QI RN, Consultant for MA LOB, 40+years in Health Care Fighting for daughter & all with Multiple Sclerosis MS !s Me$$y MS United for Truth & Transparency
Illinois, USA
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The FDA PNCS advisory Committee needs a non-biased and balanced, with no ties to drug companies and no ties to institutions or organizations funded or influenced by them.
Multiple sclerosis (MS) is part of that work.
In MS, the influence around those decisions is not small.
Drug companies fund research, education, and many of the largest organizations in the field, including the National MS Society.
That funding shapes which outcomes get emphasized and whose voice gets established.
* People living with MS and neurological diseases need a counterweight: a consumer representative with no ties to drug companies and no ties to institutions or organizations those companies fund.
The committee advises.
The FDA decides. One seat is the consumer representative.
That person is supposed to speak for patients and the public, not for the companies that make the drugs.
Official notice: federalregister.gov/document…
Please forward to Consumer Organizations such as Multiple Sclerosis, Alzheimer’s disease, Parkinson’s disease, ALS, epilepsy, and migraines.
Respectfully,
Cassandra Ashby
Cofounder
MS United for Truth and Transparency
MSforTruth.org
Let’s drive this change together and really make lives better for those affected by these diseases.
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Attention Consumer groups: the FDA is taking names until November 16, 2026, for the consumer representative on the Peripheral and Central Nervous System (PCNS) Drugs Advisory Committee.
-That committee advises the FDA on neurologic drugs.
* The consumer seat is open.
-This is a vote for the consumer seat only. (It does not choose the scientists on the panel.)
This is a chance to join forces around a specific ask: that future or the “consumer representative”
——-The PCNS Drugs Advisory Committee reviews safety and effectiveness data on marketed and investigational drugs used to treat neurologic diseases, then recommends a course to the FDA Commissioner.
* Be non-biased and balanced, with no ties to drug companies and no ties to institutions or organizations funded or influenced by them.
Multiple sclerosis (MS) is part of that work.
In MS, the influence around those decisions is not small. Drug companies fund research, education, and many of the largest organizations in the field, including the National MS Society. That funding shapes which outcomes get emphasized and whose voice sounds and gets heard.
* People living with MS and neurological diseases need a counterweight: a consumer representative with no ties to drug companies and no ties to institutions or organizations those companies fund.
The committee advises.
The FDA decides. One seat is the consumer representative.
That person is supposed to speak for patients and the public, not for the companies that make the drugs.
Consumer organizations and other interested people can recommend who fills it. The FDA still makes the appointment. There is no public ballot. A clear, independent recommendation is still a real chance to be counted.
If your organization wants a ballot,
email ACOMSSubmissions@fda.hhs.gov by November 16, 2026.
What to Say: *Say that your organization wants to participate in selecting the consumer representative for the Peripheral and Central Nervous System Drugs Advisory Committee.
Include: your organization name, a contact person, email, and phone.
The FDA then lists the organizations that asked to take part, screens nominees, and sends those organizations a ballot with at least two qualified names.
* Official notice: federalregister.gov/document…
Please forward to Consumer Organizations such as Multiple Sclerosis, Alzheimer’s disease, Parkinson’s disease, ALS, epilepsy, and migraines.
Respectfully,
Cassandra Ashby
Cofounder
MS United for Truth and Transparency
MSforTruth.org
Questions & Collective Collaborations: cassandra@msfortruth.org
* Please share this with patient, caregiver, and consumer groups that follow MS, Alzheimer’s, Parkinson’s, and other neurologic diseases. The window closes November 16.
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We must learn to ask better questions in order to drive the conversation forward to the changes needed for better outcomes
#MultipleSclerosis #TruthAndTransparency
#MSAdvocacy #HealthcareJustice
#PatientAdvocacy #MSFighters
#StrongerTogether #MSResearch #KnowMS
#EducationMatters #MSFacts #ChronicPain
#EmpowerYourself #ChronicPain
#GadoliniumDepositionDisease#GadoliniumToxicity #SpeakUp #HoldTheLine #WhatTheNursesSaw
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I will Keep Showing Up!
Your Voice Matters: Help Bring Independent Consumer Representation to the FDA PCNS Advisory Committee
The FDA’s Peripheral and Central Nervous System Drugs Advisory Committee (PCNS) currently lists its consumer representative seat as vacant. This voting position can help ensure that patient priorities are heard when the FDA evaluates the safety and effectiveness of neurological drugs.
The FDA is accepting nominations for consumer representatives through its advisory committee nomination process. Consumer representatives should be able to evaluate scientific information, discuss benefits and risks, and represent the public perspective. Nominations submitted by November 15, 2026, will receive first consideration for current and near-term vacancies.
This is an important opportunity for individuals and consumer organizations to help bring forward independent, transparent, and patient-centered voices—especially for people affected by multiple sclerosis. MS treatment discussions must address more than relapse reduction and focal inflammation seen on conventional brain MRI. People living with MS also need meaningful attention to long-term disability, progression, neurodegeneration, cognitive changes, quality of life, and the unmet needs of the whole disease.
The FDA’s PCNS charter allows for a technically qualified voting member identified with consumer interests and recommended by a consortium of consumer organizations or other interested persons.
If your organization believes patients deserve stronger, independent representation in FDA decision-making, please consider participating in this process, supporting a qualified nominee, or connecting with other consumer groups to ensure that the patient voice is not overlooked.
This is not about opposing treatments that help individuals. It is about demanding honest evaluation of both benefits and limitations, without industry influence, financial conflicts, or predetermined narratives. People affected by MS deserve representatives who can speak openly, examine all relevant evidence, and advocate for outcomes that matter over the long term.
Time matters. Lives matter. If you would like more information or want to discuss coordinated consumer participation, please contact:
Cassandra Ashby
MS United for Truth and Transparency
mailto:cassandra@msfortruth.org
Please share this message with patient organizations, consumer advocates, and individuals who believe that meaningful change requires independent voices at the table.
FDA resources:
• FDA Launches Nationwide Effort to Expand Scientific Expertise and Consumer Voices to Advisory Committees
fda.gov/news-events/press-an…
• Request for Nominations for Individuals and Consumer Organizations for Advisory Committees
PCNS Adcom opening
fda.gov/advisory-committees/…
federalregister.gov/document…
fda.gov/media/79242/download…
We must learn to ask better questions
#MultipleSclerosis #TruthAndTransparency
#MSAdvocacy #HealthcareJustice
#PatientAdvocacy #MSFighters
#StrongerTogether #MSResearch #KnowMS
#EducationMatters #MSFacts #ChronicPain
#EmpowerYourself #ChronicPain
#GadoliniumDepositionDisease#GadoliniumToxicity #SpeakUp #HoldTheLine #WhatTheNursesSaw
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Mark, I love your passion and helping people access prescriptions at lower costs. The transparency in pricing is an important step.
The next should be truth and transparency about what these costly medications can & cannot do.
Lower prices do not automatically mean a drug is safe, effective, or the right choice for every patient.
As co-founder of MSfortruth.org,
I believe patients also need clear, balanced information about risks, benefits, alternatives, and uncertainties before starting treatment not just an affordable price.
A stronger understanding and informed consent process could help patients make decisions that truly serve their health, not only their wallets.
Please consider supporting MS United for Truth & Transparency
To be honest too many unseen harms and underreporting of adverse events and side effects is costing taxpayers in a lot of money right before our eyes and goes unseen.
Would sure would love to speak with you and collaborate collaboratively if possible. It would mean a lot to us and can serve meaningful purposes in the future to the patients, healthcare consumers, and taxpayers.
@FocusedOnTheFDA
@DianaMaisonneu1
@Lambertdebb
@RobertKennedyJr
@NIHDirector_Jay
@FDA_KyleD
@ThePatientsSide
@DrOz
@Kara__Reece
@NursesOutLoud
@ICANdecide
@picphysicians
@SenRonJohnson
I'll even give you a preview @GovSherrillNJ
My testimony today at the Texas State capital
I’m the co-founder of CostPlusDrugs.com.
We started Cost Plus Drugs because the prescription drug market is too complicated, too opaque and too expensive.
Our model is simple: we show what we pay for a drug, add a transparent markup and pharmacy fee, and show the customer the price.
No games. No hidden spread.
And a large percentage of our customers already have insurance.
They come to us because our cash price is often lower than what their insurance plan asks them to pay.
That tells you something is wrong.
Here are five things Texas can do about it.
1. Let patients shop for cheaper drugs
If someone's insurance says a prescription costs $500, but they can buy the exact same drug for $100 cash, let them buy it for $100.
Then credit that $100 toward their deductible and out-of-pocket maximum wherever Texas has authority to do so.
Patients should be rewarded for saving themselves and their health plan money.
They shouldn't be punished for it.
That's how you create something healthcare desperately needs:
Price competition.
2. Standardize PBM and TPA contracts
Texas should require the state, cities, counties and school districts to use standardized model contracts and mandatory terms for PBMs and TPAs.
I've reviewed these contracts.
They routinely run hundreds of pages.
I've seen contracting packages longer than a thousand pages.
There is no human being—or group of human beings—on this planet who can stay awake and understand every provision in contracts that complicated.
I don't care how much coffee they drink.
I call it contractual terrorism.
The vendor only has to sneak a couple of tricks through hundreds of pages.
The employer has to find every one.
It can't.
I've developed a model PBM contract designed to eliminate the major tricks and hidden economics we've identified.
Texas can have it for free.
Use mine. Improve it. Open source it.
I don't care.
Just stop making every government entity negotiate these contracts from scratch.
3. Make the economics public
If taxpayers are paying the bill, taxpayers should know the price.
Pricing. Fees. Rebates. Guarantees. Pharmacy reimbursement. Affiliate compensation. Audit rights.
Make them public.
I'm not talking about patient information or legitimate security information.
I'm talking about the money.
You cannot have an efficient market without price discovery.
Without price discovery, you get information asymmetry.
And when one side knows dramatically more than the other, guess who wins?
Not taxpayers.
Not employers.
Not patients.
Open the contracts up and let competitors see what they have to beat.
That giant sucking sound you hear will be money moving away from healthcare conglomerates that are too big to care and back toward taxpayers, employers and patients.
In the immortal words of Charles Barkley:
I guarantee it.
4. Kill the gag clauses
PBM contracts are like Fight Club.
The number one rule of Fight Club is that you can't talk about Fight Club.
The number one rule of many PBM contracts seems to be that you can't talk about your PBM contract.
That's insane.
Let employers compare pricing, rebates, fees, guarantees and reimbursement terms.
Markets work better when buyers know what other buyers are paying.
5. Make enforcement hurt
If a healthcare company commits a serious violation, give them one mulligan.
But after a second material federal or Texas enforcement action within a defined period, make them ineligible for new Texas government contracts for a period of time.
Two strikes.
You're out.
Today, some of these companies can make billions, get caught, pay a fine and write it off more easily than I wrote off an NBA fine.
That's not deterrence.
That's a cost of doing business.
And Texas should spend more on enforcement.
If Texas spends $10 million auditing contracts and analyzing claims and prevents $100 million in unnecessary spending, that's not overhead.
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Important to investigate who sits and votes in the FDA Advisory Committee too and how these drugs and vaccines get to market.
Advisory committee members may have financial, professional, or institutional relationships that create potential conflicts of interest. Through our independent research into multiple sclerosis drug development and approvals, we began examining how these incentives may influence research priorities, treatment narratives, and public messaging.
We are also questioning how organizations such as the National Multiple Sclerosis Society fund education, training, and research and whether those relationships may shape the development and promotion of disease-modifying therapies.
Patients deserve clear information about what these drugs have been proven to do, what they have not been proven to do, and whether reducing relapses is being portrayed as treating the entire disease.
As more patients and families review the data, share their experiences, and ask questions, confidence in established organizations is being challenged.
People are reconsidering their donations and questioning whether these institutions’ actions truly align with the interests of patients.
This is unfolding in real time often quietly, but right before our eyes. We believe patients deserve transparency, accountability, complete information, and the freedom to make truly informed decisions about their care.
The @FDA just approved an mRNA flu shot in which 23 subjects died in the mRNA arm, versus 9 in the traditional flu-shot arm. That product is now being tested in children.
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BINGO! After witnessing the challenges Kara faced while navigating MS symptoms, treatment decisions, and the healthcare system, I knew we could not remain silent. Kara and I co-founded MS United for Truth and Transparency (MSUTT) to advocate for stronger patient protections, accountability, and transparency in MS care.
MSUTT exists because people living with MS deserve clear, honest, unbiased, evidence-informed information about their condition and treatment options. Informed choice is not a privilege, it is a right. Every patient deserves dignity, autonomy, and the ability to make fully informed risk-versus-benefit decisions. Kara was harmed by a prescribed drug and the prescriber looked the other way leaving her to figure it out for herself. Well we did figure it out in the hardest way.
I speak from lived experience, professional knowledge, and a mother’s determination to protect her child and others in the MS community.
Mothers do not lie. Mothers see what others overlook. Mothers ask the hard questions. Mothers protect—and mothers speak the truth.
Learn more at MSforTruth.org. (msfortruth.org)
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When is Enough, Enough?
Do No Harm medicine is elusive
It takes more people to harm first!
Gadolinium Deposition Disease and Toxicity.
Patients have been seeking help for decades!
It's not new. It's NOT rare!
facebook.com/share/p/1DmcdVP…
@SecKennedy @SenRonJohnson @HHSGov @ChildrensHD @HHSGov @AaronSiriSG
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Damn. Love it
When the truth comes out it’s so quiet
open.spotify.com/track/0g4fM…
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Is Suppressing MS Relapses Harming Rather Than Helping People Affected by MS?
facebook.com/share/p/19YGka1…
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The Scale and the Brain MRI Scan
I sat in the MS specialist, neurologist’s office alongside my daughter Kara who lives with MS, the fluorescent lights humming like a low warning. On the screen glowed her latest brain MRI: a scatter of white spots, the lesions the doctor called “active.” He leaned forward, voice measured but heavy with urgency.
“These are signs the disease is advancing. and she is about to lose her right eye sight.
Without a disease-modifying therapy, something strong, one of the heavy hitters, we can’t predict the trajectory. Disability could accelerate. We need to act now.”
Kara nodded, as she always had.
For many, the prescriptions come for years: infusions, pills, injections, each promising to quiet the invisible storm. The language never changes—activity, progression, risk. Fear, dressed as science.
That evening I stepped onto her bathroom scale. The number stared back: the same as last month, last year. I laughed. The scale told me what I weighed right now. It said nothing about whether I would gain five pounds or lose ten by winter. Diet, movement, stress, sleep, chance—those decide the future. The number was a snapshot, not a prophecy.
And then the epiphany landed, clean and cold.
A brain MRI was the same kind of scale. It showed lesions that existed today—scars, inflammation, whatever the machine could catch. But those white spots did not map the road ahead any more than the scale predicted the next decade of her body. The disease remained elusive, slippery, full of paradoxes the textbooks still struggled to explain. Some people with heavy lesion loads walked freely for decades; others with quieter scans declined. The “clinico-radiological paradox” had a name for a reason.
I thought of the old days of multiple sclerosis diagnosis: vague symptoms, clinical judgment, sometimes autopsy confirmation only after the fact. The methods had always carried doubt. Scanners got sharper, drugs got more expensive, the language grew more confident. Yet the core uncertainty lingered. What had truly changed was the money—billions flowing through the pipeline of “heavy hitter” therapies, each new molecule accompanied by the same urgent pitch: the lesions are speaking, and they say you need the drug.
I closed the laptop. The scan was information, not fate. The scale was information, not destiny. Both measured the present. Neither owned the future. The disease was still elusive. The fear was manufactured. And the only thing that had clearly progressed was the price of the prescription.
Today, Kara is managing her MS drug free, she is symptom free, never lost her vision however that World Renowned MS prescriber also Lost her Optic Never Testing.
Is MS science still as dubious as it was in the past history of MS as bunch of “Whale Tales”?
Our story~ is also the story of many who face brain disease, MS~ Cassandra Ashby
Co founder MSforTruth.org
To add to this follow up, Kara quickly went to her eye doctor and did the same optic nerve testing and it was completely negative and showed she never has had any optic nerve issues or damages.
Since then Kara has also stopped MRIs
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This is the next generation that will save those who want the real help.
This is the approach I’m taking. My integrated PCP cannot adequately support my healthcare or address my actual needs—emphasis on my.
They continue to get paid and move forward, while my needs are cut short because they lack the time, resources, and quality of care necessary to help me achieve the best possible outcomes. I am now taking the lead in digging deeper to understand why. Yet when I ask difficult questions, I’m dismissed—at a significant cost to my health.
This is how patients can be failed while the narratives in their medical records make it appear they are being helped, when in reality, they may be harmed.
It is deeply unethical, and I intend to call it out as I encounter it while navigating the maze of healthcare. I have worked in healthcare as a nurse for more than 40 years, and in my opinion, the system we have is criminal. It is allowed to continue—and our tax dollars support it. Pity.
What doesn’t kill you can only make you stronger!
Direct Primary Care and Direct Specialty Care. We flourished under Covid because Hospitals shut down their Doctors Offices. My patients get same/next day 30-60 min visits and unlimited visits without a copay. I take care of minor emergencies and skin procedures. I'm even making house calls again. I'm making a House Call Wednesday morning. Cost is $115-$170/mo depending on age, $3.83 to $5.67/day. Cheaper than half a cup of Starbucks Coffee a day. We are all over the US. lighthousedpc.com
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Very important messages right here. We need to take time to pause before we make a medical decision that can very very life altering.
Thankful for Debbie’s advocacy and that our advocacy work came together and her work fills in gaps in my work to continue the fight. A proper informed consent process must be established as a standard of care.
Your life depends on it!
People are asking ... "why are you so interested and reposting the @SenRonJohnson hearings on #covidhospitalprotocolroundtable?
Simple answer!
I meet, offer support and education for thousands who following devasting outcomes from Covid, LongCovid, the pandemic and vaccines are sent for Magnetic Resonance Imaging with Gadolinium-Based Contrast Agents.
For those with Cancer, MS, and other diagnoses are being prescribed and injected tens-of-millions of times annually with a toxicant known to be problematic!
I stand with those already struggling with an inflamed body, unable to detox foreigners out of their body ... now sicker than they have ever been in their life ...
No antidote and no easy, efficient, effective and cost affordable way to eradicate it.
As a growing community of patients are ignored, dismissed, gaslight while the medical world in all its wisdom claims all of this "is rare".
Most never even reading a research paper or being willing to listen to what patients living the nightmares so badly need and deserve ...
... to be heard, taken seriously.
🔥 NEWSFLASH ...
It's NOT rare ... the CDCs own numbers claim 76.4% of Americans have one or more chronic illness.
That should ALARM everyone!
Instead we find ourselves---
✨️Divided ... families and lifelong friendships destroyed.
✨️A rise in housing and food instability.
✨️Doctors refusing to look at patients medical records in hand that they may have even ordered.
✨️People aren't interested in reading and reviewing the scientific published research, which tells its own story.
✨️It's become normal to accept being sick is normal.
You bet I'm passionate and speaking, standing up, demanding, and hopeful for change.
As a #GadoliniumDepositionDisease #GDD patient poisoned without #InformedConsent--- it was and continues to be life-changing and debilitating.
The science speaks for itself as to why we are seeing and being diagnosed with new, worsening, unusual, unexpected and unexplainable health issues
The science tells our stories. Gadolinium damage isn't visible on imaging or in blood work. Call me and I'll explain why!
I'll be happy to share, recap for you the research that explain the bullet items on the short list on the meme below. Or the fact science and the industry has known Gadolinium is problematic since 1991, if not before. 👇
So ... that's my simple answer. And ...
Yes, I will stand with the Nurses and others speaking.
Yes, I will pray with families around the world who are medicallly-injured when the majority of the time the outcomes were preventable.
Yes, I do meet hundreds of new people every single month ... poisoned by retained Gadolinium. Their total body burden finally saying to them 'ENOUGH' already.
FEAR based medicine has to stop!
Injecting toxic rare earth metals for a pretty picture that is retained in EVERYONE injected without affording patients education about known risks --- ALSO has to change!
There's something horribly wrong going on in medicine.
🤔 Now it's my turn to ask a couple questions ...
- Why aren't you curious?
- What are you doing to be part of learning and understanding the reasons associated with these recent medical debacles?
Lord, hear our prayers!
🙏✨️💜
#covidhospitalprotocolroundtable
Living With Gadolinium, LLC
Not medical advice--- but I strongly encourage everyone to know what you are choosing or allowing to be put into you body.
When I pass and meet my savior, my answer to him will be ... 👇👇👇
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Remember this when you feel like you are drowning: the friends, family, coworkers, and loved ones who have the degrees, the experience, or know someone who could help are standing on the horizon, watching you sink and letting you. That sight is an awakening. It shows you which people need more help than you. Rude people move through our lives in silence all the time. We have no choice but to let them.
Still, one of the greatest achievements was swimming against the tide and cofounding MSUTT with my daughter. Through MS United for Truth and Transparency, the mission is to provide accessible, evidence-informed information so people with MS can keep control over their care with confidence, dignity, and autonomy. msfortruth.org
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❤️🩹 fighting breast cancer and MS! That’s a lot!
Is the MS community aware about some actionable issues that we can step up together and support as we learn how to ask better questions?
There’s a citizen petition filed with the FDA by Kaylin Bower (Docket FDA-2025-P-0547) asking the agency to withdraw Ocrevus approval for primary progressive MS. She argues the original approval didn’t meet the usual evidence standards and that FDA reviewers at the time flagged weak benefit in women plus an unusual imbalance in breast cancer cases in the trials (cases on ocrelizumab, none on placebo/comparator).
The BMJ published an investigation on this in April 2026 by Peter Doshi:
bmj.com/content/393/bmj.s666
(“Could Roche’s bestselling drug Ocrevus be doing more harm than good in women with primary progressive MS?”)
The label already notes that an increased risk of malignancy, including breast cancer, “may” exist and that patients should follow standard screening.
The petition is still under review—the FDA sent an interim letter saying the issues are complex and they haven’t issued a final decision.
I’m not a doctor and I’m not saying anyone should stop or change anything.
Those affected or curious might want to ask their oncologist and neurologist:
• How they weigh the original trial imbalance vs. the later long-term data
• Whether the current B-cell depletion and cancer treatment interact in ways they want to watch more closely
• Whether any of the post-marketing or petition materials change their monitoring plan
If anyone feels strongly that more complete long-term safety data should be made public, please comment on the petition or write the FDA. The docket is FDA-2025-P-0547 on regulations.gov
No pressure—just information we deserve to have so we can ask better questions and a proper informed consent about costly life altering treatment decisions
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My name is Cassandra Ashby.
For a long time I was looking for my purpose the way people look for a missing key: in all the expected places, hoping it would make the rest of my life unlock. I did what was responsible. I kept moving. I cared about many things. None of them claimed me completely.
Then my daughter got a brain disease, Multiple Sclerosis.
That is when it clicked.
Not all at once like a speech. More like a door closing behind me and another one opening in front of me, and I knew which way I had to walk.
Purpose is not a mood. It is the moment you stop being able to look away. When you find it, you know. And once you know, you must act.
I act because she is my daughter.
I act because brain disease does not only happen to a patient.
It happens to a family, a future, a name, a voice, a set of ordinary days that suddenly need defending.
I speak so people living with brain disease are not reduced to a diagnosis. I advocate so caregivers are not invisible.
I stay in the work because silence never saved anyone I love.
I am Cassandra Ashby. I found my purpose in the hardest classroom of my life.
knew it when I knew it.
And I will not turn back.
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Disturbing, The FDA has recently authorized trial testing for CAR T-cell therapy aimed at treating progressive multiple sclerosis , despite recent concerns stemming from previous deaths during CAR-T trials for autoimmune diseases.
This decision raises questions, because the trials focus primarily on the autoimmune aspects of the disease, while neglecting the critical neurodegenerative progression associated with MS which is the cause of permanent disability in MS
The trials are specifically expected to enroll patients with secondary progressive MS (SPMS) and primary progressive MS (PPMS) who have not responded to standard treatments.
I do not see the MS leadership talking about this.
Who can answer 2 questions:
With this focus on autoimmune treatment won’t it overlook the underlying neurodegenerative factors that contribute significantly to the disease’s progression?
Could you clarify the rationale behind the FDA’s authorization, especially given the previous issues in CAR-T trials and the need to address both the autoimmune and neurodegenerative aspects of MS?
prnewswire.com/news-releases…
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pubmed.ncbi.nlm.nih.gov/4271…
This 2-year observational study of ofatumumab (Kesimpta) in multiple sclerosis (Esposito et al., J Neurol 2026) found no association between circulating lymphocyte levels and MRI or clinical outcomes.
Crude lymphocyte counts therefore is another weak surrogate for treatment effect.
#MultipleSclerosis
#MSAwareness
#MSWarrior
#LivingWithMS
#MSCommunity
#TruthAndTransparency
#MSAdvocacy
#ChronicIllnessAwareness
#HealthcareJustice
#PatientAdvocacy
#MSSupport
#MSFighters
#TogetherAgainstMS
#StrongerTogether
#MSResearch
#KnowMS
#EducationMatters
#MSFacts
#EmpowerYourself
#ChronicPain
#MSisMessy
#GadoliniumDepositionDisease
#GDD
#GadoliniumToxicity #nephrogenicsystemicfibrosis
#NSF
#GdIatrogenicFibrosis
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The Me$$ in MS keeps getting worse. Just when I understand a new insight in comes the next issue in MS DMTs and their problems , Co$tly for sure. Fear monger people with MS into the drug and only to discover it’s the same long term outcome in disability in the end, if you survive the harms long enough.
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Let’s talk about the billion dollar elephant in the room of brain spine disease MS. If we compared the untreated natural history of MS with current DMT outcomes, would we find that we are paying about $10,000 a month for treatments that, in the end, produce the same long-term disability?
MSforTruth.org
Where we are learning to ask better questions!
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