ME/CFS Research Network@TheMECFSNet

@NIH-funded network that fosters collaborative research in partnership with individuals and advocacy groups to improve the diagnosis and treatment of #MECFS.

mecfs.rti.org/
Joined April 2022
199 Photos and videos
Why do post-acute infection symptoms persist? On October 8, Anthony Komaroff, MD, @harvardmed, will moderate and speak at the ME/CFS Exchange Webinar exploring why these symptoms persist. #MECFS #MECFSnet Save your spot! Register today: rtiorg.zoom.us/webinar/regis…
55
✨Visit searachMECFS.org to learn more!
2
5
83
New paper from #MECFSnet partners at @ICanCMEResearch! Researchers examine haptoglobin phenotypes in relation to post-exertional cognitive dysfunction in Long COVID. ✨Read to learn more: ow.ly/XIFh50ZR7AS
2
3
121
📢Happening today @3pm ET! Register to join CDC's ME/CFS SEC Call. #MECFS Register here: ow.ly/PGgM50ZNz4s
1
2
101
There's still time to register!
#MEAction Network@MEActNet
Sep 17
TOMORROW: The CDC ME/CFS Stakeholder Engagement and Communication (SEC) Conference Call is on Sept. 18th at 3:00 pm ET. Register: ow.ly/jMYn50ZLwsJ Guest speaker: Nancy Klimas, MD. Also featuring program updates from CDC's ME/CFS program staff and a Q&A. #pwME
Announcement for CDC ME/CFS SEC Call on September 18, 2026, from 3 to 4:30 pm ET with registration required. Photo at bottom shows a person on their couch attending an online meeting with a laptop. Blue background with orange accents. Text: CDC ME/CFS SEC Call Featuring a presentation Dr. Nancy Klimas, Director of the Institute for Neuro-Immune Medicine at Nova Southeastern University. Also featuring program updates from CDC's ME/CFS program staff and a Q&A.

ALT Announcement for CDC ME/CFS SEC Call on September 18, 2026, from 3 to 4:30 pm ET with registration required. Photo at bottom shows a person on their couch attending an online meeting with a laptop. Blue background with orange accents. Text: CDC ME/CFS SEC Call Featuring a presentation Dr. Nancy Klimas, Director of the Institute for Neuro-Immune Medicine at Nova Southeastern University. Also featuring program updates from CDC's ME/CFS program staff and a Q&A.
1
3
110
Don't forget to register for the first ME/CFS Exchange Webinar: Post-Acute Infection Symptoms, October 8 @1pm ET. ✨Register today! ow.ly/GzJg50ZNW0V
5
8
232
📢Mark your calendars! Join the CDC's ME/CFS SEC Call this Friday, September 18 at 3pm ET. #MECFS Register today! ow.ly/PGgM50ZNz4s
2
3
126
Need ME/CFS biospecimens? Start with #searchMECFS. Explore available specimens and support your next discovery. ✨Visit searchMECFS.org to learn more!
5
4
401
1
94
Want the latest updates from #MECFSnet? Explore recent publications, research news, and Network updates in our newsletter. 👉Read the latest issue: ow.ly/rev450ZJzGE
6
7
287
#MECFSnet partner @DrMaureenHanson @CornellMECFS offered insight into the biological mechanisms underlying PEM at a recent #PRIME webinar. ✨Watch to learn more: ow.ly/RrAH50ZIpqe
1
5
18
521
What causes post-acute infection symptoms, and why do they persist? Join the first ME/CFS Exchange Webinar Series on October 8 to explore post-acute infection symptoms, #MECFS, and findings from basic research. Register today! #NINDS #MECFSnet 👉ow.ly/spKp50ZFlMX
9
12
398
Save the date: August 19 @ 4pm ET. Live event - @OpenMedF's Journal Club. Learn more about new research that examines how haptoglobin phenotypes influence post-exertional cognitive dysfunction in Long COVID. Register today! ow.ly/ZVCY50ZA23p
2
4
414
If you've been thinking about joining #StudyME, consider this your invitation!
Open Medicine Foundation@OpenMedF
Aug 13
Help advance #MECFS and #LongCOVID research by joining OMF’s StudyME, a free global participant registry that connects you with researchers conducting studies in these areas. 👉 Sign up today: omf.ngo/studyme/ Already part of StudyME? Please share this post 💙
StudyME logo above a photograph of three researchers in lab coats examining a specimen, with test tubes and a microscope. URL: http://www.omf.ngo/studyme

ALT StudyME logo above a photograph of three researchers in lab coats examining a specimen, with test tubes and a microscope. URL: http://www.omf.ngo/studyme
4
170
New paper! Findings from #MECFSnet partners at @ICanCMEResearch offer new insight into #LongCOVID. #AlainMoreau Read paper: ow.ly/LWgS50ZyGI2
4
464
Today is #SevereMEDay. Progress depends on strong partnerships between researchers, clinicians, patients, and advocates. Together, we can accelerate discovery. #MECFS #MECFSnet
2
10
280
Happening today! Don't miss the #NIH Scientific Freedom Lecture on human sex differences and its impact on research, medicine, and policy. Watch live at 1pm ET today: ow.ly/WB0F50ZwONE
1
2
123
✨Registration is open for the NIH workshop From Mechanisms to Medicine. Learn more about complex multi-system disorders and dialogue that bridges scientific insight and patient experience. Save the date: September 23-24, 2026 and register today! mregs.nih.gov/ninds/vf45-44z…
1
1
121
📆Happening tomorrow! PRIME Webinar on PEM, a hallmark symptom of #MECFS. Learn more and register: ow.ly/NQco50ZuoJn
3
3
4
301
Congrats to #MECFSnet partner Dr. Erin Wissink @CornellMECFS on winning the 1st Place Outstanding Oral Presentation Award at #YoungEMERG! Her presentation showcased important findings on T-cell dysregulation in #MECFS.
3
6
158
Load more