When I went into labor with my daughter, by the time I got to the hospital they told me it was too late for an epidural because it wouldn’t take effect in time since I’d be delivering within an hour to two. I said, “That’s fine, I’d like to be numb after I deliver.”They pushed back, I pushed back harder, and a few minutes later the anesthesiologist walked in. I got the epidural and had a very comfortable delivery.
Fast forward years later, my uncle was in hospice at the VA with pancreatic cancer. What made my tough as nails uncle the most miserable wasn’t even the cancer, it was his ascites. His stomach would balloon up so much it looked like he was nine months pregnant with twins and it was causing the skin to crack on his emaciated body. They were draining it every few days via catheter. I asked why they couldn’t just leave a drain in so he wouldn’t have to keep going through that and they said it was an infection risk 😡 He had less than 10 days to live and they were more worried about infection than comfort for a dying Marine, so I pushed. A lot. A drain was placed the next day.
When my daughter was 16, we were in the ER over and over for severe abdominal pain and vomiting. I think we went five times. Every time it was the same answer….ultrasound is clear, it was possibly constipation and to follow up with a GI specialist. On our final ER visit, they were once again trying to discharge us after finding nothing. I sent out an SOS on social media.
Someone suggested asking for an abdominal CT. The ER refused saying it was not indicated, she was too young for gallbladder issues and insurance wouldn’t cover it. I basically went full on Terms of Endearment. I screamed I wasn’t leaving, I’d pay right then for the damn CT and they could call security on me. They finally did the CT and a couple hours later, my daughter was in surgery getting her severely diseased gallbladder out.
I’m not sharing this because I think I’m some hero or because I enjoy being difficult; I actually hate it. But doctors are human, systems are rigid, and things get missed. If something doesn’t feel right, say something, ask again, push back. Doctors are not infallible or all knowing gods. Advocating for yourself or your family isn’t being a problem. Sometimes you might be the only difference between a misdiagnosis and appropriate, compassionate medical treatment.