Care for What Comes Next - Together, Beyond Treatment. Redefining survivorship in sickle cell - supporting patients navigating curative therapies.
- Tweets 1,893
- Following 90
- Followers 329
- Likes 1,760
Pinned Tweet
Sickle cell does not get as much publicity as it should. That's a fact.
Because of this, sickle cell warriors might feel isolated. Our goal is to support the global sickle cell community by sharing content that's tailor made for us, by us. Use #sicklecellprodigy to show support.
11
26
SickleCellProdigy retweeted
@SCCConsortium 4th Annual Sickle Cell Caregiver Summit, Nov 15-17, caregivers from all walks of life will connect and empower one another. Here's your chance to gain resources in caring for loved ones with SCD. Register today at scdcaregivers.org. 💖 #SCDCaregivers #SCDAAMI
1
1
56
SickleCellProdigy retweeted
B Positive choir has been inspiring others since @MOBOAwards
We sing with passion and raise awareness of #SickleCell & Blood Donation @GiveBloodNHS
"From Now On" was recorded to share our joy with others
contact us events@bpositivechoir.org.uk
#BpositiveChoirOfficial
6
11
339
Here’s a teaser from the movie “Students Are Heroes A Sickle Cell Warriors Story”
Directed by Keenan ‘Special’ Bristol @specialbabyfly
Stream the movie at musicbringslife.org/
ALL Proceeds of the film go to Heroes Donate Blood Program
#sicklecellprodigy #sicklecell
1
2
46
SickleCellProdigy retweeted
Have you ever thought about undergoing a bone marrow transplant (BMT) to treat #sicklecell disease (SCD)? 🤔Here are three facts you should know about BMT for SCD.
#SickleCell101 #BoneMarrowTransplant #SickleCellAwareness
1
8
14
646
As a community, we will keep advocating for swift and adequate treatment in hospitals.
Delay in treatment can be detrimental for sickle cell patients. The type of pain med and when it is given is crucial.
Let’s share this valuable piece of information.
#SickleCellAwareness
1
2
70
SickleCellProdigy retweeted
Oftentimes, we talk about lived experiences of patients who have undergone gene therapy but on episode 3 of #ThroughTheGenes, we sit down with Amanda Olaghere to unpack the caregiver experience.
This and more now available on all podcast platforms.
open.spotify.com/show/0BeH3v…
3
3
82
SickleCellProdigy retweeted
The Warriors Convention features a special segment "Beauty Within Sickle Cell" in honor of Jasmine Rivera, who bravely battled Sickle Cell Disease. Jasmine shared her journey on social media, emphasizing inner beauty. We will be offering hair and makeup sessions for the prom.
1
4
11
380
This is your mid-week reminder to always prioritize your health. Take breaks if you have to but never overwork yourself.
Save this reminder for later.
#SickleCellProdigy #SickleCellWarrior #SickleCell
1
5
11
1,591
Register today.
The 11th Annual Warriors Convention in Atlanta, Georgia on July 17-21 brings together the sickle cell community for education, community, and fun activities like the Royal Ball.
Scholarships: tinyurl.com/2024WarriorConSc…
Register: tinyurl.com/sc3warriorcon24
22
Get your devices ready as episode 2 of #throughthegenes podcast drops this Wednesday.
Our guest is a recipient of a curative therapy so we are going to hear from the patient’s perspective.
#SickleCellProdigy
#ThroughTheGenes podcast is here again.
On Wednesday, July 3rd, episode 2 launches on all your favorite podcast platforms.
Who’s excited to hear from our guest, a recipient of a curative therapy for sickle cell disease. Let us know how excited you are in the comments section
3
1
145
SickleCellProdigy retweeted
🎉 Meet our new Officers!
🔸Kevin, President Healthcare & Networking Expert 🌍
🔸Jemela, VP
Social media maven 💻
🔸Maurice, Treasurer Communication pro & school resources leader 📚
🔸Shawna, Secretary Bridging SCD families & hospitals 🏥
Engage & share!👏 #SickleCellMidwest
3
2
11
540
Dear community, do you feel offended when someone tells you or your ward this? Let us know in the comments. 👇🏾
1
1
49
PS- Since its Men’s Health month, we will be raising funds for Abayomi’s hip replacement. Join us by donating using the link in our bio.
#SickleCellProdigy #SickleCell #SickleCellDisease 👇🏾
1
47
SickleCellProdigy retweeted
*Book Now for 27 June 4.30 or 5pm* We’re collecting patient feedback on sickle cell services at University Hospitals Southampton NHS Trust . Sessions are held online, and feedback will be anonymous. Book now free buff.ly/3VIfU44
#southampton #sicklecell
4
11
667