Long COVID + ME/CFS + POTS + MCAS + hEDS Former ER RN 🩺 | Patient #45 🇯🇵 McCairn–Edogawa Protocol Still fighting. Still fundraising. Still hopeful. 💗

Oregon
💕 Kelsey’s Chronic Illness Find #13 💕 🧦 Maggie’s Organics Compression Socks! Who says compression socks have to be boring?! 😍 I love finding everyday essentials that combine comfort, function, and style, and these organic cotton compression socks are a great addition to my collection! 💗 What I love about them: 🧦 Soft organic cotton 💕 Gentle graduated compression 🌸 Breathable and comfortable for everyday wear 🧳 Great for home, travel, and on-the-go 🎀 Multiple colors and patterns to choose from! Sometimes it’s the little things that make everyday life a little easier. 💗 🛍️ Shop here: amzn.to/4Ay4xPH ✨ Small finds. Bigger tomorrows. ✨ #KelseysChronicIllnessFinds #ChronicIllnessFinds #CompressionSocks #MaggiesOrganics #ChronicIllnessEssentials #EverydayComfort #FavoriteFinds 💗 Affiliate Disclosure: As an Amazon Associate, I earn from qualifying purchases. Commissions earned through my links help raise money for my ongoing medical treatments, testing, and care, at no additional cost to you. Thank you for supporting my journey! 💕
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💗 Kelsey’s Chronic Illness Find #12: Adjustable Cooling Pillow! 💗 Small Finds. Bigger Tomorrows. ✨ When you live with chronic illness and spend a lot of time resting in bed, having a comfortable pillow can make such a difference! One of my FAVORITE things about this pillow is that you can customize the firmness to fit YOUR needs! 🙌 You can remove some of the filling to make it softer or add more to make it firmer. And the best part? It comes with a storage bag to save your extra filling, so you can readjust it whenever you want! Some days my body needs more support, and other days I need something softer. I love being able to change my pillow based on what feels best for me without having to buy a completely different one! 💕 ❄️ Cooling comfort 💗 Adjustable firmness for personalized support 🛏️ Curved design for neck and shoulder support ✨ Removable, washable cover 👜 Storage bag included for extra filling Whether you're dealing with chronic pain, POTS, ME/CFS, Long COVID, or simply looking for a more comfortable night's sleep, having a pillow you can customize is such a nice option! Small thing. Big difference. 💗 🔗🛍️ amazon.com/shop/influencer-f… Affiliate disclosure: As an Amazon Associate, I earn from qualifying purchases. If you purchase through my link, I may earn a small commission at no additional cost to you. Thank you for supporting Kelsey's Chronic Illness Finds! 💗 #KelseysChronicIllnessFinds #ChronicIllnessFinds #ChronicIllness #LongCOVID #MECFS #POTS #ChronicPain #ChronicIllnessEssentials #AdjustablePillow #CoolingPillow #AmazonFinds
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💗 Kelsey’s Chronic Illness Find #11: Neck Cooling Rings ❄️ If you deal with heat intolerance, you know how quickly getting too warm can make an already difficult day even harder. These little cooling rings have become such a simple way for me to cool down without having to carry around a bulky ice pack. 🧊💕 I especially love them for hot days, appointments, travel, migraines, and those times when my POTS/dysautonomia symptoms are aggravated by the heat. They’re lightweight, reusable, comfortable around my neck, and this set even comes with an insulated carrying case! Sometimes it really is the little things that make chronic illness life a little more manageable. 💗 🔗 Amazon Link: amazon.com/shop/influencer-f… #ad | As an Amazon Associate, I earn from qualifying purchases. This is simply a product I personally use for comfort and cooling—not medical advice or a treatment for POTS, dysautonomia, migraines, or any other condition. #KelseysChronicIllnessFinds #ChronicIllnessFinds #ChronicIllnessLife #POTS #Dysautonomia #HeatIntolerance #ChronicIllness #InvisibleIllness #Accessibility #AmazonFinds #CoolingRing #SpoonieFinds
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💗 Kelsey’s CHRONIC ILLNESS FIND #10 — Bedside Table When you spend as much time in bed as I do, having the things you need within reach isn’t just convenient—it can make a huge difference. 💗 On my lowest-functioning days, there are times when I literally cannot get out of bed. I have this table positioned right beside me and use it to keep my everyday essentials close—medications, water, symptom-management supplies, chargers, and whatever else I may need throughout the day. One of my FAVORITE features is the built-in power outlets. 🔌 I can plug things in right from bed instead of getting up or bending down to find an outlet on the wall. It’s also height and angle adjustable, has extra storage, and can be positioned right where I need it. For someone else, it might just look like a bedside table. For me, it’s an accessibility tool that makes life with severe chronic illness a little more manageable. 💗 🛒 My bedside table: amazon.com/shop/influencer-f… 💗 As an Amazon Associate, I may earn from qualifying purchases at no additional cost to you. Any commissions I earn will go toward helping fund my ongoing medical treatments. Thank you for supporting my healing journey! 💗 #ChronicIllnessFinds #ChronicIllness #MECFS #LongCOVID #POTS #Dysautonomia #Accessibility #Disability #AdaptiveLiving #EnergyConservation #Bedbound #Spoonie
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💗 Kelsey’s CHRONIC ILLNESS FIND #9 — Shower Chair 🚿 This is one of those simple accessibility tools that makes a necessary part of my care a little more manageable. With Long COVID, ME/CFS, POTS & dysautonomia, standing in the shower can take an enormous amount of energy and worsen my orthostatic symptoms. At my current level of illness, I actually need a caregiver to help me shower—but sitting instead of standing still makes a huge difference. 🚿 My shower chair helps me: 💗 Conserve precious energy 💗 Spend less time standing 💗 Manage dizziness & orthostatic symptoms 💗 Reduce my fall risk 💗 Make showering more accessible When you have severe chronic illness, accessibility tools aren’t always about gaining independence. Sometimes they’re about making necessary care possible and reducing the physical toll it takes on your body. And that matters too. 💗 🛒 My shower chair: amazon.com/shop/influencer-f… 💗 As an Amazon Associate, I may earn from qualifying purchases at no additional cost to you. Any commissions I earn will go toward helping fund my ongoing medical treatments. Thank you for supporting my healing journey! 💗 #ChronicIllnessFinds #ChronicIllness #MECFS #LongCOVID #POTS #Dysautonomia #Accessibility #Disability #EnergyConservation #ShowerChair #AdaptiveLiving
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💗 Kelsey’s CHRONIC ILLNESS FIND #8 — Electric Heating Pad 🔥 This is one of those things I consider an absolute chronic illness essential. I use my electric heating pad constantly, especially for abdominal and pelvic pain, but it’s also incredibly helpful for sore muscles, back pain, neck and shoulder tension, and those days when everything just seems to hurt. It has been especially invaluable during my menstrual cycle and the premenstrual days, when my abdominal and pelvic pain can really flare. What I love about it: 💗 Helps soothe abdominal & pelvic discomfort 💗 Great for sore or aching muscles 💗 Helpful for back, neck & shoulder pain 💗 A lifesaver during menstrual & premenstrual symptoms 💗 Easy to use in bed or on the couch 💗 One of those comfort items I reach for again and again Sometimes chronic illness management is about finding simple things that make the hard days just a little more comfortable. 💗 🔥 Find it here: amzn.to/4A76GSl 💗 As an Amazon Associate, I may earn from qualifying purchases at no additional cost to you. Any commissions I earn will go toward helping fund my ongoing medical treatments. Thank you for supporting my healing journey! 💗 #KelseysChronicIllnessFinds #ChronicIllnessFinds #ChronicIllness #LongCOVID #MECFS #POTS #Dysautonomia #ChronicPain #PelvicPain #AbdominalPain #HeatingPad #PeriodPain #Spoonie #ChronicIllnessTools
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💗 Kelsey’s CHRONIC ILLNESS FIND #7 — Rolling Stool This might look like a simple stool, but it has made a huge difference in my daily life. With Long COVID, ME/CFS, POTS & dysautonomia, standing can take a ridiculous amount of energy and trigger my orthostatic symptoms. One of the biggest things I’ve learned is to sit whenever I can instead of stand. I keep this rolling stool in my bathroom and use it for things like brushing my teeth, skincare, doing my hair, makeup, and getting ready. 🪥🧴💄 Although, let’s be real… 😂 I am NOT doing my hair and makeup on a daily basis. Most days I’m lucky if I have enough energy to brush my teeth. But when I do have the energy for those things, being able to sit makes them much more accessible. 💗 What I love about it: 💗 Adjustable height 💗 Backrest for support 💗 Rolls easily so I can move around without getting up 💗 Foot ring so I can keep my feet supported 💗 Helps me conserve precious energy 💗 Makes everyday routines much more accessible Sometimes accessibility isn’t about expensive medical equipment—it’s finding ordinary things that help us adapt our environment to what our bodies can actually handle. Small changes can make a BIG difference. 💗 🛒 My rolling stool: amzn.to/4gPXf26 💗 Affiliate disclosure: As an Amazon Associate, I may earn a small commission from qualifying purchases at no additional cost to you. Any earnings will go toward helping fund my ongoing medical treatment and care. #ChronicIllnessFinds #LongCOVID #MECFS #POTS #Dysautonomia #ChronicIllness #Accessibility #EnergyConservation #Pacing #Spoonie #InvisibleIllness #Disability #AdaptiveLiving #KelseysChronicIllnessFinds
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💗 Kelsey’s CHRONIC ILLNESS FIND #6 — MASKS 😷 This one is especially important to me. After everything COVID has already taken from my health, I do everything I reasonably can to reduce my risk of another infection. I use two different masks depending on the situation: 🖤 LEVENIS KN95s — These are my everyday go-to masks. They’re disposable, comfortable, affordable, and easy to keep extras in my purse, car, wheelchair bag, or luggage. 💜 AusAir AirWeave — This is my reusable option with replaceable high-filtration filters. I love this one for travel, medical appointments, crowded places, or situations where I’ll be wearing a mask for longer periods. Plus, mine is purple, so obviously that was a selling point. 😂💜 As someone living with Long COVID, ME/CFS, POTS, MCAS, and other post-COVID complications, another infection is something I take very seriously. Masking is one relatively simple thing I can do to help protect the health and function I still have. 💗 And just a little reminder: if you see someone wearing a mask, there may be a reason you know nothing about. They may be chronically ill, immunocompromised, protecting a vulnerable loved one, or simply trying not to get sick. 🫶 A mask is a small thing, but for some of us, avoiding another infection can mean everything. 🛍️ Both masks can be found here: amzn.to/4rrEo13⁠ 💗 #ad — As an Amazon Associate I earn from qualifying purchases at no extra cost to you. Commissions help fund my ongoing medical treatment. #KelseysChronicIllnessFinds #ChronicIllnessFinds #LongCOVID #MECFS #POTS #MCAS #Masking #COVIDConscious #ChronicIllness #Spoonie #DisabilityAwareness #KelseysChronicIllnessFinds
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💗 Kelsey’s CHRONIC ILLNESS FIND #5 — Loop Earplugs 👂 Because sometimes the world is just TOO LOUD. 😵‍💫 Sound sensitivity and sensory overload can make an already exhausting day even harder, so having a way to turn down the volume of the world has become one of my chronic illness essentials. 💜 WHAT I USE — Loop Quiet 2 These are the ones I currently have, and I LOVE them for sleeping. They’re really soft and comfortable, even when I’m lying on my side, and they help reduce all of those little sounds that can keep me awake. 💖WHAT I WANT — Loop Switch 2 I haven’t tried these yet, but they’re next on my list! They have three adjustable modes — Quiet, Experience & Engage — so you can change the level of sound reduction depending on what you’re doing. I think these would be perfect for appointments, travel, crowds, restaurants, or just everyday life when I need less sensory input without necessarily blocking everything out. Sometimes conserving energy means reducing the amount of information your brain has to process too. 💗 🛒 Loop Quiet 2 — the ones I use: amzn.to/3TdOOVa 🛒 Loop Switch 2 — the ones I want: amzn.to/4qVy9Sy 💗 #ad — As an Amazon Associate I earn from qualifying purchases at no extra cost to you. Commissions help fund my ongoing medical treatment. #ChronicIllnessFinds #LoopEarplugs #SensoryOverload #SoundSensitivity #ChronicIllness #LongCOVID #MECFS #POTS #Spoonie #KelseysChronicIllnessFinds
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💗 Kelsey’s CHRONIC ILLNESS FIND #4 — Vitamin & Superfood Gummies 🍊 When you already take what feels like a pharmacy’s worth of prescription medications AND supplements every day, sometimes you just don’t want to swallow another pill. 💊 That’s one reason I love these gummies. They help reduce my pill load a little bit, and they actually taste like fruit snacks! They’ve basically become my little sweet treat when I’m craving something dessert-ish. 😂🍓 I also really like the ingredient profiles, which is important to me when choosing supplements. With chronic illness, sometimes the best finds are simply things that make something you have to do every day a little easier and more enjoyable. 💗 Less pill fatigue + something that tastes like a treat = a win for me. 🙌 💜 NEW ADDITION: I’ve also added Nütrops Functional Nootropics Gummies to my routine! These are geared toward brain/cognitive support, which definitely caught my attention with all the brain fog and cognitive issues I deal with. 🧠 They’re lemon-cloud flavored and come in the same convenient single-serving packs. 🟢 Grüns Superfoods Greens Gummies: amzn.to/4hkg5OV 🍊 Immun 13-in-1 Immunity Gummies: amzn.to/4hkg5OV 💜 Nütrops Functional Nootropics Gummies: amzn.to/4hkg5OV 💗 #ad — As an Amazon Associate I earn from qualifying purchases at no extra cost to you. Commissions help fund my ongoing medical treatment. #ChronicIllnessFinds #ChronicIllness #SupplementRoutine #LongCOVID #MECFS #POTS #Spoonie #KelseysChronicIllnessFinds
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💗 Kelsey’s CHRONIC ILLNESS FIND #3 — Visible Armband 💗 This has become one of my most useful tools for managing Long COVID, ME/CFS & POTS. Visible gives me actual, concrete data about what my body is doing—tracking things like heart rate, HRV, symptoms and activity—and helps me understand how much energy different activities take from me. For ME/CFS, it has been especially helpful with pacing. I can better recognize when my body is telling me I need to slow down and when I might have a little more capacity. With POTS, being able to see what my heart rate is doing throughout the day has been incredibly helpful too. But probably my favorite part? It helps make my invisible illness VISIBLE. 💗 Instead of constantly trying to explain what’s happening inside my body, I have real data I can show my healthcare providers and my family. They can actually see what my body is doing—even when I may look perfectly fine on the outside. For illnesses that are so often invisible, having something that turns what I’m experiencing into actual, concrete data has been incredibly valuable. It doesn’t fix my illness, but it helps me understand my body, pace more effectively, and advocate for myself. And that makes it a definite Chronic Illness Find for me. 💗 🔗 Visible Armband referral link: join.makevisible.com/6828469… 💗 #ad — Referral link. I may receive a referral benefit if you sign up through my link, at no additional cost to you. Any referral benefits help support my ongoing medical treatment. #ChronicIllnessFinds #LongCOVID #MECFS #POTS #Visible #Pacing #HRV #Dysautonomia #InvisibleIllness #ChronicIllness #KelseysChronicIllnessFinds
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💗 Kelsey’s CHRONIC ILLNESS FIND #2 — Medication & Supplement Organization 💊 One thing that makes managing all of my medications and supplements a little easier is prepping an entire month at once. When my caregiver and I organize everything, we fill FOUR weekly organizers, so I have a full month ready to go. If I’m in a crash, dealing with brain fog, or having a really low-functioning week, I don’t have to use precious energy sorting everything. Past me already did it for future me. 💗 It also helps me see what I’m getting low on so I can request prescription refills or reorder supplements before I run out. Does it guarantee I’ll remember to actually TAKE them on time? Based on my last post… apparently not. 😂🤦‍♀️ But it removes one more barrier, and I’ll take every little win I can get! 🛒 Organizer I use: amazon.com/shop/influencer-f… 💗 #ad — As an Amazon Associate I earn from qualifying purchases at no extra cost to you. Commissions help fund my ongoing medical treatment. #ChronicIllnessFinds #MedicationOrganization #ChronicIllness #BrainFog #LongCOVID #MECFS #POTS
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♿️💗 Kelsey’s CHRONIC ILLNESS FIND #1 — My Power Wheelchair I’m starting with something I get asked about ALL the time—my electric wheelchair! This chair has been an invaluable part of my chronic illness journey. With Long COVID, ME/CFS, POTS and a very limited energy envelope, it allows me to conserve precious energy while still getting to appointments, traveling, spending time with family, and participating in life. ♿️💕 It folds for transport and has traveled right along with me ✈️—including through airports like this one! And yes, I REALLY wanted the rose pink one 💕😂, but it was out of stock when I bought mine, so black/gray it was! One of the biggest things I’ve learned is that a mobility aid doesn’t take away my independence—it actually gives some of it back. A lot of people have asked where I got mine, so here’s my referral link that will also get you $50 off your first order! ♿️ oasmobility.refr.cc/campaign… 💗 Affiliate/referral disclosure: I may earn a small commission or referral benefit if you purchase through my links, at no additional cost to you. Any funds I earn through these links will go toward my ongoing treatment and medical expenses. I only share products I personally use, love, or genuinely recommend. 💕 #ChronicIllnessFinds #WheelchairUser #MobilityAids #LongCOVID #MECFS #POTS #Dysautonomia #ChronicIllnessLife #KelseysChronicIllnessFinds
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💗 Kelsey’s Chronic Illness Finds-RELAUNCH!!! Over the last few years, I’ve found so many little things that genuinely make living with chronic illness easier—comfort items, accessibility tools, organization, self-care, and everyday essentials. I’m going to start sharing some of the things I personally use and love in case they can help someone else too. 🫶 Some links I share will be affiliate links, meaning I may earn a small commission at no additional cost to you. It’s also a small way to help support me while I continue navigating treatment and recovery. 💕 If something makes chronic illness life even 1% easier, I think it’s worth sharing. Stay tuned for my first find! 💗 #ChronicIllnessFinds #ChronicIllness #ChronicIllnessLife #LongCOVID #MECFS #POTS #Dysautonomia #InvisibleIllness #ChronicIllnessCommunity #Accessibility #SpoonieLife #ThingsThatHelp #LifeMadeEasier #AffiliateLinks
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Made it to Utah! 💜🙏 Today is my appointment with Dr. Doug Jones at the Bateman Horne Center. I’m hopeful that meeting with an immunologist who understands complex chronic illness will help provide some more pieces to this very complicated puzzle. Getting here was no small thing for me, and I truly could not have done this trip alone. A HUGE thank you to Stacia for stepping up and coming with me so I could safely make this appointment. 💜😭 Your willingness to help me when I really needed someone means more than I can put into words. And thank you to EVERYONE who has supported me, donated, shared my posts, prayed for me, sent encouraging messages, or simply continued following along on this journey. Every bit of support helps make appointments and opportunities like this possible. I’ll update everyone after the appointment when I have the energy to process everything. For now… one more step forward. 🤞💜🙏 #LongCOVID #MEcfs #POTS #Dysautonomia #ChronicIllness #LongCovidRecovery ii#BatemanHorneCenter
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Heading to Utah @BatemanHorne, hoping they can help! 💖
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Kelsey Shields retweeted
Fatigue isn’t just being sleepy. It’s heavy limbs, weak muscles, brain fog, and feeling depleted before you’ve even done anything. Then deciding whether your energy goes toward showering, cooking, or leaving the house. Because doing all three isn’t an option.
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🙏💜 AN ANGEL ANSWERED MY PRAYERS! 💜🙏 I have been desperately trying to find someone to accompany me on my trip to Utah this Tuesday to see Dr. Jones at the Bateman Horne Center. With how sick I am, traveling alone simply isn't a safe option. Unfortunately, my mom, sister, Barry, and regular caregiver have all been unable to make the trip with me, despite everyone trying to help. I was honestly getting to the point where I thought I might just have to rough it and try to make the trip on my own. But here's the thing about living with severe chronic illness… My brain still thinks I can do things that my body keeps reminding me I can't. 💔 In my mind, I was telling myself I could just push through and make this trip alone if I absolutely had to. But this morning, my heart rate was already 109 BPM just trying to stand up, accompanied by palpitations and significant shortness of breath. It was in that moment that the harsh reality of what my body can and cannot do hit me like a ton of bricks. My mind may still believe I can push through and do the things I used to, but my body keeps reminding me that I simply can't. If simply standing up is that much of a struggle, imagine trying to navigate airports, flights, luggage, a hotel, and medical appointments all on my own. It's a heartbreaking reality when your mind wants so badly to be independent, but your body simply won't cooperate. I want to be able to do these things for myself, but the reality is that I need help, and trying to push through could leave me even sicker. AND THEN AN ANGEL STEPPED IN! 🥹💜 Stacia Hood, a friend of my sister Lindsey, has offered to accompany me and help care for me throughout my trip, out of the kindness in her heart! Someone who barely knows me is willing to take time out of her own life to travel with me, help me with my daily needs, and make sure I can get to this incredibly important appointment. Stacia, I cannot even begin to express how grateful I am for you! You have lifted such an enormous weight off my shoulders. Your kindness and generosity mean more to me than you could possibly know. You truly are an answer to my prayers! 💜 And a huge thank you to my sister Lindsey for connecting us and continuing to help me through all of this. I love you! 🥰 Stacia's incredibly generous offer means so much more than just having someone to travel with. She's making it possible for me to get the medical care I desperately need without having to attempt something my body simply cannot handle on its own. If anyone is able to contribute toward the travel costs of this trip, even a few dollars would mean so much. Every donation helps make this trip possible! 💜 Ways to help: GoFundMe: [gofund.me/e9732021f](gofund.me/e9732021f) GiveSendGo: [givesendgo.com/help-Kelsey-h…](givesendgo.com/help-Kelsey-h…) Venmo: [venmo.com/u/kshields08](venmo.com/u/kshields08) If you're unable to donate, sharing this post would also mean the world to me! Thank you to everyone who continues to support me, pray for me, and help me keep fighting for answers and treatment. I am so incredibly grateful for people like Stacia, who remind me that even in the hardest moments, there are still incredibly kind people willing to step up and help. Sometimes the greatest blessing isn't someone who can fix what you're going through, but someone who is willing to walk beside you through it. 🥹💜 #GratefulHeart #ActsOfKindness #LongCOVID #MECFS #ChronicIllness #Dysautonomia #BatemanHorneCenter #HelpKelseyHeal
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