Emotional support for #parentcarers affinityhub.uk @Griffinpsych Parent Carer, Psychologist & Researcher BOOK ‘Day by Day’ ➡️ amzn.to/3k1NReK
- Tweets 4,333
- Following 2,399
- Followers 1,493
- Likes 7,566
Pinned Tweet
Hello 👋 - a bit about me and what I do at affinityhub.uk which signposts to emotional support for #parentcarers
Jo
#specialneedsparents #parentcarerwellbeing #bookstagram
2
17
Parent carers and Professionals who support parent carers - to receive info on research, services and news to do with parent carer wellbeing please sign up to the Affinityhub quarterly newsletters here:
stats.sender.net/forms/b2krR…
#parentcarerwellbeing
Affinityhub.uk
21
Affinityhub.uk retweeted
Sept 2025 🔥
Understanding Parent Blame by Dr Ana Aiello & Prof Luke Clements.
Revealing how parents are wrongly blamed by the systems meant to help them. 👀
waterstones.com/book/underst…
#ParentBlame #SocialJustice #DisabilityRights #Safeguarding #Inclusion #Neurodiversity
37
53
3,525
Delighted to present today at the EACD/IAACD on Co-production in research with family carers of people with a learning disability.
More info: warwick.ac.uk/fac/soc/cidd/r…
@EACD2025
#coproduction #parentcarers #familycarers #accessibleresearch #livedexperience
40
🎙️ #CounsellingTutorPodcast 341 is live!
🎧 counsellingtutor.com/everyda…
1️⃣ Everyday Trauma: Small ‘t’ trauma and its impact.
2️⃣ Supporting Parents of Disabled Children.
3️⃣ Facing Rejection in Counselling Training.
#TherapistLife #Counselling
43
Professionals with an interest in the psychological wellbeing of parents of disabled children - sign up to info & research quarterly newsletter here:
dashboard.mailerlite.com/for…
#parentcarers and #specialneedsparents can sign up too
#parentcarerwellbeing
Affinityhub.uk
2
1
161
My book Day by Day: Emotional Wellbeing in Parents of Disabled Children is available here:
amzn.to/3k1NReK
#CarersWeek #carersweek2025
26
Almost a third of families (31%) spend more than 10 hours per week on essential administrative tasks to ensure that their disabled child gets the support they need.
Failed and Forgotten report
Disabled Children’s Partnership
#carers #carersweek #carersweek2025 #unpaidcarers
1
3
149
My book Day by Day: Emotional Wellbeing in Parents of Disabled Children is available here:
amzn.to/3k1NReK
28
Carers week 2025 focuses on equality for carers highlighting the significant inequalities they face putting them at greater risk of poor mental and physical health, social isolation, financial hardship and poverty.
#carers #carersweek #carersweek2025 #unpaidcarers #parentcarers
3
5
257
Affinityhub.uk retweeted
Do you care for a friend or family member? Are you interested in getting involved in research that could improve health and social care?
In today's #TuesdayTips, learn more about why carers’ voices should be heard, and how you could shape research: learningforinvolvement.org.u…
13
12
745
Affinityhub.uk retweeted
The special needs trap: @johnharris1969 in @NewStatesman on his family's SEND struggles, w/ high praise for SNJ's "battle-hardened SEND veterans" "Don’t take away children’s rights, because if you do, you will have a hell of a fight on your hands.”
newstatesman.com/politics/ed…
2
20
36
4,857
Affinityhub.uk retweeted
NEW POST: The seven golden rules of co-production for researchers with guidance for working with family carers- a parent and researcher @Griffinpsych write about their experiences- and the 7 rules work for all kinds of co-production specialneedsjungle.com/co-pr…
ALT image shows graphics of people in different earthy colours with a golden 7
3
3
633
Affinityhub.uk retweeted
Are you a father of a child with a learning disability? This study is looking to include parents in their family carer steering group. Details below 👇
1
1
2
1,440
Affinityhub.uk retweeted
Are you a family carer of a child with a learning disability aged 14-17 years?
We need your help for a research project looking at annual health checks! More details below 👇
#familycarer #learningdisability
3
3
2,318
Affinityhub.uk retweeted
We’ve set out 5 Strategic Commitments for improving public partnerships, but today we’re going to take a closer look at one of these – embedding research inclusion.
A thread 🧵 (1/6)
ALT National Institute for Health and Care Research (NIHR). Embed research inclusion: Make sustained progress in widening research participation, embedding research inclusion and increasing the diversity of the public and communities who participate in, shape and deliver research. Strategic Commitments for Public Partnerships.
1
4
5
499
Professionals with an interest in the psychological wellbeing of parents of disabled children - sign up to info & research quarterly newsletter here:
dashboard.mailerlite.com/for…
#parentcarers and #specialneedsparents can sign up too
#parentcarerwellbeing
Affinityhub.uk
1
1
84
Affinityhub.uk retweeted
If you care for someone with a learning disability, you could save lives by knowing the signs of constipation and what to do. Here is an easy read leaflet for more information - england.nhs.uk/wp-content/up…
12
20
764
Affinityhub.uk retweeted
How do we define the impact of public involvement in research? How can we monitor it, evaluate it and learn from it?
Take a look at our new topic page on Learning for Involvement to learn more:
learningforinvolvement.org.u…
ALT Impact and evaluation. How do we define the impact of public involvement in research? learningforinvolvement.org.uk
6
23
1,438
Affinityhub.uk retweeted
🔎 Take a look at this infographic by NIHR @ARC_EM which illustrates some key #CoProduction activities that contribute to the long-term sustainability of health and social care innovations 👇
arc-em.nihr.ac.uk/arc-store-… #PPIE
21
35
2,173