I AM ALS@iamalsorg

I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS.

iamals.org/
Joined November 2018
2,342 Photos and videos
We're launching our Push for Progress campaign to accelerate ALS research, expand treatment access, & secure $1BN in federal funding over 3 years. ALS is at a tipping point CLOSE to new treatments, but thousands will lose access unless we TAKE ACTION @ iamals.org/progress
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Together, we sent 95,000+ emails to legislators for ACT for ALS this year. This bill is the fastest path to curing ALS, and it expires in 5 DAYS. Let's protect the progress it's made. Tell your legislators to reauthorize it. 🔗 bit.ly/fundALS
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I AM ALS Comedy Crew is back! 🎤✨ Six weeks of laughter, connection, and community start on October 8. We meet weekly on Zoom, 2-3 PM ET. Join us: bit.ly/crew26
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Reminder: Flag submissions are open for 2027! We invite you to submit the names of people living with ALS, familial gene carriers, and people who have passed from ALS. Request your flag at bit.ly/flags-27
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Meet Will Plews-Ogan: son, former ALS caregiver, and now marathoner with a mission! After losing Jim in July 2024, Will and his family launched @FundHummingbird. This November, Will is lacing up with Team I AM ALS to run the TCS NYC Marathon. Support Will: bit.ly/WillIAA
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ACT for ALS changed what's possible in ALS. In 2021, I AM ALS's advocacy saw it from drafting through passage, securing historic funding, wider access to therapies, and breakthroughs toward a cure. It expires next week. Let's finish what we started: bit.ly/fundALS
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I AM ALS Comedy Crew is back! 🎤✨ Join us for six weeks of laughter, connection, and community, starting October 8. Sessions meet weekly on Zoom from 2-3 PM ET. Join us: bit.ly/crew26
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Today, organizations that represent the ALS community came together to urge Senate Leadership to pass ACT for ALS before critical programs expire on September 30. Urgency is not just a talking point for people with ALS—it is our reality. Take action: bit.ly/fundALS
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If we do not reauthorize ACT for ALS, patients across the country will lose access to treatments that are keeping them alive."—Sandra, I AM ALS co-founder 800+ have received ALS therapies. Tell your senators: reauthorize ACT for ALS! bit.ly/fundALS 📸: Stephen Voss
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Today's the last day of Week of Impact! Thank you to everyone who shared their story, fundraised, and spread the word this week. We're closer than ever to a world without ALS. Let's finish strong. Donate $8 today: bit.ly/giveWOI
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“After I graduated, I realized I couldn’t go to college and be a full-time caregiver. After that, she lived for 6 months until ALS took her. My mom was so much more than her diagnosis! Forever loving and missing her”—Alexis | family member of someone we’ve lost to ALS
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Community—we're extending our Week of Impact deadline to tomorrow! We've raised an incredible $100K+ so far, and every dollar we raise gets us closer to a world without ALS. DONATE $8 today to help us hit our goal by tomorrow: bit.ly/giveWOI
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LAST PUSH: ACT for ALS expires Sept 30. Our community drafted this bill, championed it, and saw it pass in 2021. If it lapses now, people with ALS could wait months they don't have. Protect our progress toward a cure. Tell your senators: Pass the bill → bit.ly/fundALS
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ACT for ALS expires in 10 DAYS. This bill exists because of what this community has done: hundreds accessing promising ALS therapies, more coordinated ALS research & historic federal funding secured. Don't let it stall. Tell Congress to finish the job: bit.ly/fundALS
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Federal funding was low for decades, but this movement refused to accept the status quo. We doubled ALS funding at the DoD twice, and there's now a proposal to double it again in 2027, from $40M to $80M. Let's keep the momentum going. Donate today: bit.ly/giveWOI
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Thanks to YOUR advocacy, I AM ALS has helped unlock more than $1.6 billion for federal ALS research the largest investment in U.S. history. Let's keep the momentum going. Donate today: bit.ly/giveWOI
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We're on the cusp of new treatments, and every dollar brings us closer to ending ALS. 3 DAYS left in Week of Impact. Make your gift count. Donate: bit.ly/giveWOI Let's fuel the movement!
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We're close to new ALS treatments & can't slow down now. This week: 20,000+ petition signatures, 3,000+ emails & in-person visits from our co-chairs, board, and staff. Both chambers passed the bill. It expires Sept 30. Tell your senators: PASS THE BILL. bit.ly/fundALS
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99% of the way to reauthorization. That last 1% is on us. Tell your senators to finish what we started — reauthorize ACT for ALS: bit.ly/fundALS
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When we renew ACT for ALS, this community will have secured another $500 million in federal funding for ALS treatments and research. Help fund our advocacy: bit.ly/giveWOI
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🚨 You all know that ACT for ALS expires Sept 30. Tell the Senate that they MUST pass this bill — for ALS research funding, access to treatments, and progress toward a cure. Take action: bit.ly/fundALS
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