Pinned Tweet
#TheAcidTest is a worldwide patient-led #MECFS #LongCovid #VaccineInjured project using at-home devices, like GlucoRx & Edge, to measure lactate at waking & 1 hr after breakfast
An official survey to collect results will come out soon
docs.google.com/forms/d/e/1F…
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#TheAcidTest retweeted
#TheAcidTest2?
People with Long COVID and ME/CFS, would you want to participate in a study using continuous lactate monitors?
The monitor would be similar to the CGMs available now & would be provided free.
It would require daily symptom tracking & wearing the sensor for 30 days.
87%
Yes
4%
No
9%
Maybe
351 votes • Final results
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#TheAcidTest retweeted
Are there any people here who did #TheAcidTest who have also trialled Metformin for #MEcfs or #LongCovid ?
@sunsopeningband @tessfalor @IsabelRamirezRD @PutrinoLab @CiaraGlenville
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RT @tessfalor: I was so excited that today at the conference someone in the audience asked a panel about patients doing at-home lactateting…
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1st participant recruited onto our #lacticacid study. A sober reminder of debilitating severe #ME. #physios please educate yourself about #ME and #Longcovid you can cause #pwme to develop severe #ME.
45 potential participants screened, 13 fu appts arranged.
@physiosforme
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#TheAcidTest retweeted
Please contact me if you would like to get involved in this study. We know that some #pwME have high levels of lactic acid but there are no studies that identify what is normal during every day activity. We want to compare #pwme and healthy comparators. Thanks
🚨Now Recruiting
"A pilot study to explore the everyday levels of lactic acid in people with Myalgic Encephalomyelitis and healthy controls"
We are looking for 20 #pwme in N Wales, Liverpool, Manchester, Greater Manchester, Cheshire or South Lancashire
physiosforme.com/lacticacids…
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#TheAcidTest retweeted
#TheAcidTest data collection is closing!!
📢Midnight US Pacific Time Aug 18th
We are so grateful for the huge number of responses, very exciting! If anyone else wants to contribute, we hope you have enough time &spoons to do so before then, thank you!! 🙏
*Reminder info* for IRB approved study on at-home lactate blood tests in pwPEM! #TheAcidTest #LongCovid #pwME #vaccineinjured
Survey: surveymonkey.com/r/TheAcidTe…
Instructions: forms.gle/sDBr2BG8udKG4JgbA
Purchase: glucorx.co.uk/shop/glucorx-x… DM for discount code!
Sharing shipment: TBC!!
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#TheAcidTest retweeted
first few days of #theacidtest: only one measurement >2, i.e. no really concerning values. Filled circles 1h after breakfast, empty ones after waking. Method is not very robust though, remeasured the high value twice (with new lancets) and it turned out much lower.
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#TheAcidTest retweeted
Felt today nausea, dizzy and sick in general. Took my lactate and it was 9,3mmol/L! An hour later with total rest & electrolytes dropped to 4,1, but still high I guess. 1/2
#acidtest @Vickyvdtogt @tessfalor
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@theacidtesters
Day 1: fasted (12hrs) 0.9mmol/l, 1hr post breakfast (oatmeal) 1.3mmol/l
Day 2: fasted (12hrs) 1.5, 1hr post breakfast (eggs & greens) 1.1
Day 3: fasted (13hrs) 0.8, 1hr post breakfast (sweet potato, tofu, greens) 1.6
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#TheAcidTest retweeted
#TheAcidTest #LongCovid #MECFS @theacidtesters
Someone else posted their chart earlier - reminded me that I forgot to post mine.
ALT Graph comparing lactate levels on waking and post-breakfast
ALT Table showing 8 sets of lactate levels, on waking and post-breakfast
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#TheAcidTest retweeted
#TheAcidTest Day2...
#TheNicotineTest Day 34
08:20 pm
6km walk (10km total), gelato, 30º heat, 1-min jog, 4 flights of stairs.
Hr max 118.
PI 13%
Glucose 7.1 mmol/L, Lactate 1.5 mmol/L
😀😀😀🤞
#TheAcidTest Day1...
#TheNicotineTest Day 30
TLDR
Not so easy to learn.
Fingertip best.
2pm, 2 hours after breakfast.
Glucose 5.1 mmol/L, Lactate 0.7 mmol/L
Updates on page 58. See link below.
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#TheAcidTest retweeted
#TheAcidTest Update to previous tweet, 2 days of PEM following Dr.’s visit:
Day 1: 12 h post exertion 1.3
Day 2: fasting 1.5,
1 h after carb BF (oatmeal) 1.6
Before bed: 1.7
Day 3: fasting 1.3
1 h after BF (smoothie) 1.8
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#TheAcidTest retweeted
Interesting to see how my lactate rises 2 days post exertion, although I have spent the time in bed, dealing with PEM. Although it is not extremely high, I still can feel something is off.
#TheAcidTest does anyone know if the lactate produced by brain is showing in blood tests?
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#TheAcidTest retweeted
Okay my lactate strips came in so I can continue #theacidtest
Day 3
Morning: 0.5 mmol/L
slept well, mcas flaring a bit but about average PEM. HRV very good last night.
After eating: 0.7 mmol/L
Feeling pretty decent, a bit on the low energy side, but not significant PEM.
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#TheAcidTest retweeted
#theacidtest day 4
Morning: 0.6 mmol/L
14 hour fast, feeling pretty low energy, above normal PEM, HRV dropped last night
After eating: 1.3 mmol/L
Still quite low energy and a fair amount of PEM, it does seem that my lactate levels went up with the severity of my PEM today
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#TheAcidTest retweeted
@theacidtesters yesterday had a 3rd visit to the doctor in the last 6 days. Something I haven’t done in a year, therefore totally over my baseline!Lactate yesterday - 12 h after exertion - 1.3.
Fasting this morning - 1.5
1 h after carb breakfast (oatmeal) - 1.6
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#TheAcidTest retweeted
Thanks SO much to all who have used their energy on this. If we could ask a teeny bit more from you, we would ❤️ some more repeat entries: additional measurements from same person. If you have the spoons we would appreciate it #TheAcidTest could be really helpful once published!
*Reminder info* for IRB approved study on at-home lactate blood tests in pwPEM! #TheAcidTest #LongCovid #pwME #vaccineinjured
Survey: surveymonkey.com/r/TheAcidTe…
Instructions: forms.gle/sDBr2BG8udKG4JgbA
Purchase: glucorx.co.uk/shop/glucorx-x… DM for discount code!
Sharing shipment: TBC!!
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#TheAcidTest retweeted
Lactate acid testing. Day 3,1.3/1.6. Day 4, missed waking (brain fog), then 1.3 after breakfast. @tessfalor #acidtest
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#TheAcidTest retweeted
Reminder to enter your pre & post breakfast lactate readings for #TheAcidTest
If you have past ones to enter, the survey link will need to be clicked to enter the next pair of readings & ignore the wording ‘today’.
It’s ok to skip any questions you feel unable to answer ☺️
📢 Join our IRB approved survey study on home blood test results! 🩸📊 We're investigating how they relate to functioning in people with PEM. Your input matters. Contribute to research, advance understanding, make a difference. #TheAcidTest
surveymonkey.com/r/TheAcidTe…
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#TheAcidTest retweeted
#theacidtest
Day 2 readings
Morning: 0.5 mmol/L
After eating: 0.7 mmol/L
Interesting how my lactate measurements are decreasing as I recover from a crash over the weekend, I wish I had been able to take some readings while in the crash. Today I feel fairly average.
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