Help make the 🌎 #phaware. Pulmonary hypertension (PH) is a rare, life-threatening disease of the lungs that can lead to right heart failure. 💜💙💚🧡❤️

info@phaware.global
Living with a rare disease can mean depression, isolation, and wondering if you’re even “sick enough.” PH patient Jenn Lalonde discusses imposter syndrome and mental health struggles. @phaware podcast Ep. 591 @phacanada phaware.medium.com/im-aware-…
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When Nola was first diagnosed with pulmonary arterial hypertension (PAH), she didn’t fully understand what it meant. Over time, she learned how important it is to advocate for herself and communicate with her care team. Learn more: outnumberpah.com/ #MSDPartner @MSDInvents
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Clinical Trials Matter: The Backbone of Innovation. Jean Elwing, MD examines how patients, clinicians, researchers, and industry work together to accelerate the development of new treatments while ensuring safety, scientific rigor, and meaningful outcomes. vimeo.com/1227056256
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In 1994, before there were any FDA approved treatments for PH, Lynn Bouseman was told to prepare for the end. Lynn said, “No,” she had two small daughters. Survival would require one thing above all else: a refusal to surrender. @phaware podcast ep 590 phaware.medium.com/im-aware-…
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CLINICAL TRIALS MATTER: THE BACKBONE OF INNOVATION TODAY AT 9AM PT | 12PM ET Jean M. Elwing, MD explores the critical role clinical trials play in advancing PH research. Register: phaware.global/webinars and watch the rest of the On Air with @phaware Summer Series now
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CLINICAL TRIALS MATTER: THE BACKBONE OF INNOVATION THIS TUE SEP 15 9AM PT | 12PM ET Jean M. Elwing, MD explores the critical role clinical trials play in advancing PH research. Register: phaware.global/webinars and watch the rest of the On Air with @phaware Summer Series now
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Are you #phaware? Pulmovant Announces Positive Results from Phase 2 PHocus Study of Mosliciguat in Patients with Pulmonary Hypertension Associated with Interstitial Lung Disease (PH-ILD) and Unveils Ongoing Phase 3 PHrontier Study. Learn more: ow.ly/MYyL50ZLgmC #Pulmovant
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CLINICAL TRIALS MATTER: THE BACKBONE OF INNOVATION NEXT TUE SEP 15 9AM PT | 12PM ET Jean M. Elwing, MD explores the critical role clinical trials play in advancing PH research. Register: phaware.global/webinars and watch the rest of the On Air with @phaware Summer Series now
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PH Didn't Just Change One Life, It Changed an Entire Family. Sisters Abby and Ari refused to let the PH write their Dad's ending. They turned heartbreak into hope by creating a community "Where is EB?" 5K @phaware® interview 589 @where_is_eb @teamphhope phaware.medium.com/im-aware-…
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Caregivers play an important role for those diagnosed with conditions like pulmonary arterial hypertension (PAH). When Adam’s wife, Chelsea, was diagnosed, he learned staying positive + offering support could help make a difference. outnumberpah.com #MSDPartner @MSDinvents
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CLINICAL TRIALS MATTER: THE BACKBONE OF INNOVATION TUE SEP 15 9AM PT | 12PM ET Jean M. Elwing, MD explores the critical role clinical trials play in advancing PH research. Register: phaware.global/webinars and watch the rest of the On Air with @phaware Summer Series now
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PH patient, Donna Wallace Harmon knows tomorrow isn’t guaranteed. But she refuses to live waiting for “someday.” Her motto is simple and defiant: Do the best I can when I can, because nobody knows what tomorrow holds. @phaware podcast ep 588 @phacanada  phaware.medium.com/im-aware-…
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CLINICAL TRIALS MATTER: THE BACKBONE OF INNOVATION TUE SEP 15 9AM PT | 12PM ET Jean M. Elwing, MD explores the critical role clinical trials play in advancing PH research. Register: phaware.global/webinars and watch the rest of the On Air with @phaware Summer Series now.
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4 Stories. 1 Unstoppable Message: PH Doesn’t Get the Final Word. This August on the @phaware podcast, four extraordinary women opened the door to the realities of living with PH. PH may rewrite your plans, but it does not have to write the ending. mailchi.mp/phaware/augpodcas…
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phaware® retweeted
His lungs were clear, but a chest X-ray revealed something his family never expected. In this preview of Building The Noise, Steve Van Wormer of PHAWARE shares how a substitute pediatrician discovered an enlarged heart in his son Lucas, setting the family on a pulmonary hypertension journey. Full episode drops August 31. Watch & subscribe: bit.ly/4fFIFIr #PulmonaryHypertension #PHAware #PatientAdvocacy #BuildingTheNoise
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Are you #phaware? Catch up on our On Air with phaware Summer Series of Zoom Webinars. Watch on Demand Now at: phaware.global/webinars and don't miss our next presentation: CLINICAL TRIALS MATTER: THE BACKBONE OF INNOVATION TUE SEP 15 9AM PT | 12PM ET @phaware
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