Incurable Colorectal Cancer 9/4/15 @fightcrc @coloncancercoal @cracking_cancer @CancerSuckLess @stupidcancer Cancer Patient Advocate Never Tell Me The Odds
Canton, NC
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Still the coolest thing ever 2 years later when Mark Hamill or Luke Skywalker wished me a happy birthday because we share a birthday and followed me
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Today is my birthday. Birthdays have never been a huge day for me, to be honest there are always complicated feelings on this day, but today this year I sit here with a feeling of thankfulness, appreciation an disbelief
I remember this day in 2016 I was facing the 3rd infusion
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Another day another trip to the cancer center for yet another appointment, sometimes it feels like a never ending ride. Most people that havent experienced this don't understand what is cancer patients deal with in the amount of time we spend going to and from appointments
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Chemo round 189. The words are difficult today because the struggle is real, the pain is high, the side effects are already on the extreme levels. Today those thoughts of how long can I do this, how much more can I endure, how many more times can I force myself to go and show up
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Chemo round 189. Its a day I don't feel like being here I don't feel like being strong or being inspiring I feel like complaining and just getting through the day.
Its okay to have days like this to just survive and get through it. These days ain't fun they aren't helpful to me
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Today it seems we only acknowledge the big events, the big news good or bad but I feel that it's so important to let others know you see them doing the work showing up and trying and especially in my world and my life I know life is to short to precious to not tell people to not
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Social media is complicated.There are a lot of bad things that can come from it but there are also so much good and helpful things. Social media changed my life in so many ways from introducing me to amazing organizations like
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200 guys all impacted by cancer coming together in the largest male cancer retreat in the world. @to_up39060 you outdid yourself thank you for everything and trusting me to deliver the keynote speech Friday
Good memories great friends new connections cold drinks and healing
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Happy birthday to my Mom. I could say so much about how hard you worked to give us a good childhood how you always showed up at practices and every game for all of us kids and step kids helping me in so many ways when I got sick and so much more
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Beyond thankful and honored for @OncNav for this honor
I'll be in person at the 17th Annual AONN+ Navigation & Survivorship Conference, where I'll the keynote speaker
Ill be speaking on my cancer journey my advocacy life and the journey it took to get here where I'm at today
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September 10th is #worldsuicidepreventionday this day means a lot to me many know over my 11 years with cancer I've dealt with mental health challenges and one of them was suicidal thoughts back in 2016/2017 when I was at my lowest. It's one of the major reasons I talk so openly
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Heading to the 5th @to_up39060 gathering for the weekend with 175+ other men who are cancer survivors/ caregivers. It's my first time being back since the second year and this year they have asked me to be a keynote speaker on Friday night. I'm excited and honored to share
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11 years I honestly don't know how I've made it here today. 9/4/15 seems like multiple lifetimes ago, thinking about where my life was back then hearing the words you have cancer to where it's at now is mind blowing
11 years since my life changed forever
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Learning what being an advocate was and about these advocacy organizations changed my life. From helping me learn more about colorectal cancer, clinical trials, AYA cancer, rural healthcare and so much more to giving me multiple communities made up of incredible survivors and
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Treatment round 188 I sit here in this chair, physically I know what's coming, the world and life seem to be on a broken rollercoaster of ups and downs that strain the mental health but through it all I show up for the 188th time an find my way back every 21 days
Showing up is
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Chemo round 188 this life with cancer is hard as hell. Life might look one way to others but you never can truly understand what someone is going through.
I try to be as transparent as possible with the good and the bad in my life, cancer has given me a purpose in advocacy,
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This week has had procedures and spirals for me personally
It's had tough news for many friends in the cancer world
It's had us as a society losing absolute icons and people that brought us so much joy and made the world at large better
It's had unimaginable natural disasters
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Cancer caused my mental health to go to a very bad place anxiety and depression made me isolate an not want to be around people or feel like I belonged anywhere or had any purpose other than being sick. It led to suicidal thoughts and me being worried an scared enough of what I
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Time for yet another appointment
Another doctor
Another screening
Another test
More waiting
More anxiety
More stress
More unknown
More weight that we as cancer patients have to deal with, an its different from other people outside the cancer world
Today it's the
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Part 2 of the content I filmed for @joindropsapp is all about mental health an how important it is to be talked about an acknowledged in cancer care but also In all of healthcare. You can see the physical challenges I've been through with cancer but the mental ones are invisible
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Day 4000 since I got diagnosed with colorectal cancer. I don't know why the clinical trial worked for me and not so many other incredible people I don't know why I'm still here but I know I'm grateful and I'm thankful to be here
I'm thankful for every person that has impacted
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In June while I was attending #ASCO some amazing people asked me to come film some content for the incredible new app they have @joindropsapp
Drops is designed around trust, Drops brings together verified clinicians, medically reviewed content, thoughtful moderation, and people
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Chemo Round #187
I sit here and look around the infusion floor I'm the youngest here yet I know I've been here the longest, I'm the youngest yet the one other patients know about an come to ask advice to. I settle into my chair the premeds start going and we are off
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about AI and using patients expertise and lived experience and so much more.
I got to see friends and meet new ones from people I see online that inspire me daily to people I've never seen before. I got to listen to passionate humans doing the work that some see and a lot that
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#cosmo2026 was an incredible experience. Medical professionals from researchers oncologist oncology nurses patient advocates and industry all came together to talk listen and learn about building trust and battling misinformation in the digital and social media world. We talked
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A decade, 10 years, 120 months ago I was waiting on the results of my scans to see if the latest line of cancer treatment was working. I knew I was running out of time and options.
The call came and it was bad news the cancer was growing faster, this was a time when I could
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Let's go back to Chicago one more time this year, this time for the #cosmo2026 conference which is all about building trust in the digital oncology age and so much more.
Social media can be great but can also be bad, it's a double edged sword in every way from information to
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The first picture 8/1/2015 the last time I felt like the guy I had known for 27 years. I had lost 75lbs since Jan 1st and was doing a CrossFit competition, looking back I knew something was wrong I had a hard spot on my abdomen that throbbed and was having bowel issues but I
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The memories hit you without warning it could be from a thought, a sound, a smell, a word or anything but instantly you're taken somewhere else. My feet are firmly on the ground by my mind my soul my thoughts are a million miles away good or bad it's all the same until after
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proud of and they frankly I deserve it as does everyone to be happy. Now to rest as I'm back to Chicago in 11 days for a conference with some incredible people
#skydiving #newjersey #nyc
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A pretty epic few days. This trip was very personal to me for many different reasons so not a bunch of details getting talked about but what an experience in every sense of the word. From sky diving to other aspects. I'm a very happy guy right now and that is something to be
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Back in the airport and off again, this time is for fun though. This time is special I'm lucky enough to get to do something I've wanted to do as long as I can remember I get to go Skydiving and I'm doing it in NJ to look at the NYC skyline thanks to some amazing friends.
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7/18/17 It was day 250 on tpn infusions no food everything instantly going into GJ drainage bag. It was scan day and just had my first actually good results, the clinical trial was working. I was beyond depressed here, had just started seeing a therapist that changed everything
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Off again ✌️ A couple different cities this trip Some important things are getting done some fun things that are a needed escape Purposely keeping it vague because well I can but no matter what if you see me in an airport you're going to see me repping the @coloncancercoalition
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Me and my mom 10 years ago at a Relay for Life event in my hometown. I was still reeling from the cancer being back and just 2 rounds of intense chemo in or 14th round overall. I had no hope here I was lost and convinced I wasn't going see age 30.
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Treatment round 186: Once you hear the words YOU have cancer your life is different in so many ways. For me I felt the loss of control, the loss of my purpose and dreams, also the loss of some of the connection to everyone I knew in my life
Almost 11 years in and I'm still
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A lot of the time in the world of cancer is a lot of bad news, it's a lot of loss it's a lot of pain it's a lot of mental emotional and physical struggles. Not just for the patient but everyone that patients life touches
While it's so important to talk about these things true
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Words are hard to come by right now never in my wildest imagination did I think I'd ever find my name on a list like this. When I decided to start sharing my life with cancer and then become a Cancer Advocate I didn't care about recognition I didn't care about being on stage or
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4 years since this video came out so thankful I was asked to take part in this amazing project
piped.video/XqG6Xiqy1rM?is=eBVs…
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Chemo round 185. I wanted the feelings and emotions to stick with me more than what I was feeling sitting in the chemo chair all the time
Sometimes I feel like I'm doing good other times I feel like the world and this life has crushed me
Sometimes I feel like Im helping others
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10 years ago I started chemo treatments again due to my cancer coming back and spreading, it was my 13th overall infusion, 5 years ago today I hit my 100th infusion and this Wednesday will be my 185th infusion of my life saving cancer killing drugs
Sometimes numbers don't do it
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A lot of days and anniversaries stick out to me and I talk about all of them because they have shaped my life with cancer and life over all but today June 16th is always the one that stands alone.
10 years ago 6/16/2016 at 2:15 I was at Duke Cancer center a appointment that
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It was good to get away a few days this weekend to welcome some guys from 3 different chapters in @to_up39060 to the Smokey Mountains members of the AYA men of diversity and pride chapters of mutc had a mini gathering and so glad I was able to make it thank you to all who helped
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10 years ago at this very time to the hour I was back sitting in my oncologist office as he was telling me the results from my CT an PET scans and biopsy results. I knew what he was going to say to to actually hear the words your cancer is back after only 51 days since I had
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It's time for @StupidCancer not another stupid challenge to raise money to help fund scholarships for AYA cancer patients and survivors to attend CancerCon next year Im trying to eat a different food each day of the month and raise 500 dollars link below
stupidcancer.rallybound.org/…
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