The Spinal Cord Injury PFDD Initiative@SCIPFDD

Nominations are open for people with SCI to participate in the Sept. 29 SCI PFDD meeting. Nominate by June 22: scipfdd.org/nominate

scipfdd.org/nominate
Joined June 2026
17 Photos and videos
The future of spinal cord injury care should be shaped by the people living with SCI. What matters most to you? Join us Sept. 29 for the SCI PFDD Meeting. 🔗 scipfdd.org/register #SpinalCordInjury #SCI #SCIPFDD #PatientVoice #SCIResearch
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The Spinal Cord Injury Patient Focused Drug Development meeting is ONE WEEK AWAY! Be a part of the conversation and register now at scipfdd.org/register #PFDD #PatientVoice #SpinalCordInjury #SCI
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🤝 Progress happens through partnership. Organizations across the SCI community are coming together to elevate the patient voice and shape the future of SCI research. Join the conversation on September 29. 🔗 scipfdd.org/register #SCI #PFDD #SpinalCordInjury
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Your voice matters. 💬 Share your SCI experience with the FDA ahead of the Sept. 29 SCI PFDD Meeting. Submit your comment: scipfdd.org/comments #SCIPFDD #SCI
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The Spinal Cord Injury PFDD Initiative retweeted
NervGen
@NervgenP
Sep 1
September is #SCIAwarenessMonth. Through the month, we'll highlight the priorities of individuals living with SCI and the science driving our work to enable the nervous system to repair itself — including the Sept. 29 @SCIPFDD Meeting. Register: scipfdd.org/register
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The Spinal Cord Injury PFDD Initiative retweeted
Lineage Cell Therapeutics@LineageCell
Sep 9
Lineage is proud to support the upcoming @scipfdd SCI Patient-Focused Drug Development (PFDD) Meeting on September 29! This free, virtual event brings the experiences of individuals with SCI directly to FDA and treatment developers. scipfdd.org/register @CEO_Culley #SCIPFDD #SCI #PFDD @reevefoundation @CIRMnews @U2FP_CureSCI @ASIA_spine @PVA1946 @NASCIC1 @UnitedSpinal @SCoBIRC
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What role does FDA play in facilitating drug development? A glimpse from our recent SCI PFDD webinar. Join us on Sept. 29 to continue the conversation and help advance patient-focused drug development for spinal cord injury. 🔗 Register: scipfdd.org/register #SCIPFDD #SCI
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The Spinal Cord Injury PFDD Initiative retweeted
North American Spinal Cord Injury Consortium@NASCIC1
Aug 4
Reminder! Our FREE SCI Patient-Focused Drug Development info webinar is tomorrow. Learn what to expect, why it matters, and how your voice can help shape the future of SCI treatments. 🕓 4–5 PM ET | 💻 Virtual Register: scipfdd.org/webinar #SpinalCordInjury #SCI #PFDD
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Today's the day! Our Informational Webinar is this afternoon. Get a preview of the Sept. 29 SCI Patient-Focused Drug Development Meeting. 🕓 Today | 4–5 PM ET / 1–2 PM PT 💻 Virtual & Free Register: scipfdd.org/webinar
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Our SCI PFDD informational webinar is TOMORROW! Thinking about attending the SCI Patient-Focused Drug Development Meeting on Sept. 29? Join us to learn what to expect and why your voice matters. Register: scipfdd.org/webinar #SCI #PFDD
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Together, we have a stronger voice. Join us this Wednesday, Aug. 5 at 4 PM ET / 1 PM PT for an informational webinar about the upcoming SCI PFDD Meeting (Sept. 29). Learn what to expect and how your voice can make a difference. Register: SCIPFDD.org/register #SCI #PFDD
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The agenda is set for the SCI PFDD Meeting on Sept. 29! Explore the topics we'll cover and join our Aug. 5 informational webinar to learn what to expect. 🔗 scipfdd.org/register #SCI #SCIPFDD #PatientVoice
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📅 Save the Date! Registration is now open for the SCI Patient-Focused Drug Development (PFDD) Meeting on Sept. 29. Interested in learning more before the meeting? Join our free informational webinar on Aug. 5. 🔗 scipfdd.org/register #SCI #PFDD #SpinalCordInjury
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Prepare for the SCI PFDD Meeting with our FREE informational webinar on Aug. 5. Presented in partnership with organizations across the SCI community, this webinar will help you get informed before the Sept. 29 event. 🔗 scipfdd.org/webinar #SCI #PFDD #SpinalCordInjury
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📢 Join us for a FREE informational webinar before the SCI PFDD Meeting on Sept. 29! Learn what the meeting is, what to expect, and how to prepare. 🗓 Aug. 5 🕓 4–5 PM ET (1–2 PM PT) Register: scipfdd.org/webinar #SCI #PFDD #SpinalCordInjury
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📣 Final call! Today is the last day to submit a nomination for the SCI PFDD Meeting. Nominate yourself or someone you know: scipfdd.org/nominate #SCIPFDD #SCI #PFDD
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📣 We need your voice! Living with SCI—or know someone who is? Help shape the conversation on September 29. Submit a nomination by June 22: scipfdd.org/nominate #SCIPFDD #SCI #PFDD
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Want to help shape the future of SCI treatment development? The SCI PFDD Meeting on Sept. 29 will bring SCI community perspectives directly to the FDA, researchers, and treatment developers. Nominate by Monday, June 22: scipfdd.org/nominate #SCIPFDD #SCI #PFDD
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🚨 One week left to nominate yourself or someone you know for the SCI PFDD Meeting on September 29. Help ensure future treatments reflect what matters most in daily life. Nominations close June 22: scipfdd.org/nominate #SCIPFDD #SpinalCordInjury
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The Spinal Cord Injury PFDD Initiative retweeted
North American Spinal Cord Injury Consortium@NASCIC1
Jun 12
Nominations are open for people with #SpinalCordInjury and care partners to share their experiences during the virtual SCI PFDD Meeting on Sept. 29. Nominate yourself or someone you know by June 22: scipfdd.org/nominate #SCIPFDD
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