DTRF is the only 501(c)3 in the U.S. solely dedicated to finding a cure for desmoid tumors, a rare, intermediate (locally aggressive), soft tissue sarcoma.
Woodcliff Lake, NJ
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🎉 It’s officially Desmoid Tumor Awareness Month (DTAM)! This September, we’re proud to unveil the new DTAM logo and celebrate the story behind it: lnkd.in/ggvFdWiH
💛 Learn more: bit.ly/DTAM-2026
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📣 Register today to attend the 2026 DTRF Int'l Desmoid Tumor Research Workshop in-person or virtually on Friday, Sept. 25th in Philadelphia!
🔗 Learn more: lnkd.in/giyxT7cH
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📣 According to the @WHO - World Health Organization, desmoid tumors are classified as intermediate, locally aggressive soft tissue tumors.
Like. Share. #SpreadTheWord
Learn more: pmc.ncbi.nlm.nih.gov/article…
#DTRF #desmoid #desmoidtumor
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🆕 25+ new articles from September to mid-December have been posted on the Published Research page of the DTRF website. Thank you to @mgkumar82 - Maneesh Kumar, MD, PhD, for helping us collect these important articles.
🔗 dtrf.org/research/published-…
#desmoid #DTRF #desmoidtumors
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✨️ When desmoid tumor patients speak, the world needs to listen. Their experiences are real and their voices are courageous.
👉️ Be sure to watch until the end and let their strength inspire you. Fill the Gap today: donate.dtrf.org/DTRF-2025Fil…
#DTRF #desmoidtumor
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Today's the day! Giving Tuesday is here, and it's your chance to make a real difference for desmoid tumor patients.
⭐️ Give now: donate.dtrf.org/DTRF-2025Fil…
#DTRF #desmoid #desmoidtumors
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⭐️When Jason, desmoid tumor patient & DTRF Board Member, shared part of his story at the 2025 DTRF Annual Patient Meeting, his message was simple — and powerful.
Together, we can Fill the Gap: donate.dtrf.org/DTRF-2025Fil…
#desmoid #DTRF
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⭐️ The DTRF's Incoming Executive Director, Katie Doyle Myers and Executive Director, Lynne Hernandez, were on-site at the CTOS Annual Meeting connecting with clinical experts and industry partners who are driving progress in #desmoid tumor research.
#DTRF #desmoidtumor
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Every day, desmoid tumor patients live in the gap—
between diagnosis & answers, outdated care & new possibilities, research & the funding it needs.
✨ This is where you come in. You can #FillTheGap.
Donate today: bit.ly/DTRF-FilltheGap-2025
#DTRF #DesmoidTumorAwareness
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🎥 Watch the video of the week “Desmoid Tumor Patient Panel on Lived Experience” with three patient panelists from the 2025 Int'l Research Workshop: lnkd.in/eJcps9Db
#DTRF #desmoid #desmoidtumor
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🎥 Watch the video of the week “The Association of Pain With Function for Adult Patients With #Desmoid Tumor: Findings From the Desmoid Tumor Research Foundation Natural History Study” with Kelly Mercier, PhD from the 2025 Int'l Research Workshop: lnkd.in/eaPFrQ97
#DTRF
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🆕 25+ new articles from June, July, and August have been posted on the Published Research page on our website at DTRF.org.
Thank you to @mgkumar82 for helping us collect these important articles. 🔗 dtrf.org/research/published-…
#desmoid #DTRF
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📢 We’re proud to share that the Desmoid Tumor Research Foundation (DTRF) is featured in Newsweek's article: “Research Moves Slowly. Rare Diseases Don't—So Patients Aren't Waiting.”
Share and read the full article here: newsweek.com/research-moves-…
#DesmoidTumors #DTRF #desmoid
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Register for our upcoming education webinar entitled, “Pregnancy and Desmoid Tumors." This webinar is hosted by the DTRF with expert guests from @DanaFarber and @BrighamWomens.
Register here: bit.ly/DTRF-webinar-Oct-2025
#desmoidtumorawareness #DTRF
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✨Thank you for an incredible Desmoid Tumor Awareness Month (DTAM)!
Keep DTRF's efforts going for years to come by making a donation today: donate.dtrf.org/Give-DTRF20y…
Thank you again to our Desmoid Tumor Awareness Month sponsor, @Immunome , for their ongoing support!
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💜 Thank you to everyone who attended and participated in the 2025 DTRF “Together We Will” Weekend in Chicago!
We are grateful to our Presenting Sponsor, @SpringWorksTx , for supporting this incredible Weekend.
#desmoid #DYTRF #desmoidtumors
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Special thank you to @NorthwesternMed for hosting us!
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📣Did you know? Desmoid tumors are NOT benign.
🔗 Learn more about their classification here: dtrf.org/about-dtrf/news-upd…
Special thank you to our Desmoid Tumor Awareness Month sponsor, @Immunome, for their support.
#DTAM #DTRF #desmoidtumors #desmoid
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📢 We’re proud to share that the Desmoid Tumor Research Foundation (DTRF) is featured in Newsweek's article: “Research Moves Slowly. Rare Diseases Don't—So Patients Aren't Waiting.”
📰 Share and read the full article here: newsweek.com/research-moves-…
#DesmoidTumors #DTRF #desmoid
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