My Android phone did an update last night and I started having problems opening links. It would try to take me to search.google instead of the link. Follow these instructions, and then delete the cache of X and force a shut down. It should be back working now.

Called 999 and paramedics are on th way to take me into a&e (ED). Wish me luck guys 😢 🙏

GP surgery messaged me back talking about PALS, which is a complaints procedure. Nothing from a doctor. But so far the might be good news is saying to come to a&e and they will do the procedure there. They are saying the admission delay to a ward is because there are no beds available on these wards. What a bad state the NHS is in. Not enough beds.

❗️❗️URGENT APPEAL ❗️❗️ Come on guys .. he's 3 years old Let's find him Suffolk Constabulary Official Page Police are appealing for help to locate a missing three-year-old boy in Brantham. Noah was last seen at approximately 3pm this afternoon, Tuesday 17 September, when he became separated from a relative after visiting the playground in Merriam Close. Noah is reported to have run off down the alleyway beside the playground towards the new build housing estate. Noah is described as white, with curly ginger hair. He is wearing a white Bluey t-shirt, shorts and white trainers. Emergency services are currently in Brantham conducting searches. Residents in the area are asked to check their gardens, sheds and outbuildings. Anyone who believes they have seen Noah is asked to contact Suffolk Police, quoting CAD 203 of 15 September. Website: suffolk.police.uk/ro/report/… Phone: 101 Alternatively, you can use our Live Chat service by clicking the icon at the bottom right corner of our website here: Home | Suffolk Constabulary Please note in the event of an emergency you should always call 999

The latest is the hospital called to say they are arranging to have the procedure done in a&e. So they are going to be waiting for me. Now I just have to wait for ambulance transport to contact me. In another email the main consultant says it's not being caused by my liver, and there is no proof that my heart is doing it, so personally I think this as entirely come from the inflammation of the last covid. I can only keep draining it, and then hopefully if we get treatments for the inflammation part of long covid I might be able to remove the drain. I think we all get this to some degree aa one of the early symptoms everyone noticed was they struggled to hydrate.

Rant I’m literally crying for help for 5 years. I have created very detailed and structured medical records for Greek doctors, they simply don’t care. They also never read medical reports by specialists I’ve consulted with online. #mecfs #medicalmalpractice #pwme #severeme

One for my ME/CFS friends;.piped.video/IBXYhRInY0o?is=RuX9…

Does this sound promising? investors.bioviepharma.com/n…

Thank you to everyone concerned about me. I'm still waiting for the GP surgery to call me back. I love you all friends. I'm very scared right now. I just lost another tooth too 😔

One of the best tiktok videos I've seen about disability in a long time. I hope everyone watches it and takes on board what is being said.

I know it's not everyone's favourite subject. But whatever the outcome of this I am ready. God as obviously allowed this situation to happen. I'm still here fighting and struggling to live. But I'm going to be in major trouble if the drain procedure isn't done in a few days. I'm also balancing oxygen levels with my co2 retention long standing medical issue, pre-covid. The higher I go in oxygen the more co2 build up. My breathing feels like wearing a very tight jacket were you can't fully breathe properly. I'll keep posting for as long as I can. All friends please keep fighting. piped.video/OVQ5hkuqwbo?is=VFIR…

The saga continues. I think the oxygen pipe was trapped because when Dad moved it my oxygen levels shot up. So it's postponed till tomorrow. Hes going to be the death of me.

Going into a&e. Waiting for paramedics.

It looks like that appointment isn't suitable and they want me to go through a&e instead... sighs cries

I'm sure there long covid is doing something to our skin. I'm getting blisters on my head from my mask straps, and I've had to change back to this mask that crosses my nose and it's already hurting. I've worn these cpap masks for 25 years and these issues never happened prior to covid. It didn't happen since my most recent bout.

The consultation is on for Wednesday 11:20am. I'm hoping when the consultant sees it he'll want to act as soon as he can. Every professional who's seen my stomach as been shocked.

Majorly not doing well.

I had to change masks for my bipap machine. But for some reason this is leaking higher, even though I can't feel any air, and my oxygen isn't at the level I like it at (it's on the low side). So I'm not sure how this is going to work out.

The Invisible Non-Stick Coating Breaking Down in #LongCOVID 🤯Imagine every blood vessel in your body is lined with a delicate, slippery layer of microscopic gel, like a biological coat of Teflon. 🍶This is your endothelial glycocalyx. When it's healthy, blood cells glide smoothly, fluid stays inside your vessels, and microclots can't form. In LC, ongoing inflammation acts like a harsh wire brush, continuously stripping away this protective layer. Here is what that looks like on a cellular level: 🧑‍⚕️ 1. What the Glycocalyx Does (When Healthy) 👉The Non-Stick Seal: Keeps blood platelets and inflammatory cells from sticking to vessel walls. 👉The Fluid Barrier: Prevents liquid plasma from leaking into surrounding tissues. 👉The Blood Flow Regulator: Signals blood vessels when to expand so oxygen reaches your brain and muscles. 🔥 2. What Happens When Long COVID Strips It Away? 👉Plasma Leakage & Swelling: Without the gel barrier, liquid seeps out of capillaries into local tissue, causing unexplained eye swelling, facial pressure, and lower blood volume. 👉Sticky Platelets & Microclots: Raw vessel walls are exposed, allowing hyper-reactive platelets to stick, pile up, and form microclots. 👉 Capillary Collapse: Tiny capillaries become damaged and collapse, starving organs and the brain of vital oxygen. 🔥 3. What the Science Proves 👉 Persistent "Shedding" Biomarkers: Studies published in journals like Viruses (Rovas et al.) measured Syndecan-1—a core protein fragment released when the glycocalyx is destroyed. They found significantly elevated Syndecan-1 levels in non-hospitalized patients months after acute infection, proving persistent microvascular damage. 👉 Live Microvascular Imaging: Researchers using live sublingual (under-the-tongue) imaging (Ikonomidis et al., MYSTIC study) directly observed degraded glycocalyx integrity (measured as altered Perfused Boundary Region) and capillary drop-out in post-COVID patients months after initial infection. 👉 Active Enzymatic Chewing: Studies show elevated levels of "sheddases"—enzymes like MMP-9 and heparanase—actively chewing up heparan sulfate side-chains in LC blood vessels, keeping the vascular wall in an unhealed, inflamed state. 🩺Nursing Note: When medicine labels LC as "unexplained fatigue," it ignores the observable, measurable stripping of our microvascular gel lining. Treating the microvasculature means stopping the enzymatic shedding and protecting the blood vessels from the inside out. 💥We need Prevention! 💥We need Diagnostics! 💥We need Treatment! The problem is the virus. It's still in the body driving all of these outcomes. #GlycocalyxIsVesselSlime

This is funny 😁

This might be a bit of an odd question. I think it only effects long covid people. Does anyone else find their skin seems to have more nerves in? If you scratch you get that nerves pleasure feeling? I noticed it early on with long covid and noticed it would dip my breathing too.