ME/CFS San Diego are patients and/or caregivers sharing information, support for each other, and education about Myalgic Encephalitis/ Chronic Fatigue Syndrome
San Diego, CA
- Tweets 1,684
- Following 118
- Followers 413
- Likes 616
Immunoids: Human stem-cell-derived organoids incorporating functional immune cells could improve modelling of immune-tissue interactions, disease and therapeutic responses. The field is still developing. sciencedirect.com/science/ar…
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Nature Reviews Immunology 25-Year Look Ahead: Leading immunologists identify major unanswered questions and research directions. Several are particularly relevant to the scientific gaps in ME/CFS/LC research. nature.com/articles/s41577-0…
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PEM Infographic for family & caregivers: by Natasha Lee (AI assisted), covers delayed symptom worsening, unpredictable costs, crashes, loss of baseline, & why pacing matters. facebook.com/photo/?fbid=437…
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I Would Be Here If I Could, UK Art Installation: Alison Larkman's travelling Mirrorbox carries messages from people with ME/CFS & LC to places they can no longer reach, inviting visitors to listen and write back. iwouldbehereificould.com/
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U.S. ACA Coverage Cancellations: HHS canceled health insurance for 760,000 Healthcare.gov enrollees; CMS said enrollments were unauthorized. npr.org/2026/09/22/nx-s1-597…
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Disability Rights Update: Court Removes HHS Rules Protecting Community-Based Care, Amid DOJ’s Reversal on Olmstead. dredf.org/texas-v-kennedy-fi…
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Canadian Pharmacy Mail Orders: Oct. 22, new CBP rules may make routine U.S. shipments unworkable, pharmacy groups say. post-gazette.com/business/he…
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Healthcare Standards: @EmergeAus calls for standards that address stigma, recognize PEM, and ensure people with ME/CFS/LC feel believed and safe. zurl.co/aisYP
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MyGivingCircle @Invest_in_ME Vote: 428 votes needed to reach the Top 20 and share in $70,000. Voting closes Wednesday Sept 30 at 8pm BST. Vote free: mygivingcircle.org/invest-in…
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Ireland Disability Support Grant: Budget 2027 will introduce a permanent disability support payment, replacing recent one-off payments. Amount and eligibility are still to be confirmed. irishtimes.com/your-money/20…
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Open Medicine Foundation PEM Survey & Webinar: Nearly 1,700 people shared post-exertional worsening experiences. @OpenMedF webinar will present results. us02web.zoom.us/webinar/regi…
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Trigger Warning, Arnaud Denis: Person with severe ME/CFS died by euthanasia in Belgium on Sept. 22. ME Global Chronicle shares his account of healthcare and final message to fellow patients. meglobalchronicle.wordpress.…
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Simmaron NIH R01 Grant: New 5-year NIH funding will study mTOR dysfunction in ME/CFS, building on @RedefiningMECFS rapamycin research; a placebo-controlled rapamycin trial and biomarker test are also planned simmaronresearch.com
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Update @EmergeAustralia: $220K/year in government funding is at risk, could affect services for 600,000\+ Australians with ME/CFS/LC. emerge.org.au/news/bringing-…
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Dark Genome & Clonal Hematopoiesis: DNMT3A and TET2 mutations were linked to distinct inflammatory mechanisms, suggesting potential new biomarkers and treatment targets. medicalxpress.com/news/2026-…
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Autonomic Movement Disorders & Misdiagnosis: Seizure-like movements may be misdiagnosed with PNES/FND when OI isn't considered; PNES/FND can be comorbid too. frontiersin.org/journals/neu…
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TLR Immune Signaling, Boston Children’s Study: TLRs can keep triggering inflammation after their signaling complex detaches; blocking it reduced inflammation in cells and mice. medicalxpress.com/news/2026-…
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Medicaid Work Requirements Interview: Journalist seeking rural residents willing to discuss how they are affected. wildmimosatrees@proton.me for details.
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ME/CFS Care Crisis: @GeorgeMonbiot examines patients’ reports of abandonment, inappropriate treatment and outdated approaches despite updated guidance. theguardian.com/commentisfre…
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Germany Patient Organization @NichtGenesen Letter To Springer Nature: Letter criticizes Chapter 91, "Chronisches Fatigue-Syndrom," in the 2026 Verhaltenstherapiemanual – Erwachsene for stigmatizing and scientifically problematic content. drive.google.com/file/d/1_9T…
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