We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.

Gawcott, Bucks, for all UK
ME Connect is our free, confidential support service offering a safe, understanding space where you're truly listened to. Whether you need someone to talk to, emotional support or simply a compassionate ear, we're here for you. Get in touch today: 0808 801 0484 meconnect@meassociation.org.uk Opening hours: Monday-Friday: 10am-5pm Thursday: late night until 9pm Saturday: 10am-12noon #MECFS #pwME #LongCovid
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Research Update: MEA Clinical Assessment Toolkit (MEA‑CAT) – Stage II The MEA‑CAT was originally developed for clinicians working in specialist ME/CFS services, helping them assess and monitor patients more effectively. Read more: meassociation.org.uk/yyze #MECFS #MyalgicEncephalomyelitis #RamsayResearchFund
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The Guardian: Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed  "Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a shocking social crisis playing out behind closed doors"  We would like to thank George Monbiot for writing this piece and highlighting the issues affecting millions in the UK with ME/CFS. Read more: theguardian.com/commentisfre…  George Monbiot will be discussing the article on Natasha Devon's radio show on Saturday: bsky.app/profile/natashadevo…  #pwME #MECFS
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1/2 Research: Spotlight on Aleyna: The PhD Researcher Using Cutting‑Edge Technology to Uncover New Clues in ME/CFS Dr Katrina Pears, MEA Research Coordinator has interviewed Aleyna Lumsden, a PhD researcher jointly based at the Rosalind Franklin Institute @RosFrankInst and the University of Oxford @UniofOxford.
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2/2 This study which has received top-up funding from the MEA Ramsay Research Fund (and funding from UK Research & Innovation) is overseen by Dr Bela Paiza, Dr Marcus Gallagher-Jones and Professor Karl Morten. Watched on YouTube video via the link below: meassociation.org.uk/ryww #MECFS #MyalgicEncephalomyelitis #MEAssociation #RamsayResearchFund #Metabolites
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Research: DISCOVER-ME BBC Radio Norfolk speaks to Professor Simon Carding about DISCOVER-ME – a new multi site European ME/CFS research project. The UK @mecfsbiobank (UKMEB), which is funded by the MEA Ramsay Research Fund, will be supplying blood samples for this research and it was discussed at our Steering Group meeting yesterday afternoon. meassociation.org.uk/chxj #MECFS #MyalgicEncephalomyelitis #MEAssociation #RamsayResearchFund #UKMECFSBiobank
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Final call for this round of new volunteers - apply by 27th September! Could you volunteer with our ME Connect Support Line? ME Connect is our frontline support service, offering free support to people with ME/CFS and Long Covid over the phone and via email. If you have empathy, compassion and understanding for those living with ME/CFS; excellent communication skills and some time to spare, we would love to hear from you. This is a challenging but rewarding role. Volunteers need good IT skills and full training will be provided. You will be part of a wonderful team who are passionate and committed to providing an exceptional service. The next round of volunteer training will take place week beginning the 5th October, so if you are interested please get in touch by the end of this week (27th September), interviews taking place next week. Find out more, ask any questions and apply on our website: meassociation.org.uk/support… Or by emailing: katharine.leat@meassociation.org.uk #MECFS #pwME #MyalgicE #Volunteer #MEConnect
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The Overlapping Illness Alliance has written to The Telegraph in response to their article, How having a disability became cool, published on 5 September 2026. The ME Association have supported this open letter by signing separately as an organisation, and we are also a member of Forward ME. Read the letter: overlappingillnessalliance.o… #MECFS #pwME #MyalgicE #LongCovid #Disability
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Notice: Please note, due to unforeseen circumstances, our Head Office is temporarily understaffed. If your call is non-urgent we would appreciate you waiting to call till the end of the week. ME Connect is open as usual, more info here: meassociation.org.uk/support… #MEAssociation #Membership #MEConnect #MECFS
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1/2 Please follow us on socials Following our social media channels is the easiest way to keep up-to-date with all the latest ME/CFS and Long Covid news, research announcements and charity updates Click here to find all our social URLs: linktr.ee/measocials
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2/2 Did you know you can see the MEA's latest Facebook and Instagram posts without needing a social media account, via the live Social Media Wall on our website: meassociation.org.uk/smww #pwME #MECFS #MyalgicEncephalomyelitis #LongCovid #MEAssociation
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1/3 Medical Matters: Hypergraphia Dr Charles Shepherd and the ME Association's other advisers answer questions from members of the MEA. Q: Do you know if people with ME/CFS are more likely to experience Hypergraphia?
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1/3 ME Medical - The Autumn 2026 Edition has been sent out to healthcare professionals & GP surgeries on our current mailing list In this edition, we've included the NHS eLearning Poster on the back cover to point healthcare professionals towards this resource.
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2/3 If you'd like to nominate your GP to be added to the mailing list to receive the ME Association's ME Medical magazine, please complete the form via the link below. Or if you are a healthcare professional (HCP), please do contact us and we'd be happy to send you our free medical education resources. The nomination form can be completed here choosing the UK option: meassociation.org.uk/hcpr
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3/3 Also, we now offer read online copies for healthcare professionals outside the UK (choosing the overseas option) via the same link. N.B. The NHS modules poster is available as a free download on our website: meassociation.org.uk/6k05 #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #HealthcareProfessionals #MedicalEducation
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Last Friday, MEA Associate Trustee, Nicki Strong, attended a private viewing event at the Royal Opera House for the I Would Be There If I Could arts project. Find out more about the event: meassociation.org.uk/bp30 #MECFS #pwME #MyalgicE #LongCovid #IWouldBeThereIfICould #Mirrorbox
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MEMBERS ONLY – Notice of Annual General Meeting of The ME Association and Registration The next Annual General Meeting (AGM) of The ME Association will be held on December 8th 2026, 2pm – 3pm. The AGM is open to all members of the ME Association, who may attend either online via ZOOM or in person at our office: 7 Apollo Office Court, Radclive Road, Gawcott, Buckinghamshire, MK18 4DF. The AGM will include:  - Voting on any resolutions to be considered  - Charity updates If you are a member of the ME Association and wish to attend, please use the link below to register by November 29th 11:59pm. meassociation.org.uk/AGM2026 #MECFS #pwME #MEAssociation #AGM
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Research: MedRXiv Preprint: Seven replicated genomic associations of ME/CFS On the 14th of September, MedRXiv published a preprint paper entitled ‘Seven replicated genomic associations of myalgic encephalomyelitis/chronic fatigue syndrome: a biobank study' (Slaughter et al 2026). This is a genome wide association study involving 1268 people with ME/CFS and healthy controls who were obtained from the UK Biobank. Read more, including links to Prof Chris Ponting's comments, on the blog: meassociation.org.uk/7a28 #MECFS #pwME #MyalgicE #Research
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