Hi Dr LG, hope you don’t mind an open question , really appreciate you sharing your diagram (and the disclaimer that it’s not medical advice) , even though who use Dr in the name of your profile..
Firstly, who helped you create this protocol? If the answer is just ‘me’, it comes across as far too naturopathic. There must have been someone (or some specialist/contact) who actually guided you toward your said remission , not just Google searches and patient forums. If so, what patient forum, what contact?
All the ME patients I talk to are not recovered, and have all tried just as many things or more. ME has no cure, and the recent ME conference made that clear with biomedical research showing these kinds of interventions simply wouldn’t reverse the illness (id love to be proven wrong with more then N=1) at least not the ME that I and millions of others have (the millions who never achieve remission).
If ME/CFS is post-viral for the large majority of cases, what role do you think the amalgam fillings removal played? (In or out , did you notice a difference either way?) id imagine most wouldnt otherwise we would all be removing them. The fillings removal is a classic naturopathic thing. Likely not impacting much if anything at all. Potentially a risk factor sure.
Also, do you suspect your post-Covid “ME” was a distinct subset? Because if the illness is as heterogeneous as the research suggests, anyone else replicating your exact 10-step protocol would have a tiny (likely close to 0%) chance of the same outcome. With that in mind, what’s the purpose of sharing it publicly , hypothesis generation, or something else? If it caused remission, have you shared it with OMF and research teams, and not just X to the vulnerable?
On the practical side: why these 10 specific things, in that order? And if you had to guess, which one (or combo) actually tipped you into partial remission?
The list feels quite naturopathic/supplement-heavy alongside the pharma bits, yet the diagram just says “I did this and got partial remission” without a before/after symptom timeline or clear causality data.
Finally, many of us already aggressively manage the dysautonomia (which in itself has no cure within MECFS), MCAS, gut issues, etc. that you list , yet see zero change in core ME/CFS fatigue/PEM symptoms, even if they where to remove, QOL would certainly improve, dysautonomia is a major symptom when severe, but the hallmark symptoms dont vanish?.
Any thoughts on why the full stack worked for you but might not translate?
I do credit the full multi-system approach (mercury, B12, triple therapy etc.), but the more you have to treat, the less it feels like classic ME/CFS and the more like a pile of overlapping issues? I have the same questions for the Bornfree protocol
Happy to be proven wrong when 1000+ others tell me its worked and are running again all day and in the gym.
Until then, with the obvious subsets at play, its testing waters with the vulnerable
