CRPSA's mission is to provide support, education and hope to everyone affected by CRPS while we drive research for better treatments and a cure. Formerly RSDSA.
Milford, CT
- Tweets 7,630
- Following 932
- Followers 4,797
- Likes 1,772
The October 2026 edition of CRPSA's digital newsletter, In Rare Form, is now available: bit.ly/4xXfJCX
If you are interested in sponsoring a future issue of In Rare Form, please contact us at info@crps.org.
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8 Ways Better Policy Could Improve Life With Chronic Pain (by @US_Pain) uspainfoundation.org/news/wa…
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RSDSA is now Complex Regional Pain Syndrome Association (CRPSA)
We are excited to now align our organization’s name with the updated name of the condition in an effort to reduce confusion amongst the community and physicians: bit.ly/4h9rFeu
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9 Lessons We’ve Learned By Listening to Thousands of People With Pain (by @US_Pain) uspainfoundation.org/news/le…
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CRPSA retweeted
This #PainAwarenessMonth, learn to tell your story with clarity, confidence, and purpose—and help raise #OneVoiceForPain.
Join Christie Cox for a virtual #BuildingYourToolbox presentation, Crafting Healing Narratives, at 7:30 p.m. ET on 9/9.
Register: uspainfoundation.org/buildin…
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🎥 Rewatch our latest livestream with Dr. Salim Hayek and RSDSA Board Member Dr. Joshua Prager as they discuss having surgery when you have #CRPS: youtube.com/live/CYlcBaYifrU
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CRPSA retweeted
🚨 Governor @GavinNewsom, AB 1887 is on your desk! This bill will reduce prior authorization barriers for FDA-approved rare disease therapies—ensuring faster, lifesaving access for Californians living with rare diseases. Please sign it now! #SignAB1887
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The August 2026 edition of RSDSA's digital newsletter, In Rare Form, is now available: bit.ly/4w4yl37. This edition of In Rare Form is sponsored by Abbott.
If you are interested in sponsoring a future issue of In Rare Form, please contact us at info@rsds.org.
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The 6th annual Picklin’ for a Cure Awareness and Fundraising Pickleball Tournament will take place at Udall Park in Tucson, Arizona from October 16-18, 2026.
Learn more: bit.ly/44ODaCj
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CRPSA retweeted
Better data, research & treatments = renewed hope.
The #AdvancingResearchForChronicPainAct, introduced by @SenTimKaine, @SenKevinCramer, @AndyKimNJ, & @SteveDaines, would help strengthen research through improved #chronicpain data collection.
Learn more: uspainfoundation.org/news/fe…
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This guide walks you through the exact booking steps for Uber and Lyft, shows you which cities have service, explains your protections under the Americans with Disabilities Act (ADA), and gives you backup plans for when a WAV does not show. disabilityhelp.org/how-to-sc…
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RSDSA would love to learn more about our community members so we can better serve you. Please take a few minutes to complete our survey (and help us spread the word!): bit.ly/3Rhym5l
Participation is completely optional, and nothing will change if you do not respond.
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Check out these recent conversations on the RSDSA Message Board:
→ muhmo wants to learn more about supporting their partner who has CRPS. bit.ly/4f1Q3xv
→ fraublucher is in Georgia and is looking to connect with others in GA, SC, and FL. bit.ly/4f1GEGg
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→ sarahgonzales' thread on spinal cord stimulators has sparked tons of conversations and questions about insurance, approval, and the different brands of stimulators bit.ly/3Rs6xHx
Join the conversations, and ask your own question, by visiting messageboard.rsds.org.
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This week on the RSDSA blog we hear from #CRPS Warrior Marti Ann Ramirez who discusses the journey many go on once they are officially diagnosed, why it's okay to grieve, and how to build a meaningful life. rsds.org/the-part-about-crps…
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Researchers at UC San Diego Health are wrapping up a research study examining the efficacy of a botanical CBD extract for pain relief in individuals diagnosed with #CRPS.
Please visit the study's page on the Clinical Trials website to learn more: bit.ly/4xUeaqA
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