Project ALS@ProjectALSorg

Project ALS identifies and funds the most promising scientific research that will lead to the first effective treatments and, ultimately, a cure for ALS.

 New York, NY
projectals.org
Joined January 2010
Fall is officially here, and so is your new favorite layer. 🍂 Make it clear how you feel about ALS while staying warm and dry in our new ALS Hater windbreakers. Shop the new ALS Hater windbreakers here: bit.ly/4rBOMmD
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A donor-advised fund is a charitable giving account that lets you set aside funds now and recommend grants to nonprofits you care about over time. By recommending a grant to Project ALS, you can help support the collaborative research moving us closer to a future without ALS.
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Meet Riley. This November, she will be taking to the streets of New York City with the rest of #TeamProjectALS at this year’s #NYCMarathon in honor of her grandmother, who lost her battle with #ALS. Cheer Riley on and support her run here: bit.ly/4y9qfry! 📢
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The news we have dreamed of is finally here: the Phase 3 FUSION trial for ulefnersen, the treatment that began as jacifusen, met its primary endpoint. This is history-making news for FUS-ALS. Learn more: bit.ly/4zcHKaT
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If you could ask an ALS researcher one question, what would it be? Maybe it’s about a clinical trial, a specific gene, why some treatments work for some people and not others, or maybe your question is simply, “What’s taking so long?”
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Team Project ALS is officially headed back to the TCS New York City Marathon! 41 incredible runners will take on 26.2 miles through New York City with one shared goal: supporting the research working toward effective treatments and a cure for ALS. #TeamProjectALS #NYCMarathon
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Jenifer’s legacy lives on in every step we take toward a future without ALS. We will not stop pushing the science forward and fighting this disease until there are effective treatments and a cure. Donate to support ALS research: projectals.org/?form=donate
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The Project ALS Therapeutics Core is studying protein toxicity—the protein clumps that form in neurons not only in #ALS, but all neurodegenerative diseases. What we’re learning about protein toxicity at the Core informs drug discovery across these diseases.
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We want to hear from those living with ALS: If you could save one part of yourself from the ravages of ALS, what would it be? This is a safe space for discussion, and there’s no right answer. Share with us in the comments. 🫂
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There’s a lot happening in the search for effective treatments and a cure for ALS. Stay in the know with our latest research, Project ALS Therapeutics Core updates, community stories, events, and more. Join our mailing list: bit.ly/3RZOYyV 📩
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Just over a week ago, @isaacboots dedicated his Ice Bucket Challenge to Project ALS after the Hamptons got TORCH’D for ALS research! 🧊🔥 Thank you to everyone who broke a sweat and donated to help fund ALS research.
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About 90% of people with ALS have no family history of the disease. The Project ALS Therapeutics Core is using AI to study samples from people with sporadic ALS, identify potential subtypes, and explore which targeted therapies may work for whom.
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ALS affects motor neurons, the critical nerve cells in the brain and spinal cord that enable movement. But these cells can’t be biopsied to study in a lab. So how can we investigate what is happening to a motor neuron inside a person living with #ALS?
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Project ALS is concerned by proposed cuts to the National Institutes of Health (NIH). Science is our most powerful tool in the fight against disease. NIH funding— over $47 billion annually— has been vital in advancing ALS research, including at the Project ALS Therapeutics Core.
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Discover the critical work shaping the future of Project ALS research at our Town Hall. Join us as we discuss emerging disease models, motor neuron rejuvenation, and the development of potential therapies for ALS. Sign up for the virtual town hall today: bit.ly/497iCX8
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Join us Nov. 14th at 11AM for The Alex and Jaci Hermstad Rare Disease Trailblazer Series. Hear from patients, families, advocates, and scientists working together toward a future free of ALS. Register: bit.ly/3Uui0Vp
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Join us on October 22nd at City Winery NYC for An Evening with Aaron Lazar—a night of music, laughter, and inspiration to benefit Project ALS Research. 🎤✨ Doors open at 6:30 PM! Join the experience today: bit.ly/3ZdmnXY
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Project ALS Core's Dr. Tulsi Patel is such a great example of women kicking some serious a**. Dr. Patel was at Gordon Conference, an international research forum, in Tuscany Italy this week repping Project ALS. Get your @HerALSStory collab tee: bit.ly/46Czhk3
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Project ALS recognizes the US Department of Defense for its critical ongoing support of ALS research. Did you know that service members are more likely to get ALS? Learn more: cdmrp.health.mil
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With no cure, it can be hard to have hope for a future free of ALS. Project ALS understands this frustration. Our Director of Research, Valerie Estess, discusses the 26-year journey of Project ALS and what's next in our research efforts: bit.ly/3KQrwgr
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Celebrate #LouGehrigDay by purchasing the @RotoWear Baseball is the Best tee and the @SlangsOnSports limited edition card slab illustrated by @PootPoot. Let's strike out ALS. Get your limited edition items today: bit.ly/4aHj7pO
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On May 22, Project ALS will hold a Town Hall at Kimmel Center for University Life (NYU) at 5:30 PM (doors open at 5) to discuss why drugs don’t work in ALS and what we as a community do about it. RSVP by May 20th here: bit.ly/44yt07Z Bring your questions!
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It's no secret that ALS is not widely known or is thought of as an 'older white man's disease'. Many people you know, like the women of Her ALS Story, may have already been affected by ALS, and someone you know could be diagnosed. #ALSawarenessmonth
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Hot on the trail! Wednesday the Project ALS Therapeutics Core met with Cornell’s Giovanni Manfredi and Hibiki Kawamata Fujita and George Mentis (Columbia) to devise next steps in its intensive study of a new gene that may drive ALS. #ENDALS
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We want to hear from YOU. What questions do you want answered? What are you wanting to hear from Project ALS? Take the survey today: bit.ly/4cvtjEa
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Join us for our annual Women & The Brain event. Our special guest Dr. Gayatri Devi will lead a dynamic discussion on how stress affects the brain, provide practical takeaways for dealing with stress, and answer your questions. Get your ticket today: bit.ly/3TbG3bf
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Don't miss your chance to hear from neurologist and special guest, Dr. Gayatri Devi MD, MS, FAAN. She will will lead a dynamic discussion on how stress affects the brain and answer questions. Get your ticket today: bit.ly/3TbG3bf
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Women & The Brain: Stress on Your Brain is your chance to understand stress and release it! Guest expert, neurologist Dr. Gayatri Devi, leads a dynamic discussion, then we de-stress, with great food, drinks, bowling and fun! Get your ticket today: bit.ly/3TbG3bf
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Just two months after the announcement of prosetin's approval for Phase 1 in people living with ALS kicking off in Canada, prosetin has now received European authorization for the first study in people living with ALS. Read the full press release here: bit.ly/3HW4q6q
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There were so many fundraising efforts to celebrate this last year. Be proud of everything we've achieved and get ready for more work in 2024. Read our full 2023 highlights here: bit.ly/47P1Pqn
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Brighten your home for the holidays while helping to end ALS. 100% of profits from your purchase of A Langs Star go toward developing the first effective treatments and a cure for ALS. Get yours or gift one today: starsforsarah.org
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For #GivingTuesday enter to win a personalized video greeting or zoom meet-and-greet from Project ALS advocates @BenStiller and Christine Taylor. Donate $250 for a personalized video entry and $500 for a meet-and-greet entry by December 20th to qualify: bit.ly/46zOfFG
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Today we are thankful that, as never before, ALS research is fueling new drug discovery. It's because of you that we are closer than ever to finding the first effective treatments and a cure. Thank you to our Project ALS family who have made all of our progress possible.
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Couldn’t join us for the 2023 Trailblazer series? You can still watch the entire event on demand here: bit.ly/46nMhc3 You won't want to miss the remarkable achievements of this year's award recipients, with opening remarks from Christine Taylor and Ben Stiller.
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We've partnered with another women-run organization near and dear to our heart. @HerALSStory is made up of so many women that remind us of our founder Jenifer through their unacceptance to let ALS win. Get your limited-edition t-shirt today: bit.ly/3PUnSFF
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We’re excited to announce that we have partnered with Roon (roon.com) to create a free platform for people navigating ALS. Roon consists of short-form Q&A videos from ALS experts (including Project ALS's own Erin and Valerie). Check it out!
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Today is #NationalNonprofitDay and we're proud to share that we continue to use 88% of every dollar donated towards Project ALS research programs to find the first effective treatments and a cure for ALS. Make your impact today: bit.ly/3FOKuRy
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Diagnosed with ALS at 28-years-old, A Langs Star is inspired by @SlangsOnSports bright spirit. It's an honor to celebrate all the things Sarah has done for baseball and ALS awareness. Get your star today: starsforsarah.org
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Don't miss out on this @RotoWear t-shirt created to support @SlangsOnSports who always reminds us, baseball is the best. This initiative has raised over $57,000 for our cutting-edge ALS research! Pre-order your Baseball is the Best t-shirt today: bit.ly/3NcmIDN
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A big THANK YOU to @jimmykimmel, @NickKroll, @SarahKSilverman, @PattonOswalt, @RealJeffreyRoss, @IamGuillermo, and @MarkRober for a spectacular night at @KimmelsComedy in honor of Joey Porrello and in support of Project ALS research.
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For #ALSAwarenessMonth we are sharing 4 distressing facts you may not know about ALS. Learn more about ALS and the research we are doing to find effective treatments and a cure: projectals.org/research/
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A mustache is worth a thousand words. Join @SantinoFontana and take the vow of silence this Sunday for the Don't Talk-A-Thon and honor those who have been robbed of their voices by ALS. Create your fundraising page or donate here: bit.ly/3oeVsem
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What Brooke said 👀 Create your fundraising page or donate here: bit.ly/3MaWLmE
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The Don't Talk-A-Thon is under a week away and there are many ways you can still get involved! You can donate, join or create a fundraising team, or share your story and raise awareness. Together, we will find effective treatments and a cure: bit.ly/3GFTHNe
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By participating in the Don’t Talk-A-Thon you’re honoring those who have been robbed of their speech due to ALS. Join us on May 21st and be a part of silencing ALS for good. Together, we will find a cure. Create your fundraising page: bit.ly/3pEuuNm
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To honor her grandfather then 9-year-old Avery Niedrowski took a vow of silence and raised thousands of dollars for Project ALS—kicking off what is now the annual Don't Talk-A-Thon. Who are you honoring? Create your fundraising page here: bit.ly/3O0Dgzq
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Just because ALS robs you of your speech, doesn't mean your voice can't be heard. Join those, like Desi and her daughter, for the Don't Talk-A-Thon and be a part of silencing ALS. Create your fundraising page here: bit.ly/3HRGotH
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Join #tonyawardwinner Danny Burstein in honoring people, like his beloved wife and three-time #tonyawardnominee Rebecca Luker, and continue their fight towards finding effective treatments and a cure for ALS. Take the vow and create your fundraising page :bit.ly/42puHlO
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"Honored to be taking part in the Don’t Talk-A-Thon benefiting Project ALS in memory of my dad, especially today which would’ve been his 62nd birthday." Join Hunter in the fight and create your fundraising page today: bit.ly/3NxhjYO
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Join us as we honor Joey Porrello's tenacious fight against ALS and his dedication to the ALS community. Hosted by @jimmykimmel, with performances by @SarahKSilverman, @realjeffreyross, @nickkroll, an appearance by @MarkRober and surprise guests. Reserve: bit.ly/40OSQRN
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