Absolutely unacceptable. This country has totally lost the fucking plot.
I have Crohn’s disease and inflammatory arthritis. I do everything right. I eat healthy, consume very little sugar, exercise, drink a gallon of water a day, and take my medications. Biologics, methotrexate, prednisone when needed.
For nearly a decade, I was mostly in remission.
Then, two months ago, everything changed.
Out of nowhere, I developed a fever, ended up hospitalized, and had surgery the next day. I still need another surgery. After a decade, my biologic stopped working. I'm starting a new treatment this week.
And right now? I'm in pain.
Some mornings I wake up and can barely walk. I can barely use my hands. Crohn's is flaring. Inflammatory arthritis is flaring. Despite doing everything "right."
Because that's the reality of chronic illness. You can do everything right and still get incredibly sick.
I can't take NSAIDs because of Crohn's.
Yet somehow, we've reached a point where the prevailing narrative would have you believe that opioids don't help chronic pain, and conditions like mine shouldn't require them.
I'm here to tell you that Crohn's HURTS. Inflammatory arthritis HURTS. And opioids absolutely CAN help.
I cannot believe how far off the rails we've gone. Patients are suffering, losing access to medications that help them function, and there are STILL people pushing to restrict opioid prescribing even further.
How much more do chronic pain patients have to endure? How much more access needs to be taken away?
When will it EVER be enough?
I will never stop fighting for patients like me. Because I know firsthand what it's like to live in a body that hurts despite doing everything you're supposed to do.
And I refuse to let anyone pretend that pain isn't real or that relief doesn't matter.