Find me on Mastodon: anoukruhaak@techhub.social
Victoria - she/they
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When we leave it to each of us to individually decide who we want to give access to our data, we all loose.
Here are my thoughts on what collective approaches to consent might look like:
foundation.mozilla.org/en/bl…
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Anouk Ruhaak anoukruhaak@techhub.social retweeted
How do we address the community impact of biomedical research?
@AnoukRuhaak, Joon-Ho Yu & @MegDoerr explore “Group Licenses to Operate” – a process of community engagement & consent that would permit research to progress in lock-step with group interests sagebionetworks.pubpub.org/p…
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Anouk Ruhaak anoukruhaak@techhub.social retweeted
I was excited for this week’s Community Health Interests for Researchers & Oversight Networks (CHIRON) post long before it was written: @AnoukRuhaak & Joon-Ho Yu team up to explore social license to operate, proposing a novel pathway to community consent sagebionetworks.pubpub.org/p…
📯New post 📯CHIRON scholar @JasmineMcNealy considers community consent as a requirement for the ethical conduct of biorepository research: is it a minimum floor, an aspirational ceiling, both or neither? sagebionetworks.pubpub.org/p…
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Anouk Ruhaak anoukruhaak@techhub.social retweeted
CHIRON blog: big data research & communities! This week @AnoukRuhaak on what prompts communities to evolve & how change can impact the validity community consent over time. Read of her post here: sagebionetworks.pubpub.org/p… And browse the whole series here: sagebionetworks.pubpub.org/c…
Community Health Interests for Researchers & Oversight Networks (CHIRON) blog post #5: Joon-Ho Yu explores community consent in secondary use research: when you need it and why it’s essential to trustworthy research practice. Read more here: sagebionetworks.pubpub.org/p…
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Anouk Ruhaak anoukruhaak@techhub.social retweeted
Want to know what @Mozilla is up to with the Fediverse? 🤔
Check out this insightful panel discussion between @AnoukRuhaak, @Lyciast, @stevetex, Darius Kazemi, and AX Mina to find out!
Watch the full video here. ⏬
mzl.la/fediverse
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Anouk Ruhaak anoukruhaak@techhub.social retweeted
If you're neuro-diverse, and/or have sensory sensitivity / sensory processing challenges, what piece of clothing bothers you the most?
18%
Shirt
44%
Socks
26%
Pants
12%
Undergarments
34 votes • Final results
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One thing that came up in this discussion was the need for a privacy-aware analytics suite that allows mastodon users to set define own metrics.
@jmckenty and I started building such a tool over here: herdwise.io. Would love your input!!
🌐 @Mozilla is joining the Fediverse in 2023!
Tune into the discussion with @stevetex, @AnoukRuhaak, @Lyciast, Darius Kazemi and moderator AX Mina about opportunities, limitations, and scaling methodology of @Mozilla's move to the Fediverse NOW. 🔽
youtube.com/live/BZcXifUT0No…
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Anouk Ruhaak anoukruhaak@techhub.social retweeted
🌐 @Mozilla is joining the Fediverse in 2023!
Tune into the discussion with @stevetex, @AnoukRuhaak, @Lyciast, Darius Kazemi and moderator AX Mina about opportunities, limitations, and scaling methodology of @Mozilla's move to the Fediverse NOW. 🔽
youtube.com/live/BZcXifUT0No…
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Anouk Ruhaak anoukruhaak@techhub.social retweeted
Another Dutch so-called "fraud prediction" algorithm has ruined people's lives.
This time in Rotterdam: young single mothers that did not master the Dutch language were called for social welfare fraud investigations.
When will @EU_Commission intervene? My written questions 👇
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"We’ve learned to make “machines that can mindlessly generate text,” Bender told me when we met this winter. “But we haven’t learned how to stop imagining the mind behind it.” "
nymag.com/intelligencer/arti…
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Anouk Ruhaak anoukruhaak@techhub.social retweeted
Sorry bro theverge.com/2022/10/28/2342…
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Anouk Ruhaak anoukruhaak@techhub.social retweeted
At Twitter, there’s chaos & noise
Created by ownership ploys,
For it & such places,
Today’s public spaces,
Are billionaire narcissists’ toys
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Anouk Ruhaak anoukruhaak@techhub.social retweeted
Machine learning systems, explained.
comic v/@xkcd
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Anouk Ruhaak anoukruhaak@techhub.social retweeted
Hey, friends, we just gave our company to planet Earth. OK, it’s more nuanced than that, but we’re closed today to celebrate this new plan to save our one and only home. We’ll be back online tomorrow.
nytimes.com/2022/09/14/clima…
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Anouk Ruhaak anoukruhaak@techhub.social retweeted
Nope. Don't like this one bit.
I cheered when Apple blocked creepy ad tracking. I feel like an idiot now that it's become apparent that they were primarily doing this to reduce competition.
Apple is starting to promote its new advertising offerings. This will no doubt raise a lot of eyebrows in the ad tech world. Apple effectively cleared the way when it implemented new privacy policies last year. Good scoop from @kifleswing cnbc.com/2022/09/13/apple-pl…
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Anyone interested in disinformation should def check this out:
Anger surges through social networks since it moves through the weak ties that make up so many of our online connections.
Joyful posts stop at the borders of our friend groups, bounded by the strong ties of people who know us well. Neat study on Weibo: arxiv.org/abs/2005.01924
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