We are a patient-focused non-profit bringing technological innovations and data science to support efforts, from care to cure, for people with ALS.

Los Altos, California
EverythingALS Launches #Vision2030 AI Hub – an innovative platform leveraging AI and #machinelearning to accelerate progress towards a cure. We're charting the path to a future free from #ALS and advancing neurodegenerative disease research. #endALS #cureALS @MIT @MassGeneralNews
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💬 Have questions about Alzheimer's? You're not alone. Sometimes, getting reliable information can feel overwhelming. That's why EverythingALZ brings researchers, doctors, and other experts directly to you through our FREE Expert Talk series. These conversations help patients and caregivers better understand Alzheimer's, learn about research, and explore topics that may affect their lives. 🗓️ Our next Expert Talk is November 10 💜 No cost to attend 💜 Information explained in everyday language 💜 An opportunity to learn from experts You deserve information you can understand. Register: tinyurl.com/XETNov10 #EverythingALZ #AlzheimersResearch #PatientCenteredCare #AlzheimersPrevention #HealthcareInnovation #AlzheimersDisease #AlzheimersTreatment #ExpertTalk #CareToCure
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A major victory for the ALS community! 💙 The ACT for ALS Reauthorization Act has been signed into law, extending critical programs through 2031. EverythingALS is proud to stand alongside fellow ALS organizations in celebrating this milestone. Together, we move closer to better treatments, greater access, and ultimately a cure. @ALSHF, @youralsnetwork, ALS ONE, @LiveLikeLou4, @HerALSStory, @TargetALS_fdn, @LesTurnerALS, @HopOnACure, @MDAorg, @AnswerALS, @TeamGleason, @iamalsorg, and ALS United. #ACTforALS #EverythingALS #CareToCure
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Every person’s experience with ALS is different. Researchers are working to understand the biological factors behind these differences, exploring how genetics, environmental influences, and biomarkers can provide deeper insights into the disease. Join Us on November 11 as we welcome Dr. Veronique Belzil for an Expert Talk on Connecting the Dots in ALS: Biology, Biomarkers, and the Path Toward Precision Medicine. Discover how advances in ALS research are helping scientists better understand the disease, explore new possibilities for earlier detection, and improve how ALS is characterized and monitored over time. Because better understanding today can help shape the future of ALS research. 🗓 November 11, 2026 ⏰ 7 PM ET | 4 PM PT 💻 FREE Virtual Expert Talk 🔗 Register Now: na2.hubs.ly/H08N5pw0 #EverythingALS #ALSResearch #ALSAwareness #BiomarkerResearch #PrecisionMedicine #Neuroscience #ALSCommunity #ExpertTalk #CareToCure
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What happens when personal stories become a powerful form of ALS advocacy? Join us for our next #ExpertTalk with Mindy Uhrlaub, co-founder of Genetic ALS&FTD: End the Legacy, as she shares how memoir can raise awareness, amplify the voices of those affected by ALS, and drive advocacy. 📅 Wednesday, October 28, 2026 🕖 4 PM PT | 7 PM ET Register Now: tinyurl.com/3hnj33tp #ALS #ALSResearch #ALSTalk #ALSAdvocacy #ALSAwareness #EverythingALS #CareToCure
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Join us this Wednesday, October 21 for our next Fireside Chat, featuring a special panel with the Pathfinders!🔥 These conversations are a dedicated space for our community to come together, share real-life experiences, ask questions, and learn directly from one another. Whether you are living with ALS, caregiving, or joining us for the first time, your unique voice and story strengthen the collective knowledge and support we build together. We hope you’ll join us and our Pathfinders for an engaging, meaningful, and deeply supportive discussion. 🗓️ Wednesday, October 21, 2026 ⏰ 4 PM PT / 7 PM ET 🔗 Register here: tinyurl.com/3aw5ah7t #ALSCommunity #StrongerTogether #FiresideChat #EverythingALS #CareToCure #ALSFamily #ALSPathfinders
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Could AI voice agents make clinical research more accessible? From routine follow-ups to patient communication, the possibilities are worth exploring but safety, privacy, and trust must come first. Join Dr. Michael Weiner Oct. 27: tinyurl.com/4hc854du #AlzheimersDisease
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What could advances in Alzheimer’s testing mean for care that is more tailored to each person? Join EverythingALZ for an Expert Talk with Dr. David Soleimani-Meigooni, MD, Assistant Professor of Neurology at the UCSF Weill Institute for Neurosciences. He’ll discuss how testing and precision medicine may support personalized Alzheimer’s care. The conversation is for people living with Alzheimer’s, care partners, families, and anyone seeking to better understand this evolving area. 📆Tuesday, October 13, 2026 ⏰2:00 pm PT / 4:00 pm CT / 5:00 pm ET Register to attend: tinyurl.com/ETOct13 Please share with someone who may find this conversation helpful. #AlzheimersDisease #Alzheimers #dementia #brainhealth #caretocure #EverythingALZ #ExpertTalk
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What happens when the brain becomes part of research? Brain donation can play an important role in helping researchers better understand ALS. Join our experts on September 30 for a conversation about brain donation, its role in research, and what you should know about the process. 📅 Wednesday, September 30, 2026 ⏰ 4 PM PT | 7 PM ET Register: tinyurl.com/5ajyypsx #ALS #ALSResearch #BrainDonation #EverythingALS #CareToCure
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🧠 What if one of the most important questions in Alzheimer’s research isn't just what are we treating? It's: How are we measuring whether it works? Clinical trials rely on measurements to detect change. But not every measurement captures the same thing. And what researchers can measure can shape what they learn. That's why this conversation matters. 📅 Sept. 29 ⏰ 2 PM PT / 5 PM ET 🎙️ Dr. John Harrison 💻 Virtual Expert Talk Register: tinyurl.com/ETSept29 #Alzheimers #AlzheimersResearch #ClinicalTrials #Dementia #EverythingALZ #CareToCure #AlzheimersTreatment #neurology #BrainHealth
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ALS research cannot afford to move in silos. Vision 2030 has expanded its Scientific Advisory Board with 13 additional international leaders in ALS research, neuroscience and patient advocacy, bringing even more expertise to the race to understand how ALS progresses and charge towards a cure. Together, these experts will help guide Vision 2030’s collaboration with the Allen Institute’s Brain Health Accelerator, connecting science, technology, data, and the ALS community to help turn promising discoveries into progress faster. Because when it comes to ALS, every opportunity matters,  and every day counts. Check out our announcement here: Vision 2030 Scientific Advisory Board tinyurl.com/msvf97v8 #Vision2030 #CareToCure #ALS #Neurodegeneration #HealthTech #PatientCare
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What if we're entering a new era of #Alzheimer's treatment? Researchers aren't just asking what causes Alzheimer's. They're asking what we can change. What treatments are next? Join Dr. Lon Schneider on Sept. 15 to explore the possibilities. Register: tinyurl.com/ETSept15
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ALS research is a global effort. What does collaboration across countries look like? Join us for our next #ExpertTalk with Dr. David Taylor, Chief Scientific Officer at the ALS Society of Canada, as he shares his perspective on global collaboration in ALS research and the work being done to help disrupt ALS. 📅Wednesday, September 16, 2026 🕖4 PM PT | 7 PM ET Register Now: tinyurl.com/mpcz64f2 We hope you'll join us! #ALS #ALSTalk #EverythingALS
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Join us for our next Citizen Research session with Dr. Terry Heiman-Patterson and Dr. Lyle Ostrow. Learn how to better understand emerging ALS research, clinical trials, and the scientific evidence behind them. Wednesday, September 2, 2026 | 4 PM PT / 7 PM ET Register Now: tinyurl.com/2amzrn9c #ALS #CitizenResearch #EverythingALS
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The ALSTARS Trial continues to evolve. Join Dr. Tyrell Simkins and Dr. James Berry to hear the latest updates on the COYA 302 clinical trial and what lies ahead. Wednesday, August 19, 2026 (4 PM PT / 7 PM ET) Register now: tinyurl.com/4knmvnjd #ALS #EverythingALS #ExpertTalk #ALSResearch
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Join us for our next Citizen Research session with Dr. Terry Heiman-Patterson and Dr. Lyle Ostrow. Learn how to better understand emerging ALS research, clinical trials, and the scientific evidence behind them with guidance from leading experts. Wednesday, August 5, 2026 | 4 PM PT / 7 PM ET Register: tinyurl.com/2amzrn9c #ALS #CitizenResearch #EverythingALS
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We are excited for our next #ExpertTalk with Dr. Bryan Traynor. Join us to learn about the recent genomic and proteomic advances in ALS/FTD. Wednesday, July 22nd 2026, (4 PM PT | 7 PM ET ) Register: na2.hubs.ly/H06B2LJ0 Hope to see you there! #ALS #ALSTalk #EverythingALS
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Join us for an Expert Talk with Dr. Thomas M. Holland, MD, MS, Assistant Professor at Rush University. Learn how diet and lifestyle may support brain health. Tuesday, July 21, 2026 | 2 PM PT / 5 PM ET Register: tinyurl.com/er6wemek #BrainHealth #ALS #EverythingALS
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A powerful moment for the future of ALS: Allen Brain Health Accelerator - a $400 million investment. EverythingALS is honored to be part of this effort. It is inspiring to hear Ed Lein share $400 Million investment into this bold vision for accelerating discoveries across neurological diseases through collaboration, data, technology, and open science at the Allen Brain Health Accelerator. EverythingALS is honored to be among the partners, alongside the National Institute on Aging, AWS, and the Bezos Family Foundation, supporting this effort to better understand and treat diseases of the brain. For too long, ALS has been hindered by fragmented data, slow research cycles, and limited access to real-world patient insights. By bringing together citizen researchers, neurologists, and neuroscientists with industry and technology partners, as part of the Brain Health Accelerator initiative we have an opportunity to fundamentally change that trajectory. The future of medicine will be driven by large-scale, longitudinal, patient-centered data combined with AI-powered analysis and collaborative innovation. This is exactly the vision that drives EverythingALS, EverythingAD, and Vision 2030. We are grateful to our partners, participants, researchers, and supporters who continue to make this work possible. #BrainHealth #ALS #Alzheimers #DigitalBiomarkers #AIforGood #OpenScience #EverythingALS #EverythingAD #Vision2030 #AllenInstitute
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A landmark collaboration: EverythingALS + Allen Institute unite to accelerate ALS & brain disease breakthroughs. #OpenScience #AIforGood
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Dr. Jinsy Andrews invites you to EverythingALS' next Expert Talk, happening this week! She'll be discussing: ✨ Review of current ALS treatment options and when it may be time to consider clinical trials ✨ Break down of how to evaluate and choose the right clinical trial, including key decision factors and an overview of today’s pipeline ✨ Exploring Sava AI and how it supports trial navigation, decision-making, and continuous feedback to improve the patient experience 📅 Wednesday, April 29, 2026 ⌚ 4 PM PT / 7 PM ET 🔗 Register: rnrli.share-na2.hsforms.com/… #everythingals #alscommunity #endals #alstrials #alsresearch #peoplelivingwithALS #als #alscaregivers #motorneurondisease
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