The European ME Alliance is a grouping of European organisations who are involved in supporting patients suffering from myalgic encephalomyelitis (ME or ME/CFS)

Europe
European ME Alliance ๐Ÿ‡ช๐Ÿ‡บ retweeted
The European ME Clinicians Council restarted monthly meetings following the #BRMEC15 Colloquium in May and includes clinicians from Europe, N. America and Japan emerg.eu/emergnews260801-emeโ€ฆ #mecfs @EMECC1 @euromeall @YoungEmerg
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"Turning a blind eye to #mecfs does not save money. It costs lives and drains public resources. Without early diagnosis and the correct support, ME can spiral into severe, lifelong disability - recovery becomes less likely, and care costs soar" europeanmealliance.org/severโ€ฆ
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European ME Alliance ๐Ÿ‡ช๐Ÿ‡บ retweeted
European ME Research Group Consortium Wins EU Horizon Funding emerg.eu/emergnews260601.shtโ€ฆ #mecfs #research #HorizonEurope
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EMEA is formal partner in ๐——๐—œ๐—ฆ๐—–๐—ข๐—ฉ๐—˜๐—ฅ-๐— ๐—˜ -first major EU Horizon-funded biomedical #research programme dedicated to #MECFS Patient voices embedded across all work packages via EMEA PPI Group A turning point for ME research in Europe europeanmealliance.org/news-โ€ฆ #HorizonEurope
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European ME Alliance ๐Ÿ‡ช๐Ÿ‡บ retweeted
Gracias a @Invest_in_ME por unirnos en la bรบsqueda de una cura para la EM/ SFC
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European ME Alliance ๐Ÿ‡ช๐Ÿ‡บ retweeted
WHO Regional Director Europe opened #IIMEC18 affirming- "ME is a serious, complex, multi-system physical illness, involving neurological, immune, and metabolic dysfunction" - Dr Hans Kluge @WHO_Europe Press release: investinme.org/IIMER-PR-2026โ€ฆ #mecfs #WHO #InvestInMEresearch #IIMER
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๐—œ๐—ป๐˜๐—ฒ๐—ฟ๐—ป๐—ฎ๐˜๐—ถ๐—ผ๐—ป๐—ฎ๐—น ๐— ๐—˜ ๐—”๐˜„๐—ฎ๐—ฟ๐—ฒ๐—ป๐—ฒ๐˜€๐˜€ ๐——๐—ฎ๐˜† ๐Ÿฎ๐Ÿฌ๐Ÿฎ๐Ÿฒ From awareness to action - The Work Behind the Awareness europeanmealliance.org/emea-โ€ฆ #mecfs #InternationalMEawarenessDay
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European ME Alliance - An Updated Constitution and New Members A change now allows non-European groups to become Associate members of EMEA and partner with us to improve the future for people with ME and their families europeanmealliance.org/news-โ€ฆ #mecfs #InternationalMEawarenessDay
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๐™’๐™ค๐™ง๐™ก๐™™ ๐™ƒ๐™š๐™–๐™ก๐™ฉ๐™ ๐˜ฟ๐™–๐™ฎ 7 ๐˜ผ๐™ฅ๐™ง๐™ž๐™ก and EMEA announces its selection for the WHO/Europe Public Health Innovation Platform, focusing on policy, governance, and financing europeanmealliance.org/news-โ€ฆ #mecfs #WorldHealthDay #HealthForAll #EuropeanMEAlliance
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International Long COVID Awareness Day Rasing awaness of the profound effects of Long COVID Echoes of ME europeanmealliance.org/news-โ€ฆ #mecfs #longcovid
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EMEA at the European Patientsโ€™ Forum Congress 2025 EMEA Becomes New Member of EPF and Attends EPF Congress europeanmealliance.org/news-โ€ฆ #mecfs
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Germany has launched the National Decade Against Post Infectious Diseases (2026โ€“2036) - EMEA comment europeanmealliance.org/news-โ€ฆ #mecfs @FatigatioeV @euromeresearch @YoungEmerg
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3rd International Symposium on Chronic Fatigue Syndrome, Long COVID and Post-Infection Syndromes, held in November 2025 at the Institute for Cardiovascular Diseases "Dedinje" in Belgrade, Serbia Video available europeanmealliance.org/news-โ€ฆ #mecfs #research @euromeresearch @YoungEmerg
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European ME Alliance ๐Ÿ‡ช๐Ÿ‡บ retweeted
Impressions from Invest in ME Research grant awardees at the recent Young EMERG International ME Workshop in Vienna investinme.org/yemerg-grant-โ€ฆ #mecfs #research @YoungEmerg @euromeresearch @EUROMEALL
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10 Dec #HumanRightsDay Human rights mean recognising suffering, and acting to end neglect ๐™๐™๐™ž๐™จ ๐™˜๐™–๐™ฃ๐™ฃ๐™ค๐™ฉ ๐™Ÿ๐™ช๐™จ๐™ฉ ๐™—๐™š ๐™ฌ๐™ค๐™ง๐™™๐™จ They must be ๐’•๐’“๐’‚๐’๐’”๐’‡๐’๐’“๐’Ž๐’†๐’… into actions for people with #mecfs, and their carers europeanmealliance.org/humanโ€ฆ #DignityForAll #HealthEquity
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Grateful to MEP Romana Jerkoviฤ‡ @JerkovicRomana for her support in raising EMEA's questions to European Commission regarding progress research and treatment of ME europeanmealliance.org/news-โ€ฆ #mecfs #EuropeanMEAlliance
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3 Dec #InternationalDayOfPersonswithDisabilities โ€“ โ€œFostering disability-inclusive societies for advancing social progressโ€ Advancing social progress ought to be more than just words europeanmealliance.org/news-โ€ฆ #IDPD2025 #DisabilityInclusion #DisabilityDay #mecfs 1/3
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#InternationalDayOfPersonswithDisabilities Too often people with #mecfs are excluded from care and life because ME is not recognised EMEA is committed to meaningful change through action europeanmealliance.org/news-โ€ฆ #IDPD2025 #DisabilityInclusion #DisabilityDay 2/3
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Building disability-inclusive Europe means acknowledging โ€œinvisibleโ€ conditions such as #mecfs Ensuring policies, funding, services reflect that reality Genuine disability-inclusive societies ensure no one is left behind europeanmealliance.org/news-โ€ฆ #IDPD2025 #DisabilityInclusion 3/3
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European ME Alliance ๐Ÿ‡ช๐Ÿ‡บ retweeted
'Registration Extended!' November inโค๏ธienna! next ๐™”๐™ค๐™ช๐™ฃ๐™œ ๐™€๐™ˆ๐™€๐™๐™‚ ๐™„๐™ฃ๐™ฉ๐™š๐™ง๐™ฃ๐™–๐™ฉ๐™ž๐™ค๐™ฃ๐™–๐™ก ๐™ˆ๐™€ ๐™’๐™ค๐™ง๐™ ๐™จ๐™๐™ค๐™ฅ 27-28 November youngemerg.com/yemerg06v.shtโ€ฆ #mecfs #research @YoungEmerg @euromeresearch
๐Ÿ“ข #YEVienna2025 โ€“ Registration Extended! Good news: you now have until 7 November to register for our two-day workshop for early career researchers in ME/CFS. You can still: ๐Ÿง‘โ€๐ŸŽ“ Attend the workshop ๐Ÿ“ฐ Submit a poster ๐Ÿจ Request discounted accommodation
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