Uniting cancer professionals & improving practice, TYAC enhances young people’s quality of life & likelihood of survival. In partnership with @cclguk
Century House, Leicester
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We have big news! 📣
@TYACancerPro and Children’s Cancer and Leukaemia Group (CCLG) have merged their memberships to form a new professional association.
Introducing CCLG: The Children & Young People’s Cancer Association!
cclg.org.uk
#CCLG #CYPCancer
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🤩 Exciting news!
Registration is OPEN for the CCLG + TYAC Annual Conference 2025, a must-attend event for #clinical, #healthcare, and #research professionals!
⏰ Early bird discount for members ends 16 Jan 2025!
View the programme & register bit.ly/3H6gaTu
#CCLG2025
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📣 @Cancer52org is seeking input from young people diagnosed with a less common cancer, to help them understand and improve cancer services and outcomes for patients 🎗️
Please complete the survey at: bit.ly/C52survey
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Our amazing supporter Dean recently completed the Scottish Coast to Coast Cycling Challenge, pedalling an incredible 125 miles from Annan to Edinburgh in memory of his friend, Demi - raising an incredible £900 for @tyacancerpro 🌟
Well done, Dean! 👏
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Thank you to everyone who helped us raise vital awareness throughout #TYACAM🤲April may be over, but here at TYAC and @CCLG_UK, we will continue working hard to make sure we shape a future where all teens and young adults with cancer survive and live the life they deserve 💛
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Ruby was 17 when she was diagnosed with #BloodCancer. Her mum Emma began fundraising in Ruby's memory, determined to make a difference for teens like Ruby. She set up @KindlyLoudly at CCLG to help raise vital #research funds ❤ More info at: bit.ly/3UhNfC5 #TYACAM
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Meet Dr. Morven Brown, a health psychologist and childhood cancer researcher at @UniofNewcastle 🎓 At 23, she was diagnosed with #HodgkinLymphoma. This #TYACAM, she shares how her own experiences have influenced her work and interests: bit.ly/3JVJm17
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Last week, we caught up with one of TYACs first funded researchers @nfhughes1 🔬 We wanted to find out why she started researching cancer in young people, and what she loves about her job 💛 Find out more in our #TYACAM blog at: bit.ly/49Ry7kO
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🌟 We're proud to launch our new Good Practice Guide for communicating with #TYAs with cancer - aiming to equip HCPs with tools to assist in effectively assessing their preferences and engaging them in communication at the level they desire. More info at: bit.ly/3QdyP4P
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Ross Long was 16 years old when diagnosed with abdominal B-cell non-Hodgkin lymphoma in 2013. To mark #TYACAM, Ross is using his experience to help others going through the same thing 💜 You can read Ross’ story at: cclg.uk/43QPDUk
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Mila Rundic was diagnosed with Hodgkin lymphoma in September 2022 when she was 19 years old. As part of Teenage and Young Adult Cancer Awareness Month, she shares about the impact of her cancer and offers advice to young cancer patients at: bit.ly/3UeJmxu #TYACAM 💛
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Teens and young adults with cancer have unique needs and require specific treatments and different #research 💜 🔬There is very little research that focuses just on young people – but we are working hard to change that 💪Check out our #TYACAM blog at 👉 cclg.uk/3HaOWvs
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TYAs face unique challenges, like maintaining independence during treatment and job prospects post-cancer. Young people's cancer research is underfunded, leaving gaps in knowledge about effective treatments and support. Learn more about #TYACAM at: bit.ly/3TBuLfB🎗 🔬
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Yami Moloteni was diagnosed with #HodgkinLymphoma when aged 18. To mark #TYACAM, Yami tells us about her cancer diagnosis and treatment and offers advice to both professionals and other young cancer patients to help empower young people around healthcare: bit.ly/4atmUbf
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Ellie Waters was diagnosed with alveolar #rhabdomyosarcoma aged 14. This #TYACAM, she explains how it influenced her ambition to become a doctor, and why it’s so important to raise awareness of the issues that young cancer patients face: bit.ly/3K8DukK 💜
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Ever wondered what cancer care looks like for teens and young adults? 💛 This #TYACAM, we're inviting you to join our new webinar with @JoStark40711424, 'What is cancer care like for TYAs?,' on 16 April at 7 pm to find out. Register for free at: bit.ly/4atZ12S
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Good communication can have a huge impact when working with young people 🗣 This #TYACAM @JoStark40711424 , Chief Nurse for TYAC and @CCLG_UK shares some key points for #CancerProfessionals to keep in mind when working with young people. More info at: bit.ly/3J9IqFZ
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Richard Storry was diagnosed with #HodgkinLymphoma in November 2010, aged 17. Richard has joined our #TYACAM campaign to help empower young people around healthcare and offers his advice to help support others 🗣 💜 Read Richard's full story at: bit.ly/3UkHftL
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If you're referred to a specialist for teen & young adult cancer, navigating appointments can be daunting. To help you get the most out of GP and hospital appointments, we've put together eight top tips to help you speak up and advocate for yourself at:💜 bit.ly/3VNdi6w
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Today on #WorldHealthDay, @JoStark40711424, CCLG and TYAC Chief Nurse, shares some top tips on how to make the most of your GP appointments to ensure you're getting the care you need! 👩⚕️ 💛 Find out more at: bit.ly/3TeVf7B #TYACAM #EarlyDiagnosis
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Meet James Laiolo, a 22-year-old medical student at Exeter University. Since James was diagnosed with #BurkittLymphoma he has been using social media to empower other young people facing a cancer diagnosis 📱This #TYACAM, James shares his story: bit.ly/3Pw12U1 💜
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It can be hard to know when you should contact your GP if you are worried about your health. If you've been feeling unwell for a while, or your symptoms don't get better as quickly as you think they should, it's always worth getting checked out 💜 bit.ly/40x2OXO #TYACAM
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Around 2,400 young people aged 13-24 are diagnosed with cancer every year. By wearing one of our #TYAC ribbons, you'll be making a difference by raising awareness and supporting vital #research into teenage & young adult cancers 🎗Get yours now at: bit.ly/3Ph5qq3 #TYACAM
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#TYACAM is here! 💜This year our focus is on empowering young people around healthcare. Together, alongside several other charities, we’re raising awareness around the importance of accessing healthcare & advocating for yourself to make your voice heard 🗣 bit.ly/3TBuLfB
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This #TYACAM we're inviting you to join our new webinar, "What is cancer care like for teenagers and young adults?" on 16 April at 7 pm. Register for free now at: bit.ly/4atZ12S ⭐ #TeenageAndYoungAdultCancer @JoStark40711424
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Researchers from @EdinburghUni are looking for young men aged 11-15, or their parents, who have faced a cancer diagnosis. Your input will help design a resource to support young males make decisions about their fertility. More info & register your interest:bit.ly/3I7pbfp
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Your voice matters 📣We want to encourage teens & young adults to have your say by completing the #CancerPatientExperiecneSurvey. This is your chance to share your experiences to help improve local cancer services. If invited, have your say at ~ ncpes.co.uk ✨
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Last month, @Wendy_1st, brought together skin cancer professionals, advocates, & survivors 💜 With the goal to improve services for #TYAs with skin cancer and help Wendy develop future young people’s skin cancer #research💜Find out more at ~ bit.ly/47L8Poa
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🌟 Exciting news! Together with @CCLG_UK, we're proud to launch the first in a series of eLearning units for multi-professionals in early years children & young adult cancer services - thanks to joint funding from @CCLG_UK & @YLvsC! Find out more at ~ bit.ly/3uP7JZK
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Are you a young adult dealing with cancer-related fatigue? The @Untire_App is here to support you. Your input can help researchers from @UniofBath improve the app and help cancer patients & survivors cope with extreme fatigue. Interested? More info below👇 bit.ly/3uBgSoC
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Calling all researchers📣Are you passionate about improving palliative & end of life care for #TYAs with cancer? There is still time to apply for a TYAC palliative & end of life care #research grant. Grants of up to £100k are available. More info & apply 👉bit.ly/3PioYt5
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📣 Now open for applications! TYAC palliative & end of life care research grants.
This grant is for projects which aim to improve palliative and/or end of life care for TYAs with cancer. Grants of up to £100k are available.
Find out more and apply 👉🏻 bit.ly/3PioYt5
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We are delighted to welcome our new TYAC Chair, Liz Purnell, and Executive member, Hanna Simpson⭐
Find out what they both had to say about joining the TYAC Executive Group👉 bit.ly/45YGHg0
Exciting times ahead 👏
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Sarah Punton, Trainee Clinical Psychologist at
@unisouthampton is looking for young people aged 11-18 to take part in the YES-CaT study to understand what it's like for siblings of #ChildhoodCancer patients.
Interested in taking part? More info👇
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Researchers at @lborouniversity are recruiting young people aged 13 –24 with cancer to The ACTION Physical Activity Study to see if being active can help to reduce fatigue and improve quality of life 🧘♀️💛
More info & get involved 👉 bit.ly/3AXmhq4
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📣 Great #news from @NHSEngland this week, publishing new 'service specifications' for TYA cancer services in England, which we are proud to have helped develop!
These documents outline the standards that are expected in TYAC services ✨
Find out more 👉🏻 bit.ly/3MYrzbS
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Sarah Punton, Trainee Clinical Psychologist at @unisouthampton is looking for young people aged 11-18 to take part in the YES-CaT study to understand what it's like for siblings of #ChildhoodCancer patients.
Interested in taking part? More info👇
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Kiya was diagnosed with stage four #HodgkinLymphoma in 2021 aged 15.
This #TYACAM she shares her story & tells us why raising awareness of cancer in young people is so important to her ❤
Read Kiya’s story and her advice to other young cancer patients 👉 buff.ly/40KMbaW
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Early diagnosis saves lives, so being able to spot the signs and symptoms of cancer is really important ⏰
Many of the common symptoms of cancer in #TYAs are also symptoms of other everyday illnesses, so it can be easy to miss them.
#SpotTYACancer 👉 buff.ly/41TFVyQ
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#TYAs with cancer have unique needs and require specific treatments and different research 🤍
There is very little research that focuses just on young people – but we are working hard to change that 💪
Check out our #TYACAM blog post to find out more 👉 buff.ly/41z2AjY
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✨April is the first ever #TYACAM ✨
Order a free box of TYAC ribbon pin badges and keyrings to sell at work, at home or in the community.
Every badge sold will help fund specialist research to improve the lives of #TYAs with cancer 💛
Order yours 👉🏻 buff.ly/3LhNFoQ
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Ross Long was diagnosed with cancer at 16 and has since overcome it ♥
To mark #TYACAM, Ross is using his experience to help others going through the same thing, sharing his cancer journey and his advice to other young cancer patients.
Ross’ story 👉 buff.ly/3KTQmLT
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✨#WIN ✨
This #TYACAM enter our raffle to win a Sony PlayStation® 5 Disc Console with two controllers 🎮
For just £2.50 a ticket, you can help fund life-saving research and 'Bridge the Gap' for #TYAs with cancer 🫶🏻
Enter the raffle 👉🏻 buff.ly/3mPWZXr
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Skin cancer is one of the most common cancers for teens and young people 💛
@Wendy_1st from the Open University will soon be talking to young people & their families to learn more about their experiences with #melanoma.
More about her project👉🏻 bit.ly/3mIt3wp
#TYACAM
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Ellie Waters, a medical student at Keele University, was diagnosed with alveolar #rhabdomyosarcoma aged 14.
Ellie explains how it influenced her ambition to become a doctor and why it’s so important to raise awareness 👩🏻⚕️
Read Ellie’s story 👉 bit.ly/3K8DukK
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Meet Seren 🫶🏻
At the age of 19 Seren was diagnosed with Hodgkin lymphoma, a type of #BloodCancer.
This #TYACAM she is sharing some of the symptoms you shouldn’t ignore when it comes to blood cancer! ❤️
More about Hodgkin lymphoma 👉 bit.ly/3zpZ7YD
#TYACancer
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Your brain is one of the most important organs in your body. It's important to know what to look out for when it comes to brain tumours.
If you're experiencing symptoms or have any concerns, don't hesitate to visit your GP 🫶🏻
Learn more 👉 bit.ly/3F9jaed
#TYACAM
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We are proud to be one of the few charities that fund specific research into #TYACancer 🧬
🌟 In July 2022 we funded one of our first research projects led by Dr Nicola Hughes!
Find out more about the project here 👉🏻 bit.ly/3Kd5aVv
#TYACAM
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Matteus Irso-Coombes, Community Fundraising Coordinator at TYAC and @CCLG_UK, was diagnosed with #leukaemia aged 24.
This #TYACAM, he tells us about his cancer experience and how it has altered his outlook on life 💛
Read Matteus’ story 👉 bit.ly/3m3Tk82
#TYACancer
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📣 Teens and young adults with cancer fall into the gap between childhood and adult cancer – they have different cancers, different needs and different priorities.
Learn why #TYAs with cancer are different and need their own research 👉 bit.ly/3lYVIgB
#TYACAM
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Have you ever heard of #lymphoma? Let’s talk about it 🧐
The most common symptom is a painless lump in the neck, armpit, or groin.
If you or someone you know is experiencing symptoms, don’t hesitate to talk to a GP❤
Learn more 👉 bit.ly/3K5Fw45
#TYACAM
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