Wednesday, April 15  •  12:30 PM - 1:30 PM GMT+1 | Eventbrite eventbrite.co.uk/e/attorneys…
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Recovery from vegetative’ and minimally conscious states. Part of our resource for families about Prolonged Disorders of Consciousness healthtalk.org/experiences/f…
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Coma Research retweeted
Frontlines with Frontera returns tomorrow with Episode 2. This week, NYU Langone Health's Dr. Frontera sits down with Brian Edlow, M.D. for a deep dive into disorders of consciousness—what clinicians need to know, what’s changing in the field, and where research is headed. Stay tuned for another can't-miss conversation.
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