Dedicated to finding cures for rare cancers. 🔬 We empower patients to donate tumor tissue to research through our platform, Pattern.org.🎗️ Consent today!
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It may be a #NewYear, but our resolution remains the same: through our fiercely patient-centric approach, we are still working tirelessly to create greatly needed research infrastructure to improve the outcomes and care for #RareCancer patients. 💚💙
ALT Graphic that reads, “Have you or a loved one been diagnosed with a rare cancer? Are you looking for resources or more information? We’re here for you. Send us a DM or email info@rarecancer.org
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#NewBlog from Pattern.org’s Barbara Van Hare on our commitment to #RareCancer patients: rarecancer.org/news-updates/…
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Diversity in data is key to making progress in the development of vital #RareCancer treatments. Representation in research leads to better health outcomes for everyone! 🤝
Here at RCRF, we’re working to achieve better health equity for ALL rare cancer patients. Join us today.
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According to our partner the Chondrosarcoma Foundation, only ~19% of rare cancer patients receive genomic sequencing. 🧬
Here at RCRF, we're working to change that. We believe that every #RareCancer patient should have access to this increasingly important information.
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RCRF is fiercely patient-centric.
Tissue donated through Pattern.org has helped to create over 58 rare cancer research models and counting!
As Jane says, it’s a game changer. 🤝
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Today is #GivingTuesday2024, and we hope you will consider us in your donation plans as we work to improve outcomes for #RareCancer patients.
Learn more and give today at the link in our bio! 💙💚
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Visit pattern.org to learn more about our #RareCancer tissue donation initiative.
💚💙 You can make a difference!
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Click for a special message from us. 🦃 Thank you for supporting #RareCancer research! 💙💚
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We’re working to accelerate transformative advances in #RareCancer treatment and we need your help. Tomorrow Can’t Wait. Please consider us in your end-of-year giving and join us today! 💙💚
👉 rarecancer.org/donate-2024
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We're proud to announce we've been selected as an @ARPA_H Investor Catalyst Hub spoke: connecting researchers, entrepreneurs, & investors to accelerate solutions for innovative biomedical solutions! Excited to bring our expertise in rare cancer research to investorcatalysthub.org/
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Happening TODAY at 12pm CT: Live (free) webinar, "Innovations in Rare Cancers," - RCRF President, Dr. Marshall Thompson, will join the panel discussion to share his perspectives on the most pressing issues in rare caner research! Register to join:
eventbrite.com/e/innovations…
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Rare Cancer Research Foundation + Pattern.org retweeted
📣 Mark your calendars for 4/10-4/11 for The EHE Foundation's 2025 EHE 360 Global Patient Conference. More details to follow soon!
#EHE360 #EHE #EHEfoundation #TheEHEfoundation #justlive #rarecancer #EHEcancer #sarcoma #empowerpatients
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Check out this article featuring a few of our team members! Our own @kaydaustin explains how she turned her diagnosis into a mission to help people with #rarecancers.
“My whole clinical history was just sitting there, and nobody was learning from it.” New platforms empower patients to use their clinical data and tissue for cancer research. bit.ly/4ewBBwb @corrie_painter @RareCancerRF @kaydaustin
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Several members of the RCRF team are quoted in this @CancerTodayMag feature on "Patients as Research Partners," which discusses patient-driven rare cancer research programs, such as our Pattern.org program & The Broad Institute's Count Me In:
bit.ly/3TPcUT6
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Want to take control of your data? Join us today on #RareCancerDay to sign up to #DonateYourData to the first patient-powered data commons- a resource that will help researchers accelerate discovery for #rarecancers: rarecancer.org/donate-your-d…
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We announced today on #RareCancerDay that we’ll be launching the Pattern Data Commons - a patient-powered data repository that will help researchers accelerate discovery for #rarecancers…1/2
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Our Pattern Data Commons will allow patients to donate their data by consenting to have RCRF collect medical records & sequencing data through a secure online platform. Sign up to learn more & #DonateYourData: rarecancer.org/donate-your-d… 2/2
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