Writer with ME/CFS & Lyme & son w/#MECFS & #Lyme; love to travel, read & spend time outdoors w/family & friends; write 2 blogs & author of chronic illness book.
Delaware
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Newly Updated #MECFS Treatment Summary - overview of treatments that have most helped my sons & I over the past 15 years. We now live active, semi-normal lives again! Use this info to share w/your doctor & improve your condition & quality of life, too. livewithcfs.blogspot.com/p/m…
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Many people with #MECFS and #longCOVID get worse in fall & winter in part due to infection season. Just being exposed to infections triggers immune activation. How to effectively treat infections AND improve immune function ... which helps everything! livewithcfs.blogspot.com/202…
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As if a crash and flu-like aches weren't enough to deal with on my son's wedding weekend, there is a nor'easter storm heading our way, arriving right on time for Sat (rehearsal) and Sunday (wedding). Barometric pressure affects me & I always feel worse on stormy days. Lying flat.
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5-Stars: “Awesome resource for anyone struggling w/chronic illness. Great book on the overwhelming issues of chronic diseases. For anyone who is searching for answers, this book will be a great addition to their library for coping.”
Available everywhere: livewithcfs.blogspot.com/p/m…
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Grateful Today for the online chronic illness communities. The past few weeks … the last five years … hell, the whole 25 years have been tough, and you guys have been there for me through it all. I’m hugely grateful for the support. Thank you.
What are you grateful for today?
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Roadmap to Effective Treatments for #MECFS & #LongCOVID Brief outline of ALL the treatment posts in my blog (20 yrs!) to help patients find what they need. A wide range of treatments, many inexpensive, with options addressing most aspects of the diseases:
livewithcfs.blogspot.com/202…
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Grateful Today for the first day of fall!! 🍁So grateful it was cooler today … I was able to wear jeans for the first time since spring. Grateful the heat and humidity are over (hopefully).
What are you grateful for today?
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From my book: “I’m not always able to do the big things I used to love … but I have learned that ordinary life holds many extraordinary moments of small joys.” Includes how to identify small joys in your life & create more of them. Available everywhere: livewithcfs.blogspot.com/p/m…
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Grateful Today for my podiatrist who quickly got rid of my toe pain, for my dear friend who swapped appts with me so I could get in before the wedding, for feeling well enough to get there & that I cancelled everything else this week - 100% rest now!
What are you grateful for?
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Tired of tossing, turning & waking exhausted? #MECFS & #longCOVID sleep dysfunction is caused by endocrine dysfunction & can be corrected so sleep is natural, normal & refreshing. This helps everything! Here's why & how (perfect for sharing with doctors): livewithcfs.blogspot.com/202…
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With this - and every fall/winter relapse - the underlying issue is immune dysfunction and specifically immune activation. I’ve tried pretty much everything (and some things help), but has anyone found anything effective in calming down an overactive immune system in ME? Thx
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Badly crashed - even worse today - and my son’s wedding is one week away. Terrified and devastated. I figured you all would understand.
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Cloudy with a Chance of Joy: In this post, I had just discovered TED Talks for the first time (!) & found a warm, funny, inspiring one that reminded me to slow down, take care of myself & look up at the sky once in a while. I need this reminder now! livewithcfs.blogspot.com/201…
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Dark Matter @AppleTV turned one of my all-time favorite novels into an outstanding TV show and now it's back for a 2nd season! Like the book, this #scifi thriller adaptation is twisty, unique, gripping & thought-provoking. We love it! Review & trailer:
livewithcfs.blogspot.com/202…
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Grateful Today the humidity dropped, and i could spend some time on the deck. Grateful I was able to turn off the a/c tonight and open the windows. Looking forward to a cool night’s sleep!
What are you grateful for today?
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Our Chronic Illness Story: My family's 20-year (recorded in '21) journey with chronic illnesses, incl #MECFS (an immune disorder) & multiple tick infections (#Lyme, bartonella & babesia), plus #OI & #POTS - incl. diagnoses & treatments that have helped. piped.video/watch?v=Qe0vf6E8…
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5 stars: “A must for anyone with a chronic health condition. ... very accessible & easy to read. ... super helpful in reframing my perspective on life w/chronic illness & I usually reread it several times a year when I am at a low point.” Available: livewithcfs.blogspot.com/p/m…
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Grateful Today for a quiet, restful day, for kind friends, and for the flowers blooming in my garden.
What are you grateful for today?
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How to Increase Glutathione: this essential antioxidant helps with immune function, nervous system, detox, methylation & more and is critical for those with #MECFS #Lyme #fibro #EDS This post explains what it is & how to get more: livewithcfs.blogspot.com/201…
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