Project ALS identifies and funds the most promising scientific research that will lead to the first effective treatments and, ultimately, a cure for ALS.
New York, NY
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A donor-advised fund is a charitable giving account that lets you set aside funds now and recommend grants to nonprofits you care about over time.
By recommending a grant to Project ALS, you can help support the collaborative research moving us closer to a future without ALS.
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Meet Riley. This November, she will be taking to the streets of New York City with the rest of #TeamProjectALS at this year’s #NYCMarathon in honor of her grandmother, who lost her battle with #ALS.
Cheer Riley on and support her run here: bit.ly/4y9qfry! 📢
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The news we have dreamed of is finally here: the Phase 3 FUSION trial for ulefnersen, the treatment that began as jacifusen, met its primary endpoint.
This is history-making news for FUS-ALS. Learn more: bit.ly/4zcHKaT
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Team Project ALS is officially headed back to the TCS New York City Marathon!
41 incredible runners will take on 26.2 miles through New York City with one shared goal: supporting the research working toward effective treatments and a cure for ALS.
#TeamProjectALS #NYCMarathon
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Jenifer’s legacy lives on in every step we take toward a future without ALS. We will not stop pushing the science forward and fighting this disease until there are effective treatments and a cure.
Donate to support ALS research: projectals.org/?form=donate
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The Project ALS Therapeutics Core is studying protein toxicity—the protein clumps that form in neurons not only in #ALS, but all neurodegenerative diseases.
What we’re learning about protein toxicity at the Core informs drug discovery across these diseases.
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We want to hear from those living with ALS: If you could save one part of yourself from the ravages of ALS, what would it be? This is a safe space for discussion, and there’s no right answer.
Share with us in the comments. 🫂
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Just over a week ago, @isaacboots dedicated his Ice Bucket Challenge to Project ALS after the Hamptons got TORCH’D for ALS research! 🧊🔥
Thank you to everyone who broke a sweat and donated to help fund ALS research.
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About 90% of people with ALS have no family history of the disease. The Project ALS Therapeutics Core is using AI to study samples from people with sporadic ALS, identify potential subtypes, and explore which targeted therapies may work for whom.
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This past Sunday, July 26th, we celebrated the Americans with Disabilities Act (ADA) 36th Anniversary.
Project ALS is proud to support the Americans with Disabilities Act (ADA) 36th Anniversary. Learn how you can too, here: adaanniversary.org #ADA36 #ThanksToTheADA
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sorry we forgot our password.
we were also a bit busy continuing our mission of finding and funding a cure for #ALS.
anyway, we're back.
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ALS affects motor neurons, the critical nerve cells in the brain and spinal cord that enable movement. But these cells can’t be biopsied to study in a lab. So how can we investigate what is happening to a motor neuron inside a person living with #ALS?
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@RotoWear once again proving what's possible when we come together as a community. Thank you for all you do to fight ALS. ❤️
We’re proud to have donated $167,312.32 to @ProjectALSorg so far with proceeds from our Baseball Is The Best shirt! Thank you to everyone who purchased a shirt in support of @SlangsOnSports and helped in the mission to end ALS.
🔥👕 available only at:
rotowear.com/products/baseba…
👇 donate directly:
projectals.org/?form=donate
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Join us Nov. 14th at 11AM for The Alex and Jaci Hermstad Rare Disease Trailblazer Series. Hear from patients, families, advocates, and scientists working together toward a future free of ALS.
Register: bit.ly/3Uui0Vp
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Join us on October 22nd at City Winery NYC for An Evening with Aaron Lazar—a night of music, laughter, and inspiration to benefit Project ALS Research. 🎤✨ Doors open at 6:30 PM!
Join the experience today: bit.ly/3ZdmnXY
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Project ALS Core's Dr. Tulsi Patel is such a great example of women kicking some serious a**. Dr. Patel was at Gordon Conference, an international research forum, in Tuscany Italy this week repping Project ALS.
Get your @HerALSStory collab tee: bit.ly/46Czhk3
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Project ALS recognizes the US Department of Defense for its critical ongoing support of ALS research. Did you know that service members are more likely to get ALS?
Learn more: cdmrp.health.mil
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With no cure, it can be hard to have hope for a future free of ALS. Project ALS understands this frustration.
Our Director of Research, Valerie Estess, discusses the 26-year journey of Project ALS and what's next in our research efforts: bit.ly/3KQrwgr
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