Dystonia Medical Research Foundation@dmrf

Our mission is to advance research for improved dystonia treatments and a cure, promote awareness, and support the well being of affected individuals.

 Chicago
dystonia-foundation.org
Joined December 2008
1,387 Photos and videos
Visit the Resource Library on the new DMRF website, with informative content searchable by topic, type of dystonia, articles, brochures/fact sheets, videos and webinars. dystonia-foundation.org/ #dystonia #dmrf #dystoniafoundation
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Dystonia Awareness Month may be over, but you can keep the spirit of Virtual YOU Day alive throughout the year by building community and offering support to others who have been impacted by dystonia. #dystonia #dmrf #dystoniafoundation
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The Boston Dystonia Zoo Day is today, Oct. 4, at the Franklin Park Zoo in Boston. Check in/registration starts at 9 am; program begins at 10 am. A special thank you to all our sponsors for supporting the work of the DMRF. bit.ly/48slhd0 #dystonia #dmrf
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Rochester's Dystonia Zoo Day is today, Oct. 3, at the Seneca Park-Longhouse Shelter followed by the Seneca Park Zoo. Check in starts at 11 am; program begins at 12 pm. A special thanks to our sponsors for supporting the work of the DMRF. bit.ly/47ENgbv #dystonia #dmrf
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There are many different types of dystonia. It can appear as a symptom in a wide range of other diseases and conditions. As part of our Ask Me About Dystonia campaign we encourage you to Like and Share quick facts to show the complexity of dystonia. #dystonia #dmrf
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Boston Dystonia Zoo Day is Sun 10/4 and it’s not too late to register and join us at the Franklin Park Zoo. Meet people who understand dystonia and build lasting friendships. Check-in begins at 9 am, with the program starting at 10 am. bit.ly/48slhd0 #dystonia #dmrf
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It’s not too late to join us on Oct 3 for Dystonia Zoo Day at the Seneca Park Zoo in Rochester. Zoo Day is a chance to meet others who understand dystonia and share experiences. Check-in is 11 am, and the program starts at 12 pm. bit.ly/47ENgbv #dystonia #dmrf
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Rapid-Onset Dystonia-Parkinsonism (RDP) is a rare genetic disorder and an example of dystonia. During Sept. we’re sharing facts like this to help support those affected. Like and share to help spread awareness and encourage everyone to Ask Me About Dystonia. #dystonia #dmrf
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As the DMRF recognizes Dystonia Awareness Month, our website has officially been relaunched. It's easier to find a doctor, support group options, community events and other information about dystonia diagnosis and treatment. bit.ly/3QomM5G #dystonia #dmrf
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One day. One community. Countless opportunities to learn and connect. You can still register for DMRF’s Virtual YOU Day on Sept. 30 at 6 pm CT | 7 pm ET and discover resources that support your emotional well-being. Register free NOW: bit.ly/3RNQqEx #dystonia #dmrf
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Did you know paroxysmal dystonia causes sudden, brief episodes of involuntary movements and that it can be triggered by factors such as movement, exercise or stress? The DMRF asks you to start a conversation about dystonia. Like and share to help spread awareness. #dystonia
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Did You Know? Dystonia can sometimes develop after an injury to the body or nervous system. Symptoms may appear weeks or even months later and often involve abnormal movements or postures. Like and Share to help spread awareness and support those with dystonia. #dystonia #dmrf
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Join DMRF’s Virtual YOU Day on Sept 30! Spend the day learning from experts, connecting with others and investing in your well-being. Reserve your spot on Sept. 30 at 6 pm CT | 7 pm ET: bit.ly/3RNQqEx #dystonia #dmrf #dystoniafoundation
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Did you know musician’s dystonia is a task-specific form of dystonia that affects some people while playing an instrument? For Dystonia Awareness Month, start a conversation through this year's theme Ask Me About Dystonia. Like and share to raise awareness. #dystonia #dmrf
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Thank you to everyone who participated in the Indianapolis Dystonia Zoo Day this weekend. The Dystonia Medical Research Foundation is especially grateful for the support of our volunteers and sponsors. Photos from the event are here: bit.ly/4wjNkXQ #dystonia #dmrf
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Thank you to everyone who participated in the Michigan Dystonia Zoo Day this weekend. The Dystonia Medical Research Foundation is especially grateful for the support of our volunteers and sponsors. Photos from the event are available here: bit.ly/4wjNkXQ #dystonia #dmrf
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Did you know lower limb dystonia affects the leg, foot, and toes, causing involuntary muscle contractions and abnormal postures? For Dystonia Awareness Month, we encourage everyone to learn more and start conversations through this year's theme Ask Me About Dystonia. #dystonia
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Did you know spasmodic dysphonia (laryngeal dystonia) affects the muscles that control the voice? During Dystonia Awareness Month, encourage others to Ask Me About Dystonia. Like and share to raise awareness and amplify the voices of people living with dystonia. #dystonia #dmrf
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Did you know dystonia can occur as a symptom of other neurological, genetic, and metabolic disorders? For Dystonia Awareness Month, start a conversation through this year's theme Ask Me About Dystonia. Like and share to help spread awareness. #dystonia #dmrf
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Join the DMRF on Sept. 30 at 6 pm CT | 7 pm ET for DMRF’s Virtual YOU Day. Explore tools for managing stress, building resilience and prioritizing your well-being while living with dystonia. Registration is free! Learn more and sign up at bit.ly/3RNQqEx #dystonia #dmrf
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