North American Spinal Cord Injury Consortium@NASCIC1

NASCIC has the mission to bring about unified achievements in research, care & policy by supporting efforts across the spinal cord injury community.

 North America
nascic.org
Joined August 2018
855 Photos and videos
On @U2FP_CureSCI's CureCast, Ian Burkhart, past President of NASCIC, makes the case for the SCI community to take part in the first EL-PFDD meeting for spinal cord injury. Sept 29, 10 AM to 3 PM ET. Free and virtual. @scipfdd nascic.org/generational-pfdd… #NASCIC #SCIPFDD
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September is Spinal Cord Injury (SCI) Awareness Month Still to come: Sept 18: free iBCI-CC public meeting registration closes. Sept 29: the first Patient-Focused Drug Development meeting for SCI. The FDA listens. Free, virtual. nascic.org/spinal-cord-injur… #SCIAwarenessMonth
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One week left. Registration for the 3rd Annual Meeting of the Implanted Brain-Computer Interface Collaborative Community (iBCI-CC) closes September 18. The meeting is October 16, 2026, the closing day of the #ACRM Annual Fall Conference at the Washington Hilton in Washington, DC.
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Free to attend and open to anyone who registers, in person or by @Zoom. Virtual-only registration closes October 5. The agenda includes a regulatory science block with the #FDA and a keynote from Martha J. Morrell, MD. NASCIC is a charter member. nascic.org/acrm-annual-fall-… #iBCI

ACRM Annual Fall Conference 2026 | Washington, DC

The 103rd ACRM Annual Fall Conference and EXPO is October 12 to 16 at the Washington Hilton, closing with the free 3rd iBCI-CC Annual Meeting on October 16.

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September 29: the first Externally-Led Patient-Focused Drug Development meeting for spinal cord injury. Free and virtual, 10 AM to 3 PM ET. People with #SCI and care partners tell the #FDA what matters most. nascic.org/sci-patient-focus… #SCIPFDD #NASCIC
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Living with SCI? Help shape future research 🧠 Share your experience with studies during your first year post-injury in this quick, anonymous 15-min survey. 18+, >1yr post-SCI, English speakers eligible. 👉 uthealth.questionpro.com/a/T… #SCI #SpinalCordInjury #UTHealth
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Volunteers needed! Drexel University is studying online group exercise vs. self-guided videos for people living with SCI. 18–75, SCI 1+ yr, wheelchair/mobility aid users — earn up to $200. All virtual. 📧 SCIexerciseonline@drexel.edu #SpinalCordInjury #ResearchStudy
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The future of SCI care should be shaped by people living with SCI. What matters most to you? Your voice and experiences can help shape the future of SCI research and treatment. 📅 September 29 🔗 Register: scipfdd.org/register Make your voice heard. Help spread the word.
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New from PVA: a Clinical Practice Guideline on Outcomes Following Traumatic Spinal Cord Injury. See all of PVA's CPGs 👇 pva.org/research-resources/p… #SpinalCordInjury #Veterans #PVA
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Two meetings, one week in Washington. The 103rd ACRM Annual Fall Conference and EXPO is October 12 to 16, and it closes with the 3rd iBCI-CC Annual Meeting on Friday, October 16. Full details: nascic.org/acrm-annual-fall-… #SpinalCordInjury #ACRM2026 #NASCIC
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Help shape the future of brain tech. University of Pittsburgh is running a co-design study on brain-computer interfaces — and they want input from patients, caregivers & families. 30-45 min Zoom call • $50 gift card • confidential 📧 AIF12@pitt.edu 📞 (412) 423-6051
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North American Spinal Cord Injury Consortium retweeted
The Spinal Cord Injury PFDD Initiative@SCIPFDD
Aug 19
What role does FDA play in facilitating drug development? A glimpse from our recent SCI PFDD webinar. Join us on Sept. 29 to continue the conversation and help advance patient-focused drug development for spinal cord injury. 🔗 Register: scipfdd.org/register #SCIPFDD #SCI
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Augusta University is recruiting adults living w/ spinal cord injury–related neuropathic pain for a new drug study. Must have failed 2+ pain med classes. Comp up to $3,540. Call 706-723-0106.
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FDA wants to hear from the SCI community. On Sept 29, our past-president Ian Burkhart co-leads a virtual PFDD meeting. Hear Ian break it down on @U2FP_CureSCI 's CureCast 🎧 u2fp.org/get-educated/cureca…

Wanna Talk to the FDA? (CureCast Episode 146)

We talk with Ian Burkhardt about the FDA's upcoming Patient Focused Drug Development meeting happening on September 29, 2026.

u2fp.org
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Register for meeting here: scipfdd.org/register

SCI PFDD: Spinal Cord Injury Patient-Focused Drug Development

scipfdd.org
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Sharing on behalf of UTHealth Houston: If you're living with SCI and it's been 1+ year since your injury, share your experience with research participation during that first year. Anonymous, ~15 min, helps shape future SCI studies. uthealth.questionpro.com/a/T…
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The room block for ASCIP 2026 closes Friday, August 14. September 6 to 9 in Salt Lake City, five concurrent tracks of interdisciplinary SCI/D education and up to 25 continuing education contact hours. Full details nascic.org/ascip-educational… #SpinalCordInjury #ASCIP2026 #NASCIC
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NASCIC is proud to support the SCI PFDD Meeting on Sept. 29! This free, virtual event brings the experiences and priorities of individuals with SCI directly to the FDA and treatment developers. Register: scipfdd.org/register
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Sharing this one from Western HealthSciences: a symposium on Falls Prevention in Older Adults living a with Spinal Cord Injury. Taking place in London, Ontario, Canada 🇨🇦, Sept 24–25, 2026. Attend in person or virtually from anywhere. Register 👉 uwo.eu.qualtrics.com/jfe/for…
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The 14th PVA Healthcare Summit + Expo takes place Aug 30 to Sep 2 at the Horseshoe Las Vegas. Five plenary sessions, 57 breakouts, and an Expo hall for SCI/D, MS, and ALS care teams. Details in our listing: nascic.org/pva-healthcare-su… #PVASummit #SCI
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