Dr Alexis Cutchins opened with a 2002 study. 94 POTS patients compared with COPD & heart failure patients - 3 conditions not often compared. Physical disability scores were equivalent. "POTS is not all in your head, and it's not, it's not an emotionally driven problem"

"Patients are experts in their own experience." A powerful reminder from Emma-Louise at #Converge2026 today. When we listen with curiosity instead of assumptions, we create better healthcare, better research and better outcomes. Healthcare needs to be patient-informed.

Big ideas. Cutting-edge research. Lived experience. Hope. #Converge2026 has officially begun, bringing together some of the world's leading voices in POTS, Long COVID, ME/CFS, dysautonomia and complex chronic illness. We'll be sharing highlights and key takeaways. Stay tuned.

As October is Dysautonomia Awareness Month we make sure we raise awareness of #PoTS every day throughout the month: 31-days of jam-packed ways to get involved! We will be: ✨Sharing daily facts ✨Hosting special webinars and events ✨Sharing powerful patient quotes & stories ✨Lighting up buildings across the UK in purple ✨Raising awareness and vital funds to support our work 👉Follow along, get involved, and help us spread the word. Together, we can build understanding, support those living with PoTS, and push for the recognition this condition deserves! 💜Let’s make PoTS visible this October. 📲 Keep an eye on this page for updates and ways you can take part! #PoTSAwarenessMonth #DysautonomiaAwarenessMonth #LivingWithPoTS #PoTSFacts #LightUpForPoTS

New 🇦🇺 data from our POTS registry: teens & adults experience POTS differently. - Teens: worse orthostatic symptoms - Adults: more gut & bladder issues Both report = poor QoL. Proud to author this work. 👉 doi.org/10.5694/mja2.52710 @ADARC_UoA @DH_Lau @sahmriAU @AustralianPots

🚨 New research supported by @AustralianPots published @EurJCardNurs: Women with #POTS report worse autonomic symptoms than men, despite equal anxiety & healthcare use. Yet face longer diagnostic delays. Led by @mcseeley @CelineGallaghe2 @DH_Lau 🔗bit.ly/4j3y0aH

📣 The APF was proud to advocate at Parliament House today with @MissingSchoolAU, championing kids with chronic illness who are missing from school. 🙏 @MeganGilmour & the team for driving this conversation! @mcseeley @CelineGallaghe2 instagram.com/p/DF_mk6vTTuQ/…

Novel brain SPECT imaging unravels abnormal cerebral perfusion in patients with postural orthostatic tachycardia syndrome and cognitive dysfunction go.nature.com/3ElLqQa

More research from @Stanford_Neuro showing the burden of #POTS and #autonomic disorders after #COVID

📢 New Australian research on #POTS! 🇦🇺 Adelaide researchers have shown cerebral hypoperfusion in POTS is common. These findings have major implications for clinical care and future research. Read more: rdcu.be/d7UFW @CelineGallaghe2 @DH_Lau @ADARC_UoA @mcseeley

Big news! 🇦🇺 officially confirms a unique ICD code for #POTS – a huge win for recognition & health policy reform. 🙏to @mcseeley & @celinegallagher for tireless advocacy & @Dysautonomia & Dr Jeff Boris for paving the way in the US. instagram.com/p/DDq6H4ZvGkN/… #POTS #Dysautonomia