Patient partner research has a compensation crisis.
We must do better to promote equity and ensure that patient partnerships are respected and compensated, write @AmyPricePhD and @TO_dprbmj.com/content/388/bmj.r381…
Registration is OPEN for Part 3 of our patient-oriented communications series! On March 24, join a panel of experts for an illuminating discussion on how to talk to the media about #PatientOrientedResearch 👉child-bright.ca/event-listin…
ALT A top-down view of a notepad and succulent on a green desk. The headshots of Keiko Shikako, Donna Thomson, Carrie Costello, and Pasquale Pettinicchio appear on the left. Text reads: What’s the Story? A patient-oriented communications workshop series. Part 3: How to talk to the media about patient-oriented research. March 24 at 1 p.m. ET / 10 a.m. PT
The Patient Engagement Journal Club for March will be great! The SPOR question is always how does patient engagement influence research? Come find out more! Register here: shorturl.at/jRjzs
🕓EXTENDED! Submit your abstract to present at AbSPORU’s 10th Annual NorthWest SPOR Collaborative Forum in Calgary, AB from May 12 - 14!
We are looking for presenters for workshops, panels, lightning talks, posters, and presentations.
⏰APPLY BY MARCH 2 tinyurl.com/abstracts2025
📣 We are now accepting nominations for the 2025 Frank Gavin Patient Engagement Leadership Awards! Help us recognize exceptional patient-partner and PWLE leadership in pediatric brain-based disability research. Learn more & apply by March 21: child-bright.ca/frank-gavin-…
ALT A colourful illustration of diverse, happy people. Text reads: 2025 Frank Gavin Patient Engagement Leadership Awards. Nominations are now open! We’re proud to launch the 4th annual Frank Gavin Patient Engagement Leadership Awards! Established in 2021, these awards recognize research partners with lived & living experience who show exceptional leadership in Canadian pediatric brain-based disability research. Find out more. Don’t wait! Submit your nominations by March 21.
Throwback to @YukonSPOR's 2024 Health Summit!
With approx 150 attendees in Whitehorse, 40 in Dawson, 30 in Old Crow, and 29 virtual, the summit was widely praised for its thoughtful execution and meaningful programming.
Stay tuned for the next one on November 4.
The @LindAlliance Critical Care Medicine Priority Setting Partnership is inviting participants to select the top 10 most important questions in critical care medicine from the perspectives of patients/families (caregivers, relatives, friends). @srinmurthy99#ICU#PICU
Our latest data provide insight into the health status of #Indigenous people aged 18 and older, aiming to enhance understanding of their well-being and the ongoing health disparities they experience: www150.statcan.gc.ca/n1/dail…
ALT Approximately half of First Nations adults living off reserve, Métis adults and Inuit adults reported their mental health as very good or excellent, compared with 61.5% of non-Indigenous adults.
Have you registered for the 2nd workshop of our patient-oriented communications series “What’s the Story?” ✨ Register today for this interactive Feb. 19 workshop on how to leverage social media platforms: tinyurl.com/28kfycz3
ALT A top-down view of a notepad and succulent on a green desk. The headshots of Rae Martens, Sierra Lynne, Michelle Wan, and Stephanie Glegg appear on the left. Text reads: What’s the Story? A patient-oriented communications workshop series. Part 2: How to use social media to do public scholarship. February 19 at 1 p.m. ET.
Have you heard? Our 2024 ‘Amplifying Impact’ report is now live!
Read all about ICR’s 2024 year-in-review, from new funding and award opportunities to our Early Career Researcher Workshop to partnerships and more!
Read it here: cihr-irsc.gc.ca/e/54190.html
In 2022, 70% of #Indigenous children aged 1 to 5 (excluding those living on reserve) had participated in at least one harvesting or cultural activity in the previous 12 months. 🔗www150.statcan.gc.ca/n1/pub/…#DiversityData
ALT Infographic on harvesting and cultural activities among Indigenous children.
Don't forget to register for “What’s the Story?”, a workshop series on patient-oriented communications! Attend all 3 events to be eligible for a certificate of participation ✨ Sign up for Part 1 on Feb. 11 & learn how to make your writing more accessible: tinyurl.com/mrxr5axx
ALT A top-down view of a notepad and succulent on a green desk. The headshots of Jacqueline Di Bartolomeo, Mathias Castaldo, and Megan Callahan appear on the left. Text reads: What’s the Story? A patient-oriented communications workshop series. Part 1: How to make your writing more accessible. February 11 at 1 p.m. ET.
👪 This winter, we’re highlighting the incredible work of our parent research partners in a new blog series! Meet Brenda Blais, a POR advocate who is passionate about bringing parents’ voices to the table: child-bright.ca/new-blog/par…
Check out our January 2025 e-newsletter for the latest SPOR Evidence Alliance updates, including research spotlights, publications, and opportunities!
mailchi.mp/smh/spor-evidence…
ALT SPOR Evidence Alliance - January 2025 Newsletter Image Card.
New publication!
The SPOR Evidence Alliance published a paper describing the co-creation and evaluation of two capacity-building courses on knowledge synthesis for patient and public partners.
Read more: jclinepi.com/article/S0895-4…
ALT Graphic promoting the publication, 'Cobuilding Patient and Public Capacity in Knowledge Synthesis: Designed and Delivered by Patient and Public Partners for Patient and Public Partners.'
[1/3] This week, we are spotlighting the patient-led project, "Models of Publicly Funded Home Care, their Characteristics and Quality: A Scoping Review."
Learn more about the impactful project: sporevidencealliance.ca/proj…
ALT Graphic for the patient-led project titled, "Models of Publicly Funded Home Care, their Characteristics and Quality: A Scoping Review."
ALT Graphic for the patient-led project titled, "Models of Publicly Funded Home Care, their Characteristics and Quality: A Scoping Review."
We invite you to register for our 2025 Research Day on Thursday, April 10, 2025. Join us as we celebrate 10 years of advancing #patientorientedresearch in Ontario with an engaging lineup of sessions and discussions! ossu25.swoogo.com/OSSU25
✏️ Are you a researcher or research partner looking to improve your ability to communicate with diverse audiences? Join us for “What’s the Story?”, a 3-part introduction to patient-oriented communications! Register today for Part 1, Feb. 11 at 1 p.m. ET: tinyurl.com/mrxr5axx
ALT A top-down view of a notepad and pencil on a green desk. Text reads: Winter 2025. What’s the Story? A patient-oriented communications workshop series. Part 1: How to make your writing more accessible. February 11 at 1 p.m. ET.