Lawyer, Health Consumer #equity #access #lungcancer #rarecancer #hope Views my own.

Eora Country, Australia
Grateful for this opportunity to share my thoughts on the impact that a diverse group of patient advocates can make in all aspects of the policy process. My call is to empower. #wclc24 @IASLC
Lillian Leigh @ProjectBreath underscores the importance of advocates in health policy change. #WCLC24
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So grateful to the #WCLC24 program committee & @IASLC for inviting me and my fellow patient advocates to speak at the closing plenary.
Lillian Leigh @ProjectBreath underscores the importance of advocates in health policy change. #WCLC24
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Lillian Leigh GAICD retweeted
Applications are now open for the STARS PRA & STARS Scholar Programs! We invite people who have or had #lungcancer and their family members to apply. Applications close on 3/15/24 @ 5PM MST. To Learn More & Apply Go To: iaslc-stars.org/stars-progra… #LCSM
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If you still haven't listened to @TOGAANZ's podcasts, make this your first 👇👇👇 #lcsm #lungcancer #Genomics
Our highest ever number of downloads at a whopping 454+! Catch the podcast buff.ly/47sesXq or buff.ly/4aS6vgO No doubt the lowdown on NGS in NSCLC has been 🔥due to the funding of the small gene panel for non-squamous NSCLC from 1 Nov 23 buff.ly/3Pwzhd7
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Our highest ever number of downloads at a whopping 454+! Catch the podcast buff.ly/47sesXq or buff.ly/4aS6vgO No doubt the lowdown on NGS in NSCLC has been 🔥due to the funding of the small gene panel for non-squamous NSCLC from 1 Nov 23 buff.ly/3Pwzhd7
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We are launching our official pregnancy and lung cancer registry! DM or send us an email with any cases-data protected and safe. Email: YoungLungResearch@dfci.harvard.edu
🚨UNVEILING the Pregnancy & Lung Cancer Registry @Florez_Lab ! 🚨Our Global Pregnancy & Lung Cancer #Registry was created in response to the 📈 rates of lung cancer in young women. It is NOW essential to understand #lungcancer diagnosis in pregnancy. @NarjustFlorezMD #PLC
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Lillian Leigh GAICD retweeted
Congratulations to Cancer Voices NSW – 2023 winner of the Consumer Engagement in Cancer Research Award. #cancerNSWawards
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Lillian Leigh GAICD retweeted
Having a parent pass away from non smoking related lung cancer years back, it was an emotional moment hearing consumer Lillian Leigh share her thoughts and speak to the first new national lung cancer screening program in nearly 20 years at #COSA2023. canceraustralia.gov.au/about…
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Lillian Leigh GAICD retweeted
Replying to @ProjectBreath
@ProjectBreath highlights the need to connect primary & specialist cancer care- an issue identified by Victorian health staff & consumers in @AIHI_MQ’s #CanEngage Project. Codesign is underway with CALD communities @WesternHealth @Austin_Health & PHNs to create solutions #COSA23
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Lillian Leigh GAICD retweeted
Oops 🙊 forgot my raspberry beret today! #COSA23. thank you 🙏🏽 @COSAoncology & @POCOG1 for this generous recognition of my humble contribution to our field.
2023 Melanie Price Australian Psycho-Oncology Award is presented to @hagsiesese at the #COSA23 ASM!
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"Words Matter" is not just a catch phrase, it's a simple and profound truth to combat #stigma - says @jillfeldman4 To the medical community, please use non-stigmatising language. Find out more about the @IASLC Language Guide here: iaslc.org/IASLCLanguageGuide #LCSM
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Lillian Leigh GAICD retweeted
Not many people understand how important research is furthering treatments for #lungcancer. You not only got it but used your voice to help others too. Thank you for being a strong #advocate for all pts with cancer. You inspire us to do better! 🙏🏾🙏🏾🙏🏾
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I've been reflecting on all that I've had the privilege to learn from HRH Princess Dina Mird of Jordan @dinamired at @IASLC #WCLC23 this week, and I'm fired up more than ever to tackle inequities. Medical advancements MUST not leave global citizens behind.
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Lillian Leigh GAICD retweeted
So special to meet, and have Her Royal Highness Princess Dina Mired of Jordan @dinamired as part of the STARS workshop to discuss Policy Advocacy with @ProjectBreath and Andrew Ciupek #WCLC23 #LCSM @IASLC
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Very interesting indeed, and a lot more discussions req'd with patients about the risks vs the benefits. Toxicity is real for osi, and higher with osi+chemo. Prof Yi-Long Wu has identified: psychological barriers are likely. #WCLC23 @IASLC @jillfeldman4 #lcsm
Very interesting results from FLAURA2. Significant improvement in PFS across all subsets. But most benefit seen in pt with CNS mets and L858R. More AEs with chemo but ILD same 3-4%. I think new SoC in these subsets #WCLC23
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Lillian Leigh GAICD retweeted
Very interesting results from FLAURA2. Significant improvement in PFS across all subsets. But most benefit seen in pt with CNS mets and L858R. More AEs with chemo but ILD same 3-4%. I think new SoC in these subsets #WCLC23
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Lillian Leigh GAICD retweeted
#WCLC23 Dr. Eric Lim @ekslim presents the long awaited MARS2 trial: A Multicentre Randomised Trial Comparing (Extended) Pleurectomy Decortication vs No Radical Surgery for Mesothelioma. Endpoint is OS and they consulted pts to ensure benefit was meaningful.
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Lillian Leigh GAICD retweeted
MARS2 conclusively proves that EPD surgery for "resectable"mesothelioma results in worse outcomes than chemotherapy alone #WCLC23. Amazing study and presentation. Congrats @DrSanjayPopat @DrRiyazShah and teams
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A truly remarkable presentation of the MARS 2 results by surgeon Prof Eric Lim @ekslim at this morning's Presidential Symposium. Thank you so much for demonstrating patient-centric care and the value of patient involvement in research design! #wclc23 @IASLC #lcsm
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Lillian Leigh GAICD retweeted
Speak up for #equity at whichever table you sit on. Passionate presentation at 1st #WCLC23 by ⁦@DrAbhiPal⁩ ⁦@IASLC⁩ ⁦@ProjectBreath⁩ 👏🏽👏🏽👏🏽 ⁦@SWSLHD⁩
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