Braelyn's Battle - When a Chance for Cure is Denied

Cure Not Covered retweeted
The FDA needs to cut the red tape and release #ANKTIVA Nationwide. @bullishbruk
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Cure Not Covered retweeted
OK, @RobertKennedyJr , @MartyMakary, @realDonaldTrump this latest interview of @DrPatrick by Sean Spicer provides answers to many questions. One remains, "Why in God's name would Saudi Arabia be the first country to approve Anktiva and Bioshield by Immunity Bio when it was invented here?" Mr. President, "Why?". piped.video/watch?v=KLAznrLh…
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See our Facebook page for the full medical update. facebook.com/share/p/1NX55aJ…
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🚨 Please share — it truly helps! 💛 Braelyn’s life-saving treatment costs $17,600/month, and insurance still won’t cover it. We’re fighting hard, but we can’t do it alone. Every share, prayer & donation makes a difference. 🙏 ➡️ GiveSendGo.com/GB5RT
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I like this scripture so much because I feel like God is showing me my future as a Child Life Specialist and that’s what I really want to do. -Braelyn
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✨ Your voice matters. 💛 Don’t be afraid to ask questions and advocate for the best care — no one knows your body or your family better than you. 👏 We’re so proud of Braelyn for boldly advocating for her own medical choices. 💪 #AdvocateForCare #YourVoiceMatters
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Sept 9–11, 23: After another infection & surgery, I sat in the hospital reading Burzynski Breakthrough. I reached out to a former patient who urged me to contact the clinic. Within days, Dr. B reviewed Braelyn’s file & said she was an excellent candidate. givesendgo.com/GB5RT
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Why is “standard of care” treated like the only option — even when it doesn’t work for everyone? Alternative treatments have helped families like ours, yet they’re often dismissed or ignored. It’s time to ask hard questions & advocate for better options. CureNotCovered.com
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26 months ago, Braelyn had her tumor resection surgery. 💛 What a journey it’s been since that day — full of progress, healing, and proof of God’s faithfulness. 🙏 Thank you to everyone helping cover her treatments. Join us: GiveSendGo.com/GB5RT
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What if the treatment saving your child’s life wasn’t covered by insurance? Braelyn’s is $17,600/month. We need 1,800 people at $10/month to help cover it. Will you join us? 💛 👉 GiveSendGo.com/GB5RT #TeamBraelyn #CureNotCovered #BeatCancer #GlioblastomaAwareness
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Back to school for many in the Upstate… Braelyn’s graduated, but she’ll miss Nurse Jennifer & Nurse Roy at @DWDanielHigh —two steady, caring faces through so much. We’re so thankful for them. Wishing the whole Daniel staff a great school year! 💛
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Part of our nightly routine: prepping IV bags. We’re so grateful—this alternative treatment has kept Braelyn stable for 10 months. Thank you for the prayers + support. You’re making this possible. Give: GiveSendGo.com/GB5RT #CureNotCovered #TeamBraelyn #GBMAwareness
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God has a way of sending just what we need at the exact moment we need it. A friend shared the song Help by @jordanstcyr with me—and it stopped me in my tracks. Every word felt like it was written for this season we’re walking through. #GodIsAble #ChildhoodCancer #Glioblastoma
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From the bottom of our hearts—thank you to everyone who joined us for the Day of Prayer for Braelyn. 💛 Whether you prayed alone or with others, we felt it. Your love and faith are carrying us. We’re so grateful for this community. 🙏 #TeamBraelyn #PrayerWorks
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REMINDER! Tomorrow is the Day of Prayer for Braelyn! Thank you to all of the churches and community members who have agreed to come alongside our family in prayer for healing for Braelyn. It means the world to us! #PowerOfPrayer #CureNotCovered #DefyingGlioblastoma #FightGBM
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Wilbur has quickly become Braelyn’s constant companion—and the best kind of medicine. (Proverbs 17:22) Grateful for these quiet moments of rest and healing. 🐾💤 #BraelynAndWilbur #CureNotCovered #PuppyTherapy #TeamBraelyn
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Day of Prayer for Braelyn – July 27 Join us in praying for 18-yr-old Braelyn as she battles aggressive brain cancer. 🙏 Commit to pray 🙏 Ask your pastor to share her story + pray in church Videos /resources for churches: curenotcovered.com/day-of-pr… #PrayForBraelyn #CureNotCovered
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Last week, Braelyn’s central line came out, stopping her 22-hr daily infusions for days. 💔 She had a new line placed yesterday and is doing okay—please pray: 🙏 No infection 🙏 Relief from adhesive reactions 🙏 Complete healing 💛 Thank you. 👉 CureNotCovered.com
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Thank you, Grandma and Grandpa, for the amazing birthday/graduation gift! 🎂🎓💛 Braelyn is beyond thrilled—everyone, meet Wilbur! 🐶🐾
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Had a dream I was walking with Jesus—just like a scene from @thechosentv. I could barely speak about Braelyn’s illness… but He knew. 💛 Thank you @thechosentvseries for reminding us He’s near. 🙏 #CureNotCovered #TeamBraelyn #TheChosen #FaithInTheStorm
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