Advocacy, education and awareness of Invasive Lobular Breast Disease with Patients, Researchers and Clinicians #InItTogether #ILC #LobularBreastCancerIRL

Ireland
Laurna Quirke is one of our Lobular Ireland Group.Last Tuesday Laurna, her husband Gary and their family joined with Women from all over Ireland when we brought our concerns and our National #TellMeMyBreastDensity Campaign to Leinster House with @BreastDense
A Cork woman diagnosed with Breast cancer after two clear mammograms is pleading with the Government for an urgent overhaul of how breast cancer is diagnosed and screened. Laurna Quirke, says her illness was not detected because she has dense breast tissue, something which affects 43% of women, meaning mammograms are not as effective at spotting cancer. #VMNews
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Lobular Breast Cancer IRL #LivingWithLobular retweeted
A Cork woman diagnosed with Breast cancer after two clear mammograms is pleading with the Government for an urgent overhaul of how breast cancer is diagnosed and screened. Laurna Quirke, says her illness was not detected because she has dense breast tissue, something which affects 43% of women, meaning mammograms are not as effective at spotting cancer. #VMNews
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Lobular Breast Cancer IRL #LivingWithLobular retweeted
Parliamentary Briefing in Leinster House on Standardized Breast Density Reporting - Siobhan Freeney @BreastDense oncodaily.com/voices/siobhan…
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Lobular Breast Cancer IRL #LivingWithLobular retweeted
Tues 13th October Breast Density is firmly on the Agenda at Leinster House when TD'S Ministers and Senators attend a Briefing Session Fill out our short survey and help inform the discussion on forms.gle/U2bHHxnwFxXw5vGX9 #TellMeMyBreastDensity
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Lobular Breast Cancer IRL #LivingWithLobular retweeted
Thank you @irishexaminer for shining a light on this @HSE #BreastCheck has been kicking #BreastDensity reporting down the road for more than a decade and putting Women’s lives at risk by withholding clinically relevant information irishexaminer.com/news/arid-…
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MRI is Critical for Lobular growth pattern ILC lacks the protein E-cadherin, causing cancer cells to spread diffusely through fatty tissue without creating a defined lump, making it notoriously "invisible" or subtle on standard mammograms/sometimes Ultrasound
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Superior Sensitivity: MRI utilizes contrast dye to highlight abnormal blood flow associated with this type of web-like cancer growth. It provides a much more accurate map of tumor's size, reducing need for repeat surgeries to achieve clear margins.
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Lobular Breast Cancer IRL #LivingWithLobular retweeted
Our nationwide 🇧🇪 study of >51000 pts with stage I–III breast cancer (>7500 ILC) is now published in @ESMO_Open ILC had ⬆️ stage at Dx and a distinct time-dependent prognostic pattern, with worse long-term outcomes as nodal burden increased esmoopen.com/article/S2059-7… @OncoAlert
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Lobular Breast Cancer IRL #LivingWithLobular retweeted
Call for Action on Breast Density Notification in Ireland - Siobhan Freeney (@BreastDense) @EUSOBIyc oncodaily.com/voices/siobhan…
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"Regardless of all the other ‘what ifs’, not a second goes by without me thinking of the most painful one - IF Mum had been told about her breast density sooner, my brother and I might still have her with us today." (Martha) Ireland #TellMeMyBreastDensity
A young woman whose Mum died from breast cancer campaigns for change to Breast Cancer Screening practices in #Ireland - Marion Lovett Dx Stage 4 Breast Cancer within a year of 'Clear' Mammogram. #Densebreasts breakingnews.ie/ireland/woma… via @breakingnewsie
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Thank you Laurna. Your story matters to all Women and their #BreastcancerScreening After 2 clear Mammograms Laurna's 12x8 cm Lobular Breast Cancer Tumour had previously gone 'Unseen' slowly growing in her #DenseBreast Tissue Ireland #TellMeMyBreastDensity
Women in Ireland are sharing their lived experience. Laurna's words really resonate with so many. Breast Density is not just a technical feature of imaging. ALL Women should be notified about their Personal #BreastDensity Ireland #TellMeMyBreastDensity
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Lobular Breast Cancer IRL #LivingWithLobular retweeted
Thanks to Shauna Bowers @IrishTimes for covering welcome announcement from @HIQA irishtimes.com/health/2026/0… Women across Ireland retrospectively discover Breast Density was a significant factor in delayed #BreastCancer diagnosis Ireland #TellMeMyBreastDensity
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Publication of @HIQA Protocol for HTA on Breast Density Reporting in Ireland is welcomed by #Breastcancer Patients, Organisations and Clinicians hiqa.ie/hiqa-news-updates/hi… Ireland #TellMeMyBreastDensity @MarieKeating @Herdotie @IrishCancerSoc @BreastCancerIre
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For #InternationalWomensDay we are celebrating the Women and Families of Lobular Breast Cancer Ireland. Every year @ 400 Women in Ireland are told that they have Invasive Lobular Carcinoma (ILC). We're raising awareness of this unique histological subtype.
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