Rare disease advocate determined to drive a cure for VCP disease. Opinions expressed in this forum are my own and do not represent any of my organizations.
My favorite story in the Bible is where a disabled man asked Jesus to heal him, and Jesus asked to see his insurance card first. But the man was uninsured, so Jesus told him to get fucked and get a job.
We throw some good parties and you'll want to join us on August 10 for our 2024 #BBQ, #Brews & #Bingo Benefit in #maconga to celebrate @CureVCPDisease. We'll have cash bingo and a lot of other fun stuff! go.curevcp.org/2024Celebrati…
Bidding is open on a delicious family-style dinner for two at Colletta in #alpharetta. Bid today at: givebutter.com/c/2024VCPTopG…
Bidding ends Sunday, March 10 @ 3:00 PM ET. Proceeds benefit @CureVCPDisease through the Tee Off for a Cure at @TopgolfAtlanta event!
Don't miss the chance to bid on an exciting @ATLHawks vs. @hornets game package! givebutter.com/c/2024VCPTopG…
Game is on Saturday, March 23, and also includes some cool #Hawks swag. Act fast - the bidding ends on Sunday, March 10 at 3:00 PM ET! Proceeds benefit @CureVCPDisease
Bidding closes soon on these @GeorgiaTechFB and @GTBaseball baskets to benefit @CureVCPDisease. Includes signed balls and other cool swag. Check out the full details at givebutter.com/c/2024VCPTopG…
All proceeds benefit @CureVCPDisease and our scientific #research priorities.
Today is the start of @CureVCPDisease #ICANMOVEment raising funds for our gene editing project with @GenethonFr . This is my pool-walking friend "Red" Froshour that is 81 years old. We CAN ALL do something to address #RareDisease! Join my team today at: givebutter.com/2023ICanMove/…
Can't wait for tomorrow at noon! Want in on the action? Here is the 22nd year of my bracket contest: bit.ly/peckncaabracket Don't forget about my squares (23 remain) contest that benefits @CureVCPDisease bit.ly/ncaasquares for once your bracket is busted!
Really concerned about the @ATLHawks and Trae's decision-making right now. Went to the advanced stats and saw this: when it is just Trae on the floor with no Murray, it is -23.3. Poor defense, bad shots, dribble, dribble & no ball movement. You can see it, but the stats show it.
"[W]e’re all living our lives the best way we can. So, enjoy the Now. And thanks for the blip of time I’ve had being a silly, imperfect human being.”
I needed to read this today.💝 time.com/4456317/betsy-davis…
This is the value of natural history studies and will be vital in determining endpoints for future #ClinicalTrials. Join us or bid on some items at our August 20 #atlanta#event as we seek to continue funding these studies! bit.ly/vcpevent