Supporting Australians living with ME/CFS (mylagic encephalomyelitis / chronic fatigue syndrome). Education | Research | Advocacy | Support Services

Australia
With less than two weeks left in the Living with ME/CFS or long COVID in Australia study, 1,500 people have already shared their experiences. Thank you! Every response strengthens the evidence needed for better recognition, care and research. 👉 zurl.co/kbBAb
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💙 Safe healthcare must be free from stigma. Our submission calls for healthcare standards that address stigma, recognise PEM and ensure people with ME/CFS and long COVID feel believed and safe. Read our submission: zurl.co/aisYP
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💙 A gift in your will can help Emerge Australia continue supporting people living with ME/CFS, long COVID and other energy-limiting conditions for generations to come. Every gift can make a lasting difference. Learn more: zurl.co/U14jt #SupportEmerge #GiveHope
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Is your child missing school because of #MECFS or #LongCOVID? Join Emerge Australia and MissingSchool for a free online session on educational supports for students with chronic illness. 📅 15 Oct, 2pm AEDT 🔗 zurl.co/aGz4P
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Nominations for 2026 #mecfs & #longcovid excellence in journalism! 🗓️ Eligibility: Published or broadcast 1 Jan – 31 Dec 2026 💡 Nominate: articles, radio, TV, digital, or podcasts 🌍 Open to everyone Learn more + submit: zurl.co/8N6Oe #emergeaustralia
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💙 #WorldPatientSafetyDay highlights the need for safe care. For people living with #MECFS and #longCOVID, recognising #PEM is essential. Ignoring PEM can lead to unsafe advice, deterioration and preventable harm. Clinical resources 👉 zurl.co/4SYSg
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📅 Health professionals: join sleep physician David Cunnington on 17 September, 6:30–8pm AEST, for a webinar on sleep in ME/CFS, realistic treatment goals and which sleep disorders need care. Students welcome. Register: zurl.co/Qe1Ba
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📢 Participants needed! The GLOW Trial is studying gut-based therapy for Long COVID at Uni Hospital Geelong. If you’re 18–65 with moderate–severe symptoms, you may be eligible. Learn more 👉 CTUClinicalTrialsUnit@barwonhealth.org.au | 📞 (03) 4215 3078
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Learn about Post-Exertional Malaise (PEM), a condition common in ME/CFS and long COVID, causing symptoms to worsen after minor activity. Join our free course to understand more. zurl.co/4IRf7 💡
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1,300 voices heard 💙 to everyone who has shared their experiences in the Living with #MECFS or #longCOVID in Aus study. Every response strengthens the evidence needed for better recognition, care and research. Help us reach 2,000 by the end of Sep. 👉 zurl.co/UIgU9
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💛 R U OK? Day For people living with #MECFS & #LongCOVID, the answer is often no. So instead of asking “Are you okay?”, let’s say: 💛 I believe you. 💛 I’m here. 💛 You don’t have to explain. 💛 You don’t have to pretend. Let’s create a community where every answer is safe 💛
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REMINDER: Patient Decision Aid - Exercise: What is right for me? ✅ Understand your options ✅ Compare the benefits and risks of each option ✅ Consider what matters most to you ✅ Feel more confident when making healthcare decisions zurl.co/Tp263 #mecfs #longcovid
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At #IMSANZ2026, General Physicians joined A/Prof Bernard Shiu and Nurse Educator Kate Herbert for an interactive case-based workshop exploring #MECFS & #longCOVID. The best workshops are ones where the audience does most of the talking and that was certainly the case here.
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Recruitment call 📣 The Baker Institute / Uni of Melbourne are recruiting adults (18+) with ME/CFS or orthostatic intolerance for a study in Melbourne (2 clinic visits, parking + time reimbursed). More info: zurl.co/llz7W #MECFS #EmergeAustralia #BakerInstitute
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💙 This Father’s Day, we’re thinking of dads, father figures and carers living with or supporting someone with ME/CFS or long COVID. Whether today brings celebration, reflection or simply getting through, we see you and wish you a gentle, meaningful day. #MECFS #LongCOVID
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🌍 On International Day of Charity, we’re celebrating YOU 💙 Every donation, fundraiser, purchase, share and act of support helps Emerge Australia continue its work for people living with ME/CFS and long COVID. Thank you for making a difference. #InternationalDayOfCharity
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💙One month left in the Living with ME/CFS or long COVID in Australia study. 1,150 people have already shared their experiences. Every response strengthens the evidence needed for better recognition, care and research. Can we reach 1,500? 👉 zurl.co/Dj0AH
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Caring for someone with severe #MECFS or #longCOVID who is mostly bedbound? Join Carers Connect, a professionally facilitated online support group starting 28 Sep. x5 fortnightly sessions, Mon at 1pm Melbourne time. Only 12 places. Register: zurl.co/jJ4fv
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