Huntington's Disease Association is a registered charity that supports people affected by #HuntingtonsDisease (HD) in England and Wales. #MindfulOfHuntingtons
Liverpool
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We’re planning our next three-year strategy, and we want your voice in it.
Our new community survey asks what’s working, what needs to change, and what matters most to you, whether you’ve used our services for years or never at all.
Take the survey now: surveymonkey.com/r/TTC7RJS
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Excellent start to the EHDN Congress today with Charlotte setting the scene as to why we are all here #HuntingtonsDisease
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Today, we’re joining Dementia UK and other health charities outside the Department of Health and Social Care to hand in a petition signed by more than 24,000 people.
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Huntington's Disease Association retweeted
I was pleased to host an important drop in event earlier this week in Parliament along with a number of charities to discuss the ongoing Timms Review. Many thanks to @Stephenctimms for coming along to speak to stakeholders.
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Listen to our trustee Steve Duckett at 12 mins 34 speaking about how caring for his wife Sandy who had Huntington's disease affected him.
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This is part of Carers UK campaign who are calling for a statutory right for paid Carer's Leave with 1 in 5 employees now having a caring responsibility.
bbc.co.uk/iplayer/episode/m0…
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We've taken our campaign to Downing Street
We have delivered a letter to the Prime Minister at 10 Downing Street, calling for better care and support for people living with Huntington's disease.
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The letter was signed by 1,555 people. It was written by our Chief Executive, Cath Stanley BEM, and sets out five priorities for the thousands of people affected across England and Wales. hda.org.uk/news/letter-hand-…
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Thank you to Natasha Asghar MS @natasghar for meeting us to talk about improving mental health support for people living with Huntington’s disease in Casnewydd Islwyn and throughout Wales
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Thank you to @ArtWrightMS for meeting us to talk about the importance of better care coordination support for people with Huntington’s disease in Casnewydd Islwyn and across Wales
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Thank you to @KerryEFerguson MS for taking the time to meet us to talk about better care coordination support and improved mental health service access in Ceredigion Penfro, and for offering to raise our concerns with the Welsh Government
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Today we are at the Future for Rare Summit 2026 at BMA House in London, organised by Genetic Alliance UK. It's been a pleasure to be contributing to work to decide what a successor policy to the UK Rare Diseases Framework should look like
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Thank you to @HuwThomasMS for your time listening to us about access for people with Huntington’s in Caerdydd Penarth to mental health services, as well as improved care coordination support, and for offering to follow up with the Welsh Government
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Thank you Matthew Jones MS @MatthewTorfaen for meeting us to discuss access to mental health services and the need for people with Huntington’s to have a single point of contact, and for offering to follow up with the Welsh Government.
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Thank you to Becca Martin MS for meeting us to talk about improving access to mental health services and the importance of a single point of contact for people with Huntington's and other neurological conditions, and for offering to follow up with the Welsh Government
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Huntington's Disease Association retweeted
As we welcome @YvetteCooperMP, the new Secretary of State for Health and Social Care, if you're able, please make sure you've added your name to our open letter calling for a national plan for neuro. Add your name here: campaigns.mssociety.org.uk/p… Thank you
ALT Graphic of a diverse group of people campaigning. Central banner reads: millions can't wait neuro plan now.
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Huntington's Disease Association retweeted
Show your support for a national plan for neurological conditions now. If you are able, please sign our open letter to the Secretary of State for Health and Social Care here: bit.ly/4w5hHAY Thank you. Anyone in the UK can sign and show their support.
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Thank you Gwyn Williams MS and Safa Elhassan MS for meeting us to discuss mental health services and care coordination for people with Huntington's in Gwyr Abertawe, and for your offers to follow up on our behalf
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At least 1 in 6 people in England has a neurological condition. The Government's neighbourhood health programme must work for people with complex, long-term conditions, including neurological conditions. Learn more about neural.org.uk/visionforneuro
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