Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Stockholm, Sweden
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Professor Brian Hughes on Medically Unexplained Symptoms: “It took GPs a median of just 12 seconds to decide that a patient’s symptoms were psychosomatic. In 50% of consultations, GPs had decided that symptoms were psychosomatic before the patients had even started talking.” →
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Message from Dr. Nancy Klimas:
· Don’t give up hope.
· The research field is advancing faster than ever.
· Use pacing.
· Avoid crashes.
· Don’t push your body on good days.
· Take the illness seriously and listen to your body’s signals.
#MEAwarenessHour
piped.video/watch?v=gAkPEncO…
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New study using DTI and DKI shows distinct brain microstructural changes in ME/CFS and long COVID. DKI reveals complexity missed by DTI, offering deeper insight into shared symptoms and highlighting unique neural patterns across both conditions. #MECFS frontiersin.org/journals/med…
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#MECFS is chronic, complex multi-system illness that often leads to severe disability. Some doctors don’t take it seriously and argue that it is socially transmitted. Did you know that many doctors who developed long covid have changed their minds about ME/CFS?
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#MECFS is chronic, complex multi-system illness that often leads to severe disability. Some doctors don’t take it seriously and argue that it is socially transmitted. Did you know that many doctors who developed long covid have changed their minds about ME/CFS? #MEAwarenessHour
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#MECFS is a severe multi-system illness. There is currently no diagnostic test, but did you know that studies have shown abnormalities at a group level in the brain, the central and autonomous nervous system, the immune system, and the cellular energy production? #MEAwarenessHour
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Today 12 May is the #MEAwarenessDay. #MECFS is a poorly understood, severely debilitating illness that dramatically limits the lives of those affected. The patients need support, understanding, and high-quality research. Wishful thinking will not make the problem go away. #MECFS
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Berkeley’s Crowdfunding Autumn 2026 in support of Dr. David Tuller’s project “Trial by Error” has reached 86% of its target. One day to go! These are the final six months of Dr. Tuller’s project. Let’s give him a push over the finishing line! #MECFS crowdfund.berkeley.edu/proje…
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The symptom burden of ME/CFS may not be visible to other people, but it is real: fatigue not alleviated by rest, symptom flare up after mental or physical exertion, pain, cognitive impairment, orthostatic intolerance, sleep reversals, and many more symptoms. #MEAwarenessHour
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#MECFS is a neurological illness! People with ME/CFS have a range of neurological impairments, such as ataxia or balance problems, hypersensitivity to sensory stimulations (light, noise, smell, touch, and temperature), visual disturbances, and fasciculations. #MEAwarenessHour
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Berkeley’s Crowdfunding Autumn 2026 in support of Dr. David Tuller’s project “Trial by Error” has reached 57% of its target. Dr. Tuller’s criticism of flawed #MECFS studies has been invaluable! If you can afford to donate, please do so! crowdfund.berkeley.edu/proje…
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ME/CFS is a severely disabling neurological disease. It has been largely ignored by the medical community, despite the large scale of the problem. Pre-covid estimates suggest 50–60 million people affected worldwide—more than the entire population of Canada.
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Some researchers perpetuate the belief that #MECFS is psychogenic in nature. Did you know that many leading Universities now pursue biomedical research on ME/CFS and that many researchers accept the biological nature of the illness after reviewing the evidence? #MEAwarenessHour
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Berkeley’s Crowdfunding Autumn 2026 in support of Dr. David Tuller’s project “Trial by Error” is open for donations. This will be Dr. Tuller’s final campaign before he retires. His critique of flawed #MECFS studies has been invaluable! crowdfund.berkeley.edu/proje…
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#MECFS is a severely disabling illness. Patients bear not only symptoms but also negative stereotypes and inadequate care. Much of the work of informing the public, offering support, and lobbying for respect and research funding falls on patients and families. #MEAwarenessHour
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Did you know that myalgic encephalomyelitis/chronic fatigue syndrome (#MECFS) is a severely debilitating, chronic multi-system disease and that about 70–80% of the cases have an infectious onset? Known risks are for example Epstein–Barr virus glandular fever. #MEAwarenessHour
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Sten Helmfrid 🇺🇦 🇬🇱 retweeted
I met someone with ME from Ukraine. He left a few years ago and doesn’t feel he can go back as all the signs are, despite being unable to work, due to the invisible nature of the illness, he would be conscripted and sent to the front line! 😢 #PwME #MEcfs
Four years after Russia’s full‑scale invasion of Ukraine, let’s remember those with #MECFS who are living through both a stigmatized illness and the realities of war. Their struggle is doubled, and they deserve to be seen. #StandWithUkraine #MEAwarenessHour
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#MECFS is a severe illness that affects tens of millions of people. To date, there is no cure and no understanding of the pathology. This challenge can be solved, if we put our minds to it and provide funding for research. In the meantime, patients need support. #MEAwarenessHour
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#MECFS is one of the most severely debilitating chronic illnesses. The level of functional impairment in severe cases is comparable to multiple sclerosis, AIDS, end-stage renal failure, and chronic obstructive pulmonary disease (CDC press briefing, Nov. 2006).
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#MECFS is classified as mild, moderate, severe, or very severe, but don’t be fooled by the terminology. Mild #MECFS is also debilitating. Even if those affected often can work part time, their lives are restricted and the burden of symptoms difficult to bear. #MEAwarenessHour
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