Research: communication of positive newborn screening results to families. Senior Lecturer, King’s College London
London, England
- Tweets 101
- Following 114
- Followers 85
- Likes 24
Jane Chudleigh retweeted
SERG meeting registration now open for our London meeting (25th Nov) warwick.ac.uk/fac/sci/med/re…
@SergNetwork @ImaginingFuture @JaneChudleigh
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Jane Chudleigh retweeted
The UK government has launched a major public engagement initiative to help shape the NHS 10 year plan. We want to ensure children are at the centre of this plan, and encourage RCPCH members to get involved.
For further info and our full response 👇
rcpch.ac.uk/news-events/news…
ALT The Prime Minister noted the most damning finding of the Darzi Review is the declining physical and mental health of our children. The launch of this national conversation is now an opportunity to engage on much-need solutions. It is vital that children’s physical and mental health is a parity of focus alongside adult care. Dr Mike McKean VP for Policy
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Jane Chudleigh retweeted
youtu.be/qrA41SQEaBw
Public & Patient Involvement is health research is so important and representation in PPI is vital
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Excited to share our paper exploring stakeholder views of incorporating next generation sequencing into the CF screening protocol authors.elsevier.com/sd/arti… @LouiseCMoodyCU @Corinna_Clark_ @cftrust @ImaginingFuture
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Do you have a child (more than 3 mths but less than 3 years old) with sickle cell (SCD) or are a HCP caring for children with SCD who would consider being interviewed (1 hour). You will be compensated for your time.
Please contact: Jane.2.chudleigh@kcl.ac.uk @SickleCellUK
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Jane Chudleigh retweeted
The Sickle Cell Society and KCL are looking for a Research Assistant to work on a joint project. Part-time (2 days/14 hours per week) £30,600 pro rata. Fixed Term until 31 March 2025. Please send CV and covering letter to jane.2.chudleigh@kcl.ac.uk before 28/03/2024.
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Jane Chudleigh retweeted
#NSPKU would like to comment @BBC_HaveYourSay
Please DM
Ppl with #PKU #Phenylketonuria would be affected by a reduced postal service as they send dried bloodspots to laboratories
It's likely Newborn screening of all babies across the UK may be affected as well.....
#pku blood spot sending
Just be aware that there are 4 days of strikes planned by staff @RoyalMail
Fri 26 Aug
Wed 31 Aug
Thurs 8 & Fri 9 Sept
Perhaps consider sending your bloodspot a day earlier… ?
🩸🩸🩸📮📮📮😶😶😶
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Jane Chudleigh retweeted
The bookend to our previous work has now been published! We developed a cross-professional competency framework for communicating genomic results - a crucial part of the testing process. The framework can be adapted to a variety of contexts
pubmed.ncbi.nlm.nih.gov/3796…
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Proud to share this work by @mbishop_uk and I at @genomicsedu, developing a competency framework to facilitate genomic testing
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Jane Chudleigh retweeted
Thank you to our fantastic presenters @2tbueser @JaneChudleigh and hosts at BSMS @Ethixbird @SustainableRich for another great SERG meeting yesterday. To present at a meeting or get updates on meetings register via warwick.ac.uk/SERG
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Jane Chudleigh retweeted
Are you a researcher interested in ethical, legal and social aspects of genetic/ genomic medicine? come and work with us- we are a friendly, productive interdisciplinary research team! #cels my.corehr.com/pls/uoxrecruit…
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The Kids Online Safety Act will protect kids online from #socialmedia algorithms that promote harmful content that negatively impacts youths' #mentalhealth. Tell the Senate to advance the legislation. actionnetwork.org/petitions/… #OurKidsCantWait #KOSAnow
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Jane Chudleigh retweeted
CF dietitians and physiotherapists, would you like to join a workshop about extended sequencing for #cysticfibrosis screening and earn £20? Please provide your details here for more info: qualtrics.kcl.ac.uk/jfe/form… @CF_dietitians @bda_cf @ecfs_ecfng @CF_physios @acpcf @CF_Exercise
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Jane Chudleigh retweeted
We would love to hear from parents whose child is a CF carrier and adults with CF/CF carriers:
Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or jane.2.chudleigh@kcl.ac.uk @louisecmoody
@imaginingfuture
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Jane Chudleigh retweeted
x.com/CFScreeningNGS/status/… @4JennyAgutter @joansin4acure @TreacleGoblins @morgannham @sunnshineart @itzaznsammie @holly @nathanarodgers @piratefoxy @fatallyfibrosed @RoseAndWolf_ @Robbie_Random27 @sickafsid @aaaarrriiiixx_ @barefootcoven
We would love to hear from parents whose child is a CF carrier and adults with CF/CF carriers:
Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or jane.2.chudleigh@kcl.ac.uk @louisecmoody
@imaginingfuture
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Jane Chudleigh retweeted
We would love to hear from parents who have a child with a CFSPID designation:
Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or jane.2.chudleigh@kcl.ac.uk @louisecmoody
@imaginingfuture
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Jane Chudleigh retweeted
x.com/CFScreeningNGS/status/…
@ellie_russo15 @CowlardJacqui @ERSpublications @ScottGBickel @Joanneosmond
We would love to hear from parents who have a child with a CFSPID designation:
Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or jane.2.chudleigh@kcl.ac.uk @louisecmoody
@imaginingfuture
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Jane Chudleigh retweeted
We would love to hear from parents who have a child with a CFSPID designation:
Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or jane.2.chudleigh@kcl.ac.uk @louisecmoody
@imaginingfuture
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Jane Chudleigh retweeted
We would love to hear from parents whose child is a CF carrier and adults with CF/CF carriers:
Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or jane.2.chudleigh@kcl.ac.uk @louisecmoody
@imaginingfuture
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Jane Chudleigh retweeted
We would love to hear from parents whose child is a CF carrier and adults with CF/CF carriers:
Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or jane.2.chudleigh@kcl.ac.uk @louisecmoody
@imaginingfuture
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Jane Chudleigh retweeted
We would love to hear from adults with #cysticfibrosis or who are CF carriers:
Our study is about using extended sequencing for CF newborn screening in England. To find out more: kcl.ac.uk/research/cf-ngs or jane.2.chudleigh@kcl.ac.uk
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