In utero #COVID exposure linked to brain changes, developmental delays, anxiety, and depression At 2 years, 14% of toddlers in the prepandemic group were at high risk for developmental delays, compared with 51.6% in the COVID-19 group. cidrap.umn.edu/covid-19/uter…

Talking Again in 2025 I started eating again in 2024.  After 11 years not eating a crumb of food or even drinking a drop of water.  I got all fluids and nutrition from tubes inserted into my body.  For 11 years.   In 2025 I have another big improvement to announce.   I have started ‼️ TALKING ‼️ again after 12 years of not saying a word to anyone!   What will 2026 bring❓ Talking has been truly AMAZING.  A slow process, it started when I slowly started feeling like I could talk again, but my stress response was still very high about it and it was hard to breach that stress wall and say the first words to someone.  I first talked to my best friend, who I am really close with, comfortable with and feel very safe with so my stress levels are lower with her.  I practiced talking to her on calls and video calls for about 6 months before talking to anyone else.  Then I moved on with a few more close friends.  It was hardest with my parents and caregiver because of the incredibly high stress I have been through with them in the past during my sickest years - my stress response seems to still be high with them - sensing danger likely due to a PTSD response mixed with the messed up fight or flight response in ME/CFS.  But I am now talking to everyone!  It is sooo much easier with my caregiver to just tell her what I need instead of pantomiming every little thing for sometimes a long time until she figures it out.  What a relief!  And I can have conversations with friends and loved ones!   I just said goodbye to a lifelong friend who is dying and I got to talk to her on the phone and tell her how much she means to me, the impact she has had on my life, how wonderful she is; And then say goodbye.  It was profoundly sad, but it meant the world to me that I got to talk to her and say goodbye at all.  She is not online and does not text, so it would have been so devastating not to have that last connection with her… Read, watch or listen to the whole post on my blog! whitneydafoe.com/mecfs/?post… ================= ================= #mecfs #chronicillness #pwME #LongCovid #Disability

Men i Sverige fortsätter vi med ”tvätta händerna”. 🤯🦠

Heute viel Konsens im Forschungsausschuss des Bundestags zur Ausgestaltung der Nationalen Dekade für postinfektiöse Erkrankungen. Danke Prof. @Karl_Lauterbach und Stefan Albani für Ihr großes Engagement. bundestag.de/ausschuesse/for…

A new RECOVER study of 6.4M health records shows Long COVID risk has not decreased from 2020–2024. Incidence stayed stable across variants, reinforcing Long COVID as an ongoing public health priority. Read the study: doi.org/10.1093/cid/ciaf046

PolyBio’s goal surrounding clinical trials at this Friday’s upcoming symposium: creating better pathways to conduct Long Covid trials. Check out these upcoming presentations that focus on intelligent design & advanced data analysis to drive forward treatment discovery. polybio.org/fall-2025-sympos…

Ein weiterer Austausch zur Versorgung von Betroffenen mit ME/CFS und Long COVID: Bundesgesundheitsministerin @ninawarken sprach dazu heute mit Prof. @C_Scheibenbogen und @JoergHeydecke, Geschäftsführer und Gründer der ME/CFS ResearchFoundation.

Spring/Summer feels hopeful: - RECOVER-Vital Paxlovid 25d- May-June - Yale Paxlovid 15d - Soon - Karolinska Paxlovid 15d - Soon - UCSF monoclonal antibody - Soon Multiple antivirals are being tested specifically for Long COVID Even animal models are starting to whisper hope

Fem år efter pandemins start har 280 000 personer i Sverige mellan 16 och 84 år postcovid, visar en ny Sifo-undersökning. Ändå uppger 3 av 4 svenskar att de inte känner någon som är drabbad, och mycket få svarar att de pratar om vår nya folksjukdom. covidforeningen.se/sifo-280-…

OMF's StudyME Registry Has Over 11,200 Participants! 🎉 Will You Help Us Reach 15,000? Accelerate research for #MECFS and #LongCOVID through research participation. Join OMF StudyME, and let's show the world how many people want a cure 👉 ow.ly/blsj50UAjAQ #pwME #pwLC

Die aktuellen Studien zu Skelettmuskel- und Mitochondrienschäden stellen einen wichtigen Fortschritt im Verständnis von MECFS dar und können auch Belastungsintoleranzintoleranz und PEM gut erklären. Übersichtsartikel gemeinsam mit Klaus Wirth @mitodicure dx.doi.org/10.1002/jcsm.1366…

För jämförelse ger hans kollegor i New York följande råd. ⬇️ Det verkar alltså finnas sätt att skydda sig själv och andra? (Men vad vet de i USA? Gisslén är ju från Göteborg. Jobbar på Sahlgrenska och känner Agnes Wold. Klart goa gubben har koll.)

Snart slipper stockholmare, som vill ha vaccin mot Covid 19, (men inte tillhör någon riskgrupp,) åka till andra regioner för att vaccinera sig. Region Stockholm har beslutat att icke-riskgrupper ska kunna vaccinera sig mot covid-19.

It’s the Long COVID Super Bowl, y’all!

Awesome piece by Patient-Led Research Collaborative members @julialmv and @loscharlos!! 1 in 5 drugs are prescribed off-label; #LongCovid patients need access to off-label drugs until there are FDA approved treatments! statnews.com/2024/10/24/long…

🍿MONBIOT | JACQUES | TULLER🍿 🎬@GeorgeMonbiot discussing his encounter with Prof Michael Sharpe & the biopsychosocial school when accused of being a #LongCovid super spreader! "Off the scale ridiculous"

"Those who suffer the most should be listened to the most" Excellent from @GeorgeMonbiot who describes how biopsychosocial groupthink, which took over scientists and those caring for pw #MECFS, ultimately lead to the death of patients like Maeve theguardian.com/commentisfre…

This legislation is a historic step forward for Long COVID and associated diseases, including myalgic encephalomyelitis (it is named in the BILL!) -- the proposed level of investment this bill will fund research, education, care, and more. #MECFS #pwME #LongCovid @LCMoonshot

This week in key Covid publications: —Young, healthy individuals with mild cases had objective cognitive deficits at 1-year that they did not perceive —Older, hospitalized adults with severe Covid had an equivalent of 20 years of decline in cognitive performance at 1-year follow-up —A nasal vaccine (2 doses) blocked infections for at least 3 months and was effective across 10 different variants —Reinfections increase the risk of #LongCovid —mRNA shots don't induce long-lived plasma cells, but we don't know if this is true with other vaccine platforms Reviewed in the new, updated edition of Ground Truths (link in my profile)