ICUsteps is run by ex-patients, relatives and intensive care staff to support patients and families through the long road to recovery from critical illness.
United Kingdom
- Tweets 47,227
- Following 1,106
- Followers 8,821
- Likes 167,240
Pinned Tweet
#MyRehabGoals for #ICURehabDay25 Recovery from critical illness can take up to 18 months. People need support and rehabilitation to enable them to thrive after critical illness, not just survive.
Goal setting is crucial in rehabilitation.
icusteps.org/rehabilitation
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New ICU support pathway for family and friends - eepurl.com/QppM76WQ4t
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New ICU support pathway for family and friends - eepurl.com/tMgV6s2exT
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New ICU support pathway for family and friends - mailchi.mp/265c4481e626/fbe6…
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Family involvement in ICU care activities - mailchi.mp/cecddb39d7c0/fbe6…
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Help Shape the Future of Intensive Care Research - mailchi.mp/94dd8018096d/fbe6…
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Using routine data to improve quality of care - mailchi.mp/ee7c683cd01f/fbe6…
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ICUsteps retweeted
Effects of The Caregiver Pathway intervention on symptoms of post-intensive care syndrome among family caregivers to critically ill patients: long-term results from a randomized controlled trial tinyurl.com/2a2ubv54 #icurehab #A2Fbundle
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ICUsteps retweeted
Planning a summer holiday this year?
More and more holiday providers are recognising the needs and preferences of disabled travellers - but a little forward planning can still make all the difference.
Have you travelled after a brain injury? We’d love to hear what worked for you (or what you wish you’d known). Share your experiences in the comments.
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ICUsteps retweeted
How to cut your risk of dementia, from head to toe inews.co.uk/inews-lifestyle/…
#Alzheimers #dementia #health #wellness
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ICUsteps retweeted
Our Family & Friends Drop-in is today @ 8pm
We're here to help you whenever you feel you need it most We're a friendly group who'll listen without judgement & share the benefit of our experiences with you - we sometimes even laugh too
Email info@cc-sn.org for more details
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ICUsteps retweeted
Useful facts on Alzheimer's Disease. Note especially the huge contribution that carers make.
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🧸 What does child-centred care look like after PICU discharge?
When children leave PICU, care does not end at discharge. Parents’ experiences reveal what partnership truly means.
🔗 doi.org/10.1111/nicc.70300
#ChildCentredCare #PaediatricICU
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ICUsteps retweeted
We are looking into provision of #braininjury services in #Coventry and #Warwick and would be grateful if you would share this post to help us gather information/opinions.
@leamobs @covobservernews @live_coventry
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ICUsteps retweeted
Melatonin and delirium in the intensive care units: a systematic review and meta-analysis of randomized controlled trials tinyurl.com/mrj485k6 #icurehab #A2Fbundle
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ICUsteps retweeted
💬 "We need more neurodivergent people taking part. That's not just as participants, but also involved in designing, developing and delivering the research."
Social media influencer @neuro_lou is a co-investigator on the NIHR-funded ORIGIN programme. The programme is designing an online arts and culture platform to support mental health in underrepresented 16- to 24-year-olds, including neurodivergent young people.
Now she is encouraging more neurodivergent people to get involved in research - as both participants and by helping to design, develop and deliver studies.
Read a Q&A with Lou about her experiences at bepartofresearch.nihr.ac.uk/…
ALT A person smiling slightly, wearing a colorful jacket with a floral pattern. The background is a gradient of purple with abstract shapes in green, orange, and purple. Text quotes Lou Chandler, an ORIGIN project co-investigator. She says: “With projects like ORIGIN, neurodivergent people aren’t just participants. We’re taking leadership roles. We’re designing the research.”
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