Researching Dysautonomias and Arrhythmias to improve patient outcomes. University of Adelaide | SAHMRI | CALHN
Adelaide, South Australia
- Tweets 37
- Following 112
- Followers 53
- Likes 84
ADARC retweeted
New 🇦🇺 data from our POTS registry: teens & adults experience POTS differently.
- Teens: worse orthostatic symptoms
- Adults: more gut & bladder issues
Both report = poor QoL.
Proud to author this work.
👉 doi.org/10.5694/mja2.52710
@ADARC_UoA @DH_Lau @sahmriAU @AustralianPots
2
5
13
316
ADARC retweeted
Thrilled to share our published study on cerebral hypoperfusion in #POTS! Findings highlight key implications for clinical management and future research into autonomic disorders.
Read more: rdcu.be/d7UFW
@sahmriAU @CelineGallaghe2 @DH_Lau @ADARC_UoA #Dysautonomia
Novel brain SPECT imaging unravels abnormal cerebral perfusion in patients with postural orthostatic tachycardia syndrome and cognitive dysfunction
🔥Elegant and interesting Australian study on POTS/Cognitive dysfunction(56 patients). #LC
➡️Moderate to severe autonomic dysfunction in 75%
➡️Abnormal cerebral blood flow (CBF) was seen in 61%
➡️There is a high prevalence of reduced cerebral perfusion in those with POTS, which is detectable with supine brain SPECT imaging and is associated with diminished quality of life.
➡️The most frequently affected areas are prefrontal lateral and sensorimotor cortices.🤔🤔🤔
➡️Reduced cerebral perfusion appears to be more prevalent in those with comorbid joint hypermobility syndrome and independent of POTS triggers.
➡️These results highlight the need for further research to delineate the etiology and mechanistic pathways underlying neurovascular dysfunction in post-viral and autonomic syndromes including long-COVID.
‼️And again…….its not “between the ears” or FND! Please take this seriously! Don’t let SarsCoV2 f.ck with your brains and Vagal nerve!
nature.com/articles/s41598-0…
5
17
50
3,592
ADARC retweeted
Excited to present the Australian POTS Registry data at #ACTA2024! Highlighting the burden of disability & QoL impacts for those with #POTS . 🙏 for the support of @SAHMRI_Heart @AustralianPots @ADARC_UoA @UniofAdelaide @SACVRN . Let’s drive change!
1
7
25
1,441
ADARC retweeted
📢 Applications are open for our 2025 Research Grant and PhD Top-Up Scholarship, supporting innovative research to improve the lives of people with POTS in Australia. 💡
🗓️ Applications close: 20th December 2024.
Learn more: potsfoundation.org.au/resear…
@ADARC_UoA @SACVRN @sahmriAU
3
7
873
ADARC retweeted
That’s a wrap for #AAS2024! Thrilled to have received the trainee poster prize for our work on cerebral hypoperfusion in #POTS. Grateful for the recognition and the research shared this year! @ADARC_UoA @AASAutonomic @sahmriAU @RBRCUniSA
1
4
15
571
ADARC retweeted
Looking forward to presenting at the 35th International Symposium on the Autonomic Nervous System #AAS2024 in Santa Barbara! Cerebral hypoperfusion is a major issue in #POTS—targeted research & funding are essential to uncover its causes. Let’s drive progress! @ADARC_UoA @AusPOTS
6
10
305
ADARC retweeted
An excellent article by @TeamSRRaj @jacquie_baker showing 👇🏻stroke volume & cerebral perfusion drives hyperventilation in #POTS This highlights the importance of targeting treatment strategies to increase volume and support circulation in #POTS
Research Update: Read new research from @teamsrraj @jacquie__baker @Avincognito @shaun_ranada Stroke Volume and Brain Perfusion Drive Postural Hyperventilation in Postural Orthostatic Tachycardia Syndrome" authors.elsevier.com/sd/arti…
10
18
810
ADARC retweeted
Dr Marie-Claire Seeley @mcseeley @UniofAdelaide is @SACVRN PhD Rising Star in Clinical Medicine & Science. Her primary research focus is postural orthostatic tachycardia syndrome (POTS) #sacvrn_awards @heartfoundation @CelineGallaghe2 Read more researchers.adelaide.edu.au/…
2
10
465
@ADARC_UoA represented in the inaugural @SACVRN research awards. 🙌Highlighting #POTS researchers who work with little 💲 to shine a light on this debilitating condition. 🙏@heartfoundation for supporting SA research. @mcseeley @AustralianPots @CelineGallaghe2 @DH_Lau
What an inspiring evening honouring our state’s top cardiovascular researchers last night! A huge thank you to everyone who made @SACVRN Research Awards possible and congratulations once again to all the winners! #sacvrn_awards @heartfoundation
5
209
ADARC retweeted
I’m thrilled to have been awarded my PhD today after what feels like a whirlwind three and a half years of study. Thank you to my awesome supervision team. @DH_Lau @CelineGallaghe2 and Amanda Page. @ADARC_UoA #POTS #LONGCOVID
15
7
60
2,148
ADARC retweeted
Thanks @JessAdamson7 for highlighting the barriers those with #POTS face in getting care in Australia. 🙏This article is behind a paywall but highlights the work of @AustralianPots @CelineGallaghe2 @DH_Lau @mcseeley adelaidenow.com.au/news/opin…
1
5
19
702
ADARC retweeted
Today I’m privileged to stand alongside Helen Eftekhari @UKPoTS to deliver two scientific presentations on #POTS at #ACNAP2024 Nurse researchers in #POTS are truely an endangered species with only a handful of us in the world. We need more of us! @AustralianPots
2
5
29
892
ADARC retweeted
Today our #LongCOVID study drew to a close. 150 amazing people who gave up their energy and time and trusted us. 🙏🏻 to @CelineGallaghe2 and @GemmaWi40814350 @ADARC_UoA researchers who gave so much time to help. #POTS is prevalent in #PASC !
3
16
74
3,021
RT @AustralianPots: Early bird registrations for our #POTS conference close on the 31st January. Get your tickets here t.co/RFdxQOh…
5
ADARC retweeted
So close to our goal! Sign the @AustralianPots petition to show support for funding for #POTS research. @ausgov “The rise in POTS diagnoses since 2020 signifies an urgent need for funding for this debilitating illness.” chng.it/Nt5qkyxG via @ChangeAUS
4
9
577
ADARC retweeted
Thrilled that this review which showcases the role of nurses in #POTS assessment and management has been published. Thanks to @CelineGallaghe2 who works tirelessly to bring this work to fruition. dovepress.com/postural-ortho…
3
12
28
1,642
ADARC retweeted
@CelineGallaghe2 and our @ADARC_UoA researchers are legends! #POTSResearch #LongCOVID #NHMRC @AustralianPots
2
9
744
>300000 people are expected to have #LongCOVID in Australia. #POTS is the major phenotype of this disorder. Still Aus. languishes with no #fundPOTS from @ausgov
Impact of Long-COVID on Australian Sufferers: Implications for Healthcare Planning - Heart, Lung and Circulation heartlungcirc.org/article/S1…
3
8
458
ADARC retweeted
Privileged to be speaking at @WASchoolNurses conference today to raise awareness of #POTS and #longCOVID amongst adolescents. #schoolnurses are at coal face of this epidemic and need better resources. @Ausgov needs to fund patient bodies like @AustralianPots to deliver these.
4
8
46
1,490