Supporting and empowering Kansas City families affected by sickle cell disease. MY CAUSE MY CLEATS: mcmc.rayzeapp.com/adetomiwaa…
444 Minnesota Ave ste 300 KCK
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Ever had to cancel on your friends AGAIN? If you live with sickle cell you know that specific kind of lonely. Community is the counterweight. Tag somebody who's shown up for you. ❤️
sicklecellmidwest.org #SickleCell
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Not all sickle cell pain shows up on a scan. Depression and anxiety are more common in people living with SCD, and both are treatable. Mental health care belongs in the care plan. 988 is there any hour, free and confidential. 💙
sicklecellmidwest.org #SickleCell
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Real talk: somebody's next good month is sitting in a blood bag right now. Patients do best with closely matched blood, which most often comes from donors of the same background. Black donors are essential. One hour. 🩸
sicklecellmidwest.org #SickleCell
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Did you know sickle cell can affect the BRAIN? Silent cerebral infarcts are small strokes with no obvious symptoms that can still affect memory and learning. Ask your care team about MRI and cognitive screening. 🧠
sicklecellmidwest.org #SickleCell
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Y'ALL SHOWED UP. Warriors, families, first timers, sponsors, and volunteers who were there before sunrise. Every step said the same thing out loud: people living with sickle cell MATTER here. ❤️
sicklecellmidwest.org #SickleCell
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This week is written into Missouri LAW. 📖 RSMo 9.236 makes Sept 20 to 26 Missouri Sickle Cell Awareness Week. And every baby born here is screened for sickle cell at birth. Recognition is how a state decides what to fund.
sicklecellmidwest.org #SickleCell
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IT'S TODAY! 🎉 We walk at NINE at the Lodge by the Lake. Not registered? Come anyway, walk up registration is open at the table and warriors always walk free. Tag your photos #StepsForSickleCell!
Sat Sept 19, 9AM, Lodge by the Lake, KCK
sicklecellmidwest.org #StepsForSickleCell
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TOMORROW, y'all! Nine in the morning at the Lodge by the Lake. Didn't register? COME ANYWAY, walk up registration is open at the table. 👟
Sat Sept 19, 9AM, Lodge by the Lake, KCK
sicklecellmidwest.org #StepsForSickleCell
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"But you look SO good!" Warriors, y'all already know where this is going. Sickle cell is largely invisible, and none of it shows up on a face. When somebody says they're hurting, believe them the first time. 😮💨
sicklecellmidwest.org #SickleCell
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Y'all. There are PANCAKES. People hear sickle cell walk and picture something solemn. Not this one. Chris Cakes, a live DJ, games and a prize wheel. Warriors walk FREE. Three days! 🥞
Sat Sept 19, 9AM, Lodge by the Lake, KCK
sicklecellmidwest.org #StepsForSickleCell
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IT'S SOMEBODY'S BIRTHDAY! 🎉 Happy Birthday to our incredible Board Member, Tiffany Harper. Thank you for your time, your voice and your heart for the sickle cell community. Drop her a message below! 👇
sicklecellmidwest.org #SickleCell
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KC, it’s time to walk it out! 🎶👟
Join us for the 16th Annual Steps for Sickle Cell and help support our Sickle Cell Warrior community!
Register at SickleCellMidwest.org.
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See that number on the bib? 1981. That's the year we opened our doors, back when almost nobody was saying the words sickle cell out loud. Forty five years later, still walking. Five days out! 👀
Sat Sept 19, 9AM, Lodge by the Lake, KCK
sicklecellmidwest.org #StepsForSickleCell
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25 years ago today, the whole country stopped. 🤍 Then people lined up to give blood for strangers: around half a million extra units that fall. That same instinct keeps sickle cell warriors going every single day. Honor it. Give blood this month. #NeverForget #SickleCell
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Okay, let's talk about what this morning ACTUALLY looks like. One easy lap around the lake, then pancakes, a live DJ and games until noon. Warriors always walk FREE. 👟
Sat Sept 19, 9AM, Lodge by the Lake, KCK
sicklecellmidwest.org #StepsForSickleCell
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Let's talk about the part nobody posts about. Today is World Suicide Prevention Day. Call or text 988 any hour. Free, confidential, and you don't have to be in crisis to use it. Check on your people today. 💙
sicklecellmidwest.org #SickleCell
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Today is the last day to register and be guaranteed a t-shirt. After today it is whatever is left at the table.
Sat Sept 19, 9AM, Lodge by the Lake, KCK
sicklecellmidwest.org #SickleCell
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Tomorrow is the shirt deadline. Register before Monday is over and yours is guaranteed. Thirteen days until we walk.
Sat Sept 19, 9AM, Lodge by the Lake, KCK
sicklecellmidwest.org #SickleCell
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Two weeks from this morning. Monday is your last day to register and be guaranteed a t-shirt. You have all weekend to handle it.
Sat Sept 19, 9AM, Lodge by the Lake, KCK
sicklecellmidwest.org #SickleCell
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Three days left to lock in your t-shirt. Register by Monday September 7 and yours is guaranteed.
Sat Sept 19, 9AM, Lodge by the Lake, KCK
sicklecellmidwest.org #SickleCell
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