🚨Update on Super Bubba, our three-year-old cancer warrior.
The tumor board match results came in and they matched his tumor to a drug called DFMO which has shown very positive results for his specific tumor genetics. That was the good news.
This is the bad news: Insurance will not cover it. Even with TRICARE Prime for active duty military and Medicaid as backup, it will not be covered. The standard dose is $15,000 a month. For the high doses he needs, they cannot even give an out-of-pocket estimate. Until now, every medication in his treatment has been covered.
Here is the hope, the fortuitous part. Yesterday Super Bubba’s oncologist at MUSC, Dr. Michele Hudspeth, had a meeting planned five months ago with Dr. Giselle Sholler. Dr. Sholler happens to lead a DFMO clinical trial at Penn State in Hershey.
Dr. Hudspeth and the entire team here have been doing everything possible to get all tests and requirements done for study qualification to get Super Bubba in that trial. This trial can save his life.
Tomorrow (Wednesday) at 3:30 p.m. he has an appointment with Dr. Sholler at Penn State in Hershey, Pennsylvania. He is not approved for the trial yet. We are hoping and praying he qualifies and is accepted.
Please keep praying for him and for all warriors. Full details are in the video. 🎗️💛🫶💪🙏
September is Childhood Cancer Awareness Month. We go GOLD.
Please share this video to spread awareness if you find it in your heart. Super Bubba is one of hundreds of thousands of warriors past and present. 🎗️💪
#BrainCancer #GlobalPrayers #ChildhoodCancerAwareness