A user-friendly website where people living with ALS, caregivers, and professionals can find educational guides, expert video clips, resources, and more...
Based in United States
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Twice a month, we share helpful tips, resources, and information to help you navigate the road ahead. Sign up for our free newsletter at youralsguide.com/newsletter #ALS #ENDALS
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We are an educational website for families impacted by ALS. Visit us at youralsguide.com #als #endals
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When living ALS, tending to your mental health can help you find peace of mind and have a renewed sense of control. Learn more about mental, emotional, social, and physical well-being at youralsguide.com/als-mental-… #als #MentalHealthMatters
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Respite care can help #ALS family caregivers avoid burnout by providing much-needed breaks. Depending on your local resources and support network, you may be able to find caregiving help at no cost. Learn more at youralsguide.com/respite-car… #NationalFamilyCaregiversMonth
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If you are a Veteran who has been diagnosed with ALS, you should qualify for significant VA benefits, including medical equipment, care at VA ALS clinics, disability compensation, a home renovation grant, and an automobile grant. Learn more at youralsguide.com/veterans-wi… #ALS
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Caregivers sometimes feel guilty for taking care of their own needs. But the better you care for yourself, the better caregiver you will be. Finding time for yourself can help you recharge. Learn more at youralsguide.com/taking-care… #NationalFamilyCaregiversMonth #ALS
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We would like to recognize all of the love and energy #ALS caregivers share every single day. Our ALS Caregivers section has information about self-care, respite care, support groups, support services, care options, and more: youralsguide.com/caregivers #NationalFamilyCaregiversMonth
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When living with #ALS, setting up smart home devices can help you remain more independent and have greater control over your environment. Learn more at youralsguide.com/als-smart-h… #SmartHome
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If you are struggling to chew or swallow, or get fatigued while eating, a feeding tube can be a safe and reliable way to get the calories and nutrients your body needs. Learn more at youralsguide.com/feeding-tub… #ALS
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We are an educational website for families impacted by ALS. Visit us at youralsguide.com #ALS #ENDALS
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We have created an in-depth page on genetic ALS, counseling, and testing. Learn who may be at risk, how counseling might be helpful, what to consider, how testing works, and where you can get tested. Learn more at youralsguide.com/genetic-tes… #ALS #ALSGENETICS
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Getting a good night’s sleep can be challenging for people living with ALS. There are strategies and devices that can help. Sleeping better can improve your mood, energy level, and overall outlook on life. Learn more at youralsguide.com/als-and-sle… #ALS
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Moderate exercise can be beneficial, but you should not push yourself too hard. Learn more at youralsguide.com/exercise-an… #ALS
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There are many dressing devices that your occupational therapist may be able to recommend to help you continue to get dressed on your own. Learn about button hooks, sock aids, dressing sticks, and more at youralsguide.com/dressing-ai… #ALS
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The word "legacy" can mean different things to different people. Here we are talking about leaving a meaningful emotional legacy for loved ones. Learn more at youralsguide.com/legacy #ALS
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Paying out of pocket for equipment can be expensive. Learn what Medicare, Medicaid, and private insurance cover and how to get the equipment you need at youralsguide.com/overview #ALS
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We are an educational website for families impacted by ALS. Visit us at youralsguide.com #ALS #ENDALS
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AI can now create a cloned voice that sounds almost indistinguishable from your natural voice. Your simulated voice can then be used on a text-to-speech app or communication device. Learn more at youralsguide.com/voice-banki… #ALS
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Have you seen our YouTube channel? Find hundreds of video clips with #ALS experts and people with lived experience at youtube.com/c/YourALSGuide Subscribe to stay up-to-date.
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If moving from place to place is challenging, transfer devices like gait belts, transfer boards, and patient lifts can help improve mobility and safety. Learn more at youralsguide.com/transfer-de… #ALS
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When living with ALS, it is important to learn to conserve your energy so you can continue to do the things that matter most. Find helpful tips at youralsguide.com/conserving-… #als
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We just expanded our Communication page into a longer section with new information about voice banking and cloning, lite-tech options, device access, speech-generating devices, and more. Visit youralsguide.com/communicati… #ALS
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An ALS diagnosis does not have to stop you from traveling. If you want to visit friends or embark on a new adventure, you can find tips and information at youralsguide.com/travel
#ALS #ENDALS
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This in-depth educational guide includes information on ALS respiratory challenges, support, intervention, and equipment.
Learn more at youralsguide.com/respiratory #ALS #ENDALS
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Join us this month to help bring awareness and support to people and families impacted by ALS. youralsguide.com #ALS
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Twice a month, we share helpful tips, resources, and information to help you navigate the road ahead. Sign up for our free newsletter at youralsguide.com/newsletter to stay up-to-date on new #ALS content, equipment, and more. #ENDALS
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None of the drugs approved for ALS are as effective at extending life and improving quality of life as established interventions like noninvasive ventilation and best nutrition practices. Learn more at youralsguide.com/non-drug-in… #als #endals
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Caregivers sometimes feel guilty for taking care of their own needs. But the better you care for yourself, the better caregiver you will be. Read more at youralsguide.com/taking-care… #als #alscaregivers #SelfCareMatters
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As ALS progresses, you may notice changes in your ability to chew, swallow, or feed yourself. Learn about devices and techniques that can help you continue to eat safely and more independently: youralsguide.com/eating-and-… #als #alsnutrition
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If you are a Veteran living with ALS, you should be eligible for significant service-connected benefits. Learn more at youralsguide.com/veterans-wi… #ALS #ALSveterans
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As ALS progresses, wheelchair-accessible vans, lifts, ramps, and transportation services can help you continue to visit loved ones, attend events, and take trips. Learn more at youralsguide.com/transportat… #als #transportation
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As ALS progresses, you may experience muscle tightness and joint stiffness due to lack of movement. Range of motion exercises can help improve flexibility and reduce discomfort. #als #alsandexercise #rangeofmotion
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Have you seen our online directory of medical equipment and assistive devices for people living with ALS? Take a look at youralsguide.com/als-equipme… #ALS #ENDALS
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Getting the right braces can help improve safety, comfort, and independence for people living with ALS. Find tips, information, and videos on neck, wrist, and ankle-foot braces at youralsguide.com/braces #als
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As ALS progresses, it can be hard to consider giving up the independence that comes with driving. Learn how to gauge whether you can still drive safely at youralsguide.com/driving-and… #als #endals
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Assistive devices like toilet safety frames, portable commodes, bidets, and raised toilet seats can improve bathroom safety and independence. Learn more at youralsguide.com/toileting-d… #als #endals #alsindependence
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Our ALS Home and Daily Living Guide aims to help people living with ALS improve everyday quality of life and empower caregivers with knowledge, skills, and resources. Learn more at youralsguide.com/als-daily-l… #als
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You do not have to go through this alone. Many caregivers and people living with ALS find it helpful to share, connect, and learn from others in similar situations. Learn more at youralsguide.com/support-gro… #als #alssupport #alsresources
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When you’re living with a disease like ALS, tending to your mental health can help you find peace of mind and have a renewed sense of control. Learn how you can improve your mental, emotional, social, and physical well-being at youralsguide.com/als-mental-… #als #MentalHealthMatters
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Start off the new year by learning what you can do to experience a better quality of life. Find recommendations and information about nutrition, sleep, stretching, exercise, and more at youralsguide.com/self-care #als #alsselfcare #endals
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