$NWBO
A video letter to President
@realDonaldTrump
@HollensbeBrae is the young woman whose Glioblastoma story you recently shared with
@DrOzCMS.
Braelyn and her parents live ten minutes from Wednesday’s campaign stop in Clemson and would like to meet you.
“Today she’s 19 years old, attending college, living her life - and her latest MRI shows no evidence of disease.”
Braelyn receives DCVax-L, a promising personalized cancer vaccine developed by American scientists (
@NorthwestBio).
But she can’t get it in the U.S. Her family has to travel back and forth to England for compassionate use.
“For three years I fought to save my daughter‘s life and along the way I’ve discovered just how difficult it is for American patients to access promising investigational treatments - even when those treatments were developed right here in their own country.
We need to ask some very serious questions about the barriers facing smaller biotechnology companies, the influence of the pharmaceutical industry, and why patients are left waiting while promising treatments navigate years of regulatory hurdles…
…You signed right-to-try into law and I tremendously appreciate what that legislation was intended to accomplish, but I’ve learned firsthand that having the right to request a treatment doesn’t necessarily mean a patient can actually obtain it…
An American family shouldn’t have to cross an ocean to receive a promising cancer treatment developed by American scientists…”
—
@HollensbeAmanda