The Sickle Cell Disease Association of America (SCDAA) serves as the nation's headquarters for sickle cell disease support and advocacy & the search for a cure.

Baltimore, MD
#SickleCellAwarenessMonth is almost over — let’s take action together! 🩸 💪 Help us meet our goal for our annual blood drive. So far, we have 15 pledges, but we need your help to reach our goal of 100. Make a pledge today ➡️ buff.ly/aJc9o4S
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The last Social Party of 2026 starts now! Join us on Instagram (@scdaa) and view our stories to comment on today's theme: Mental Health and Sickle Cell. #SickleCellAwarenessMonth #SickleCellMatters
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Mark your calendar: The Sickle Cell Voices Alliance, a partnership among SCDAA, Sickle Cell Disease Association of Canada and @SickleCellUK, is hosting an externally led patient-focused drug development (EL-PFDD) meeting on January 27, 2027 ➡️ buff.ly/wG0HeJ3
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Next Tuesday! Don't forget to join us for our 2026 SCDA Masterclass Series - Part One: Chronic or Acute? Rethinking the Approach to Sickle Cell Disease Care. 🔗 buff.ly/LrQyFS0 #SickleCellMatters
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Let's get this party started! Our second Social Party is happening now on Instagram (@scdaa). Pop into our stories to comment on today's theme: Clinical Trials and Research. #SickleCellAwarenessMonth #SickleCellMatters
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Jimi Olaghere's journey to the top of Mt. Kilimanjaro started with a clinical trial. 🔬 Watch the video to follow Jimi's journey to the summit and discover why clinical trials are vital to improving the treatment of sickle cell disease. buff.ly/IEiHlV5
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This video was made possible by SCD C.A.R.E.S. (Collaboration of Advocates for Research, Education and Science) Consortium.
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Happening now! Don't miss our 2026 Social Party on Instagram (@scdaa). Head over to our stories to share your thoughts on today's theme: A Disease. Not a People. #SickleCellMatters
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The 2nd Annual SCDAA Golf Classic last week was a hole-in-one success! 🏌️ 🏌️‍♀️ Together, we raised $17,000 to help fuel awareness, advocacy and support for individuals living with sickle cell disease. Thank you to our everyone who joined us! ⛳️
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We're back again with another Convention programming sneak peek! 🫣 Meet keynote speaker Adetola Kassim, MD. He will present on "Stroke Awareness Through the Lifespan" during the Kwaku Ohene-Frempong, MD, Memorial Symposium. Join us at Convention ➡️ buff.ly/9BH9xZa
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Thank you to Atlanta Protective Services for supporting the 2026 SCDAA Golf Classic! The Golf Classic was held on September 11 in Douglasville, Georgia. Learn more ➡️ buff.ly/S6SBwPW
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And the 2026 SCDAA Convention Gala theme is... 🥁 Rare & Radiant: An Evening Celebrating the Brilliance Among Us! Included in your convention registration, this always popular event is sure to dazzle. Learn more and register for convention ➡️ bit.ly/scdaa26
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CONVENTION HOTEL UPDATE: Rooms at the convention site are going quickly. If you are experiencing problems booking your hotel room or need assistance identifying accommodations, please email convention@sicklecelldisease.org for support.
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🗣️ DONORS NEEDED! There is still time to participate in our virtual blood drive, and we need your help. We've set an ambitious goal of 100 pledges, and we have work to do to meet that goal. Sign up today ➡️ buff.ly/tgN8rBq #SickleCellAwarenessMonth #GiveBlood
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📅 Mark your calendar: Masterclass is back on Sept. 29! Our panel of experts and warriors will explore how new approaches in sickle cell disease care can help improve outcomes and shape how health care is addressed now and in the future. Register today ➡️ buff.ly/hlKCsHW
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Sickle Cell Awareness Night at Camden Yards was a home run! ⚾️ SCDAA was honored to join local community members in Baltimore last night. Many thanks to the @Orioles for hosting this event and your generous support of SCDAA!
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Thank you to @DHR_Global for supporting this year's SCDAA Golf Classic! The Golf Classic will be held tomorrow in Douglasville, Georgia. Learn more and sign up today ➡️ buff.ly/WXocrHa
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Last week, SCDAA National team members attended the MD showing of "You Look Fine," a new documentary by comedian/filmmaker J. Snow. We were honored to join others in the SCD community for this night of connection & conversation. Thank you, J., for your work on this project!
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Convention programming sneak peek! 🫣 Meet keynote speaker Sophie Lanzkron, MD, MHS, professor of medicine and division director of hematology at Thomas Jefferson University. Register for Convention today! 🔗 buff.ly/un7LlKo
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💬 #DYK that sickle cell disease is the most common inherited blood disorder in the United States? Sickle cell is a rare disease, but it’s not an uncommon one. What's something you wish more people understood about sickle cell? Drop your answer in the comments!
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